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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Blood Test Negative But...
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8 posts in this topic

So i told my doctor I wanted to do a blood test for celiac and I waited 2 weeks for the results.. Came back negitive she told me that doesnt mean I'm not Gluten Intolerant.. She said that I really don't need a biopsy cause it's just gonna prove what I already know.. I can't eat gluten.. So should I get a biopsy and see what's really going on down there? Or not?

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If you are not already gluten free you could ask for a referral to a GI if you need a diagnosis for school or other family or yourself to take the diet seriously. You could also ask the doctor for a note for school/college if you are still in them so they will accomodate your needs.

It would be a good idea to post your test results as sometimes not all the ones that are needed are done or a doctor will consider a low positive to be negative. If you are in the US you have a legal right to all copies of tests and it is a good idea to get them.

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It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

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Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

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It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

I cant seem to find that blog of yours! =[

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Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

I only see two celiac tests on your panel, two versions of the ttg. They should have done a serum IgA at least, anti-gliadin (which should be the deamidated version) and anti-endomysial. You should have further testing.

Although, unless you need a diagnosis for school or other purposes (as mentioned by another poster) you don't need a doctor's order to eat gluten-free. Just doing the diet will tell you a lot.

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Beachbirdie is right, you don't have all the necessary tests there. You can't even know the validity of any test involving IgA unless your Total IgA has been tested. I hope you were able to find my blog post - all the tests and descriptions are listed there. I'm not allowed to link to it which is why I didn't give you the link.

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