• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Debbie48

Anyone Have Hand Tremors

Rate this topic

Recommended Posts

Does anyone else have hand tremors? Shaky/jerky fingers?

I've had so many strange symptoms for the past 7 months and they're only getting worse. I'm trying to figure out what is going on, but doctors don't have a clue.

When my blood work came back positive on the antigliadin antibodies a few weeks ago, I was hopeful that this might be the cause. The shaky fingers, almost like Parkinson's Disease seems so strange for celiac. Is it? Does anyone else have this?

I continue to do research to try to figure out what's going on. I have muscle cramping in my upper arms. The lower part of my body has more numbness and tingling than anything else.

Yesterday, I felt like I had a slightly better day. This morning already has been horrible, especially the shaking and arms cramps.

I made sausage and sourkraut last night. I looked up about the Hillshire Farms sausage and it said it was gluten free. What about Franks quality Kraut? Anyone know about that? I assumed it was gluten free, but I so new to reading labels.

Ingredients of the kraut:

cabbage, water, benzoate of soda, and sodium metabisulfite added as preservatives. Was it the preservatives?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


There isn't any gluten in the kraut, could just be a coincidence?

I have a book here called "Recognizing Celiac Disease

signs, symptoms, associated disorders & complications"

I recommend this book very highly.

In it, you can look up any symptom and it tells which vitamin/mineral you're low on and tells which foods contain it. Or you can get a gluten-free supplement.

For tremors/neuromuscular disturbances it says the culprit is low magnesium and/or phosphorus. For now it might be best to take a supplement?

The numbness/tingling can be low B12. You can get sublingual B12(you place it under your tongue and it's absorbed better).

If you have damage in your intestine it's not absorbing the nutrients from your food like it should.

Share this post


Link to post
Share on other sites

Yep, I have shaky fingers. They shake left to right not up and down. It's especially bad if I try to do the "Spock" move.

It started with my left hand - thumb actually. Then I went gluten-free and it almost disappeared. Then it came back. Now it's gone again, but my hands hurt like someone slammed an encyclopedia down in them. I'm also in the middle of an allergy attack/cold and lots of muscles ache and my nose is so stopped up I can't even make a Neti Pot work...

I wasn't low in B's but am low in D and iron. If I am super-strict about taking my supplaments I think lots of things improve. I also think right now I am dealing with a glutening (ate out a lot during the holiday and I think it accumulated).

It's a mess.

My ND says its neuro damage from the Celiac but I think I want to look into it more. I'm wondering RA.

Share this post


Link to post
Share on other sites

My hands shook so bad before diagnosis that doctors thought I was hiding alcoholism. I wasn't. Between the shaking and the severe arthritis it made it hard to do anything. Shaking and the arthritis both resolved gluten free. It is amazing how many different parts of the body can be impacted by this disease.

Share this post


Link to post
Share on other sites

Yes, and as long as I take extra magnesium and potassium I do fine. If I back off they start again. Also, blame some of my stiffness to lack of magnesium especially my back. I had terrible stiffness in my back and neck and did everything to get it to move and then one day realized I had backed off my magnesium, upped it again and it went away. Another supplement I have added to help all my muscles is manganese. I did some reading on it and it is very good for the body.

Share this post


Link to post
Share on other sites
Ads by Google:


I don't know if I have celiac disease. I was gluten-free for a year and now am doing a gluten challenge so I can get tested.

Anyway, I wanted to add that I have shaky hands. It got much better and barely noticeable when I was gluten-free (and on GAPS), but came back a couple weeks into my gluten challenge. My partner noticed it the other day, so I know it's not just me imagining things.

My hands also stopped being able to make a fist in the morning and I have some mild joint pains in my hands and toes, plus bone pain in my shins below my knees. I also have persistent tingling in my face and my legs fall asleep a lot, and I wake up with paresthesia in weird places all over my body. These (and many other symptoms) are not super extreme for me, I'm very functional still. However, they went away on GAPS/gluten-free and are back now that I am doing the challenge. I've also started to get really bad muscle cramps in weird places.

My son had bone and joint problems and pain and muscle cramps, (in addition to a whole lot of other symptoms). In fact this landed him in emergency surgery and is the reason we decided to try a gluten-free diet. It set us on this road.

Share this post


Link to post
Share on other sites

I had shaky hands. I felt like I could not get them to do what I wanted. I could not lift things, open things, or carry things while very ill from Un- Dxed Celiac. I shook all over actually--legs, too.

My hands hurt so bad, I cried. Yes, I have osteoarthritis, but the pain and shakiness made no sense. I have body -wide muscle/joint/bone pain and nerve damage and major loss of muscle mass, but it is slowly resolving and I hope for the best.

My hands no longer shake and my hands are increasingly stronger each month I am off gluten.

Hang in there--you're just beginning to heal. It will get better. :)

Share this post


Link to post
Share on other sites

I had the shaky hands too and legs as well. Sometimes I thought they were going to give out on me. Much better now. I can reach for things with the trembling. It made me feel so feeble!

There is a typo here....I meant to say that "I can reach for things without the trembling now".....sorry about that.

Share this post


Link to post
Share on other sites

I have a tremor, which was first said to be from the temporary hyperthyroidism I got after having my son but that is now back to normal and my hands are still shakey. I just found out that my entire celiac panel was positive, but I have not gone gluten free yet. ( waiting for endoscopy) So it could be a symptom?

Share this post


Link to post
Share on other sites

i had the shaky hands as well. gone. one more thing i can check off the list of things i thought were something else (that i was going to die of.) i am alot less spastic, also, as in i can catch that pencil rolling off the table or that jar of stuff falling out of the fridger.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,930
    • Total Posts
      943,574
  • Member Statistics

    • Total Members
      67,216
    • Most Online
      3,093

    Newest Member
    Donna0822
    Joined
  • Popular Now

  • Topics

  • Posts

    • Holy cow! You people are all angels! I have been suffering unbearably with these hot, itchy, and painful bumps on my scalp for a year now. Two doctors had no idea what it was, so I was sent to see a "dermatologist." To my utter shock, he told me I WAS DIRTY! HE TOLD ME TO WASH MY HAIR EVERY DAY with a shampoo called Nizoral, that it would take the itch away. He also prescribed a Vaseline based salve with a steroid in it. Guess what? It did nothing nor did the shampoo, and the more I washed my hair, the worse it gets. It's like torture, and I just can't stop scratching holes into my scalp. Then they scab over, then itch again. I was almost ready to shave my head, until I found this forum. I knew nothing about celiac disease, sensitivity to gluten... I knew nothing. Just so happened that my daughter found a paper talking about celiac during her visit to her GI yesterday. She brought it home for me, and demanded that I read it!  WHAM- a light come on, and I said to her... That IS what I have. I am going to my GP tomorrow to demand that I be tested for ciliac. I am rather terrified, as I am already a type 1 diabetic and have been on insulin for 52 years! I was blaming my diabetes the whole time. I have had a lower left leg amputation, and the last thing I need is to start getting this ungodly rash on my stump!!! Thank you everyone for all of the useful information you have provided in this blog. Maybe I'm not going to die after all! 😉
    • The University of Chicago recommends re-testing 3 to six months after going gluten free and then annually.  Most GIs wisely wait because although you can theoretically heal that fast, it takes TIME to master the gluten free diet.  It can take up to a year or longer for antibodies to come down.  As someone who has more than one autoimmune issue like myself (and only a DGP IgA that has ever been elevated), I think that impacts healing  and how quickly antibodies come down.   My recent endoscopy (5 years post diagnosis) revealed a healed small intestine, yet my DGP IgA was still at 80 (which was over 200 last April when I was somehow exposed to gluten).   Hang in there!  Wait six more months to get retested.  Look for other signs of healing (like anemia resolving, improve gut issues).  
    • Sounds great, one of my dreams is to open a grain free/gluten free food truck.......stone and mortar places would not do well here, but a mobile one able to cater....LOL dream I know, fundraiser has flopped and been running for a year. Hell I had the quotes up, the whole sale contracts setup, the business model and plan. I even tried to get loans, and business partners.....all flopped.
    • Just opened in Cincinnati, Oh: Ma and Pa's Gluten Free Cafe. Dedicated gluten-free restaurant. I had the pizza hoagie and onion rings last night. I forgot just how oily onion rings were. They sat in my stomach like concrete all night long but tasted great. Next time I'm getting the pizza or pulled pork with slaw and fries.  
    • Nope, had the flu and this has happened before when I ate the chili. JMG, I read the deadspin article. It's pretty funny. First, at least we're not bull testicles(Montana), and second, Skyline is the only one claiming to be gluten-free besides Hormel(sucks) and Amy's(sucks) that is Cincinnati style. There are many other local chili's but none are gluten-free. Gold Star is good but they say they're shredded cheese isn't even gluten-free. Like I said, Cincinnati style is the best. It's supposed to have roots from the Mediterranean area. Gold Star is ran by Syrian family, there is one or two others that are ran by Greeks. I kinda agree with the article when it comes to Skyline but I can walk in a store and buy it in a can. I started to thaw so meat yesterday to give it a go but am out of Cumin. No chili today
  • Upcoming Events