• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tucson Gi/pediatric Celiac Doctors
0

6 posts in this topic

Help!

My mom was diagnosed with Celiac. Now my daughter has been having stomach problems since she was a baby, and has had some strange food cravings, such as sneaking flour and eating it dry by the fistful. She had a negative growth chart, severe constipation, reflux, and bacteria and fungal overgrowth in her small intestines, but tested negative for Celiac at the age of 4. The test also showed she was low in iron.

For several years her symptoms improved. Her growth chart moved into the 10th percentile and stayed there. Her constipation was manageable with Senakot, and her stomach pain lessened.

This summer her stomach pain returned with a vengeance. It occurred more often, and was followed by severe vomiting. We placed her on a gluten-free diet, and then tested her for Celiac. Again, the test came back negative, but her vomiting has lessened substantially. It could be Celiac. It could be something else.

We are at a complete loss, and desperate to help her. Can anybody recommend a good GI, pediatric doctor in Tucson?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Help!

My mom was diagnosed with Celiac. Now my daughter has been having stomach problems since she was a baby, and has had some strange food cravings, such as sneaking flour and eating it dry by the fistful. She had a negative growth chart, severe constipation, reflux, and bacteria and fungal overgrowth in her small intestines, but tested negative for Celiac at the age of 4. The test also showed she was low in iron.

For several years her symptoms improved. Her growth chart moved into the 10th percentile and stayed there. Her constipation was manageable with Senakot, and her stomach pain lessened.

This summer her stomach pain returned with a vengeance. It occurred more often, and was followed by severe vomiting. We placed her on a gluten-free diet, and then tested her for Celiac. Again, the test came back negative, but her vomiting has lessened substantially. It could be Celiac. It could be something else.

We are at a complete loss, and desperate to help her. Can anybody recommend a good GI, pediatric doctor in Tucson?

Hi, I'm in Tucson also!

Try contacting The Southern Arizona Celiac group - they have a kids group also. http://www.southernarizonaceliacsupport.org/resources/celkids.html

I was given the name of Dr. Moussa, Catalina Pediatrics 323-3099 as a Celiac-friendly Pediatrician. You may ask her office for a reco.

0

Share this post


Link to post
Share on other sites

This summer her stomach pain returned with a vengeance. It occurred more often, and was followed by severe vomiting. We placed her on a gluten-free diet, and then tested her for Celiac. Again, the test came back negative, but her vomiting has lessened substantially. It could be Celiac. It could be something else.

You did that backwards. How long was she gluten-free before you got the celiac test? The test doesn't work on people who have been gluten-free for a couple months. It can also be hard to get positive tests in kids. With the family history it would make sense to keep her on the diet and see if it helps.

The flour cravings suggest she is getting the narcotic effect from gliadorphin, an opiate-like peptide in wheat. This only happens to people with digestive problems, and it can cause a lot of problems. She probably also needs to be off casein because milk has similar peptides.

0

Share this post


Link to post
Share on other sites

Hi, I'm in Tucson also!

Try contacting The Southern Arizona Celiac group - they have a kids group also. http://www.southernarizonaceliacsupport.org/resources/celkids.html

I was given the name of Dr. Moussa, Catalina Pediatrics 323-3099 as a Celiac-friendly Pediatrician. You may ask her office for a reco.

Thank you so much for the information, Pricklypear1971. Love your sign in name. I'll be following up on both your recommendations. There has got to be something I can do for her. Waiting is no longer an option.

0

Share this post


Link to post
Share on other sites

You did that backwards. How long was she gluten-free before you got the celiac test? The test doesn't work on people who have been gluten-free for a couple months. It can also be hard to get positive tests in kids. With the family history it would make sense to keep her on the diet and see if it helps.

The flour cravings suggest she is getting the narcotic effect from gliadorphin, an opiate-like peptide in wheat. This only happens to people with digestive problems, and it can cause a lot of problems. She probably also needs to be off casein because milk has similar peptides.

Hi Skylark.

Because she was responding so well to the gluten-free diet, I couldn't bare to take her off it for the test. Believe me. I thought about it, but I don't think she would have done it. By then, she was tired of hurting and throwing up. She had been on it for about a month prior to the test so the results didn't surprise me.

The Casein information is interesting. Never heard of that before. Milk is something she naturally stays away from. She's never been able to tolerate it. Thank you for the information. I'll be looking into the narcotic effect from gliadorphin. The whole flour craving thing threw me off....

0

Share this post


Link to post
Share on other sites
Ads by Google:


Poor little one. :( I sure understand you refusing to gluten challenge with her. There is some information on the opiate-like peptides here. I've found more information in the scientific literature on the milk peptides, called casomorphins, but gluten definitely has similar actions to milk.

http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/gluten-and-casein-responders/

By the way, a doctor is not likely to have heard of any of this.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,802
    • Total Posts
      932,555
  • Member Statistics

    • Total Members
      64,294
    • Most Online
      3,093

    Newest Member
    Alisha Patel
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you for your replies, everyone! It was very helpful. I don't think I am comfortable with passing the whole gluten introduction diet again and getting that rash. Or, even getting the rash on my face flared up again. It actually might be a good thing I got 'glutened' at that bd party so I could finally make connection with all the symptoms. As I thought back about my 'allergy' rashes I start wondering if it could be related to gluten all those years but no one even suspected. For example, at some point I started getting itchy rash around my knees, spreading down to ankles (front of the legs) in summer. The dermatologist and GP said it is 'sun allergy'. The usual allergic treatments helped for the itch and the patchy scales slowly healed but it flared up on the same place during the summer multiple times. The strange thing is that it never flared up when I went hiking, or walking in the sun in the city (I have extremely low vit D levels and I need to supplement, so it was no-no to stay completely covered no matter the rash...I needed my natural vit D). The rash only appeared after beach visits. At some point I started washing and drying my skin with a towel every time I went out from the sea, the rash still appeared but I was able to control it so it showed up on day 4-5 when vacation was almost over. Then, last summer after I was completely gluten and dairy free for approximately 9-10 months, and I was annoyed of washing my skin each and every time and getting those weird looks on the beach, I stopped doing it. I was prepared with medicine and creams for that rash but guess what - my 'sun allergy' was mysteriously gone. Not a single blister, not a patch of itchy skin, nothing. Another 'allergy' case of mine is that I found from my own bad experience I got very bad rash from red dyes (in food or cosmetics). If it is food it shows on my face, if it is cosmetics (soaps, perfumes)...whenever I applied it. I am now reading that people with dh should stay away from red dyes. Mere coincidence? I don't know, I am more and more suspicious I could have this DH thing going on for years, if that is DH. I am just annoyed that all the dermatologists I went to during all those years never made connection. No one even suspected. It was the usual path - cortisone creams, pills, etc. At some point cortisone creams were no longer working so they started prescribing some mixtures made in the pharmacy specifically for me with sulfur. That worked like a charm but I couldn't walk around all covered in white cream looking like a mummy (long sleeves in summer here where I live and summer = 35-38 C, is not fun). Then, I tried homeopathy....it worked like a charm but of course those rashes kept appearing and disappearing, I was only able to control the itchy skin so I don't scratch, scratch, scratch...looong, long journey! Sorry about my rant...and, one more time thank you everyone who found the time to reply and share your opinion! Much appreciated!
    • Found this old thread when researching for my daughter who might be having an endoscopy in September. I'm curious to know what the results were?
    • Actually "flour" is not a common ingredient in soy sauce.   Accusing a manufacturer of "lying" about ingredients is a serious charge.  If you actually have proof that this company is not listing ingredients, you should report it to the FDA.
    • Ok guys, I messed up. I ate a bag of marshmallows the same day... low and behold, with wheat starch. I did not expect that. Sneaky sneaky marshmallows with with wheat starch. fml
    • The L-Glutamine may have gluten in it.  Try drinking bone broth daily instead.
  • Upcoming Events