• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Blood Test Negative But...
0

Rate this topic

8 posts in this topic

Recommended Posts

So i told my doctor I wanted to do a blood test for celiac and I waited 2 weeks for the results.. Came back negitive she told me that doesnt mean I'm not Gluten Intolerant.. She said that I really don't need a biopsy cause it's just gonna prove what I already know.. I can't eat gluten.. So should I get a biopsy and see what's really going on down there? Or not?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you are not already gluten free you could ask for a referral to a GI if you need a diagnosis for school or other family or yourself to take the diet seriously. You could also ask the doctor for a note for school/college if you are still in them so they will accomodate your needs.

It would be a good idea to post your test results as sometimes not all the ones that are needed are done or a doctor will consider a low positive to be negative. If you are in the US you have a legal right to all copies of tests and it is a good idea to get them.

Share this post


Link to post
Share on other sites

It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

Share this post


Link to post
Share on other sites

Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

Share this post


Link to post
Share on other sites

It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

I cant seem to find that blog of yours! =[

Share this post


Link to post
Share on other sites
Ads by Google:


Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

I only see two celiac tests on your panel, two versions of the ttg. They should have done a serum IgA at least, anti-gliadin (which should be the deamidated version) and anti-endomysial. You should have further testing.

Although, unless you need a diagnosis for school or other purposes (as mentioned by another poster) you don't need a doctor's order to eat gluten-free. Just doing the diet will tell you a lot.

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Beachbirdie is right, you don't have all the necessary tests there. You can't even know the validity of any test involving IgA unless your Total IgA has been tested. I hope you were able to find my blog post - all the tests and descriptions are listed there. I'm not allowed to link to it which is why I didn't give you the link.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,134
    • Total Posts
      939,847
  • Member Statistics

    • Total Members
      66,115
    • Most Online
      3,093

    Newest Member
    ElenaM
    Joined
  • Popular Now

  • Topics

  • Posts

    • Please help,  I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed. OTHER symptoms.  Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear Low iron again at blood work. Low exercise tolerance. So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months Itchiness all over body but no bumps just redness Itchiness extreme on the scalp. Petechiae small red spots all over my body this is for years now. Tried gluten free even though in my country very hard to keep up with this. Only for few days then gave up and tried again and so on. Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago. I don't know what to do. Oh and mouth ulcers. And have gas i am afraid because i can hardly control because i am extremely bloated. I am desperate. Thanks.  
    • I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.
    • Hi Monica I hope you are feeling better now.  In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid, but also too HIGH panthotenic acid supplementation. And we celiacs sometimes rely too much on our suplemments.. I am guilty too.  Unfortunately, she is not the most straightforward speaker but her work is very eye opening. Please look into it.   
    • Always carry lots of gluten-free snacks whenever you travel, on the flight and elsewhere. Sometimes you are hungry and need something right away and it's too hard to find a place to accommodate ! I always packed one suitcase of food, which also included non gluten-free snacks for my 3 boys. We are always very thrifty, lol.
    • You may want to keep a food and symptom journal. Our reactions can be delayed and that can make it hard to pinpoint what 'got' us. A journal can help you see a pattern and help us figure it out. Enjoy that pudding.
  • Upcoming Events