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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi everyone and merry Christmas,

So my family has been gluten free for about a month. New cookware, toaster, strainer, ect have been purchased. I've been really trying to avoid processed food but I think I'm missing something. My bone pain has definitely improved but now I have stomach problems I didn't have before. Is there anything that you guys missed at first that I should look at changing? I changed lotions and things like that as well.

Thanks!

Jess

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sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

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sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

If your gut is damaged, it could also be one of the common culprits like dairy, soy, corn or other grains (like certifed gluten-free oats or other "safe" grains. Fortunately these may be items you can safely reintroduce in time. Foods in the nightshade family bother some people after going gluten-free too.

Try keeping a food diary. It also helped me to go to an allergist. Good luck!

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I had zero stomach problems before I changed my diet. I was actually tested because we have fertility problems. In a lot of ways I feel worse than I did. We decided that I wouldn't do a biopsy since my labs were all high but I'm considering going back on gluten and having the biopsy. I've only been gluten free for a about a month. I've been avoiding dairy as much as possible and I'm not s huge fan of tomatoes or the other nightshade veggies so they aren't a problem.

I'm so incredibly frustrated right now.

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Your body may be de-toxing. A month is really nothing in terms of being gluten-free.. I call it the infancy stage. It can take several years for some people to feel better ... Everyone is different..You have taken out (wheat) something that your body was having to digest for probably years & years, then all of a sudden you take it away.. Body just may be having withdrawals & fighting back...

You could try some digestive enzymes ( I use Digest Gold) and probiotics... I think I would try anything before having to go back to eating gluten ! Also very clean eating could help for a few months. Cutting out processed foods & junk foods....just a plain basic diet...

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I had a lot of stomach rumbling and nausea in the first few months gluten free. Your stomach isn't used to not having to deal with gluten. I had to use Promethazine by prescription for the nausea. I decided the "baby villi" were just trying to grow back. It was a long few months and I had secondary intolerances too. I didn't think I would have the secondary intolerances, but dairy, soy, preservatives, and salicylates all bothered me in the early stages of healing. It took forever to figure it out. Finally I went grain free and that is when I started healing really really fast. Just wanted you to know the early months are rough just like the other posters have said. But hang in there because it really is all worth it.

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Thanks for all the advice glad to know this normal lol sucks to have stomach problems now but hopefully it will get better. My 9 year seems totally fine with the change so thank goodness for that.

....Jess

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It can take a while for your bodies' gut flora to get right after removing gluten. It can help to take pro-biotics and remove sugar and starches. Dairy is a fairly common problem as the tips of the villi make the lactase enzyme that breaks down the lactose sugar in cow dairy. So it can help to go off dairy for a few months and see if that improves things. The villi can heal/regrow though and then they can make the lactase enzyme again and the dairy may not bother you then.

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    • i ended up with dairy intolerance over 10 years ago, and celiac over 4 years ago, then this year got ulcerative colitis diagnosis.

      Dairy issues are caused by the fact the enzymes to digest it are produced by the tips of your villi, these are damaged first and most by the disease and you end up with dairy intolerance. Some people can add it back after a few years of healing. Other allergies and intolerance issues will also develop the longer your on gluten.....it will really just shorten the list more, as damage ramps up, digestive issues arise, and your body starts confusing other foods as a culprit and developing allergies.

      Your UC complicates things and is honestly going to make you much madder then the Celiac as per its flare ups. UC common triggers are gluten, soy, dairy, and in some cases like mine it is triggered by carbs and sugars like glucose and fructose.....yeah I had to go grain free and change to a nut, seed, leafy low carb veggies and egg white diet.
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      Keep a food diary to keep track of what you eat and any other problems, many of us have other food intolerance and allergies crop up. Also make sure your getting a little bit of everything nutrient wise.

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      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
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