This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Okay, I found a dr about a half hour away, soonest appointment is in 3 weeks. If they have a cancellation they will call. They said of course I should not have stopped eating gluten before testing and don't know why anyone who is a GI would say that. They asked for the name of the dr. I will get back onto gluten in the meantime.
I suppose I can order the tests myself, but I also was hoping to find a doctor who can actually assist on this mess. I saw that celiac.org does have a search function to locate physicians. Trying that now. The first person I tried doesn't have any opening until October.
If you want to do the full celiac panel quickly, you can buy the test online at walkinlab.com and get it done at your nearest Labcorp today. You can give the results to your next GI. The downside of this method is it's not covered by insurance and costs $298.00. But it'll guarantee you get the full panel.
It's called the "Celiac Disease Comprehensive Antibody Profile" and includes:
TTG IGA and IGG
DGP IGA and IGG
Just a thought.
Ugh. I will try to find another doctor. He was acting like I didn't know what I was talking about but I was pretty sure it was the other way around. Are there sources for recommended doctors/GIs who have better knowledge about appropriate testing procedures? I live in a smaller town so my options for quality care may be more limited.
It does matter. Don't stop eating gluten until all tests are finished. Maybe check for another GI?
"Any changes in your diet can affect the accuracy of your biopsy results. You must be eating gluten every day, in an amount equivalent to at least 1 slice of bread, for at least 2 to 3 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have eaten gluten only a short time before the biopsy, you and your physician will not know if a negative test result is accurate or due to your diet."
"For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.
Prior to blood testing we recommend 12 weeks of eating gluten.
Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten."