Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Newbie..:)


Scotslass

Recommended Posts

Scotslass Newbie

Hello folks..I'm new here.. I have had coelicas for 9 years and I live in Scotland.. Come say hi

:unsure:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Hiya!

I live in frigid northern Canada but have been to your wonderful country several times - I LOVE Scotland. Navigator is from Scotland - I'm sure you will be meeting her. In what area do you live?

My celiac diagnosis was officially made ten months ago (bloodwork and biopsies) so I have been strictly gluten free for that time.

Link to comment
Share on other sites
Scotslass Newbie

Hiya Love2travel.. Thanks for replying.. I live just outside Edinburgh.

Coeliacs sucks eh... :( But hey ho got to get on with it.. I'm fine with it now. I call myself the dinner guest from hell and get really annoyed if people think I have an allergy or a food fad.. I go off on a rant about what coeliacs is and what problems it can cause..

I've never been to Canada but my boss has he loves it ..

Link to comment
Share on other sites
love2travel Mentor

Hiya Love2travel.. Thanks for replying.. I live just outside Edinburgh.

Coeliacs sucks eh... :( But hey ho got to get on with it.. I'm fine with it now. I call myself the dinner guest from hell and get really annoyed if people think I have an allergy or a food fad.. I go off on a rant about what coeliacs is and what problems it can cause..

I've never been to Canada but my boss has he loves it ..

Edinburgh and area is gorgeous! Lucky you. My husband and I bought a house in Croatia and go there at least six weeks a year. Next trip May 3.

Parts of Canada are stunning. Unfortunately I live many hours from the Rockies smack dab in the prairies where it is quite dull and dreary as there literally is nothing to see. One of the reasons we love to travel!

Celiac does suck but thankfully my other passions are cooking and baking so at home it is easy. My husband does not eat gluten in the house so our home is a safe zone. :) It is a different story being invited to events where I cannot eat. When I was diagnosed I was shocked because I thought I was asymptomatic and the only reason I was tested is because a sister of mine is gluten intolerant. As I teach cooking classes I went into denial for a month and was angry because I didn't feel sick eating gluten so why should I stop? However, now I know better and recognize things I did have and did not pay attention to at the time.

Link to comment
Share on other sites
mushroom Proficient

How-dee, Scotslass, as they say in the deep south, which I am not from unless you consider South Island of New Zealand "deep". Certainly getting pretty deep toward the Southern Ocean.although still classified as Pacific. Certainly not Tahiti's south pacific, however :D

Link to comment
Share on other sites
Scotslass Newbie

wow... gotta love the internet..I love that I am now chatting to someone from Canada and someone from New Zealand..Brilliant

Thank you for the welcome

Love to travel... Croatia sounds lovely I have heard many good things about it. How nice that you can visit there regularly.. I love to travel too but dont get the opportunity as much as I'd like ..I was in Turkey a few months ago and I always head up North (of Scotland) every year with my 5 girlfriends..

I also love the Greek islands and I would love to visit New Zealand one day..

A little more information..I am a nurse, I work full time and am a single parent to a teenage son who , as far as I know, doesn't have coeliacs but he does have eczema which flares up every now and then . It makes him so self conscious.:(

Link to comment
Share on other sites
love2travel Mentor

wow... gotta love the internet..I love that I am now chatting to someone from Canada and someone from New Zealand..Brilliant

Thank you for the welcome

Love to travel... Croatia sounds lovely I have heard many good things about it. How nice that you can visit there regularly.. I love to travel too but dont get the opportunity as much as I'd like ..I was in Turkey a few months ago and I always head up North (of Scotland) every year with my 5 girlfriends..

I also love the Greek islands and I would love to visit New Zealand one day..

A little more information..I am a nurse, I work full time and am a single parent to a teenage son who , as far as I know, doesn't have coeliacs but he does have eczema which flares up every now and then . It makes him so self conscious.:(

Croatia is absolutely stunning and so down to earth. People are so genuine and sincere which is vastly different from here.

We are planning to go to Turkey because of all the ancient history.

One of my sisters is a nurse and her first job was in Glasgow! She and her husband (also a nurse) moved there for 7 or 8 months to work for experience and travel. They LOVED Scotland so much - always did day trips to see castles and such. So, while they were living there I went there and fell in love as well. That trip got me hooked on travel and now we go to Europe at least twice a year.

Aside from teaching cooking classes I am a professional recipe tester for a couple of places in the U.S. It is so interesting! Other than that I am a homemaker. My background is Human Resources. My husband and I have no children (I had miscarriages which I now attribute to celiac).

Oh, that eczema can be cruel, can't it? I can see how your son would be self conscious. My eczema was so bad as a kid that I had to go to the hospital regularly to get my arms wrapped in gauze. That and the fact that I was in school in the late 70s and 80s, wearing bright peach gabardine pants and matching top didn't help! :lol:

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



navigator Apprentice

Welcome Scotslass. I live in Lanark so not too far from you. I was only diagnosed last May so you're way ahead of me in the coeliac lifestyle! I made my first gluten-free loaf today and it wasn't too bad for a first attempt and better than any that I've bought. I guess it'll all be second nature to you now. Any restaurant recommendations for the next time we're in Edinburgh? We had an overnight there on Tuesday - that wind was biting! :D

P.S. - do you know of a good gluten free haggis supplier?

Link to comment
Share on other sites
Scotslass Newbie

Love 2 travel... What a small world..Mind you us nurses get everywhere .. :blink:

Navigator.. Thank you for the welcome. Yes Edinburgh winds can be fierce but we don't get as much snow or rain as tehy do out west.

I got to a fab butcher on Broughton Street in Edinburgh called Crombies. They have a whole range of gluten free sausages and I'm sure they do haggis as well. Might be worth a google.. :P

I manage my diet quite well but I do call myself 'the dinner guest from hell' .. But my friends and family are all used to my 'disability (as my ex called it) by now..

Link to comment
Share on other sites
deltron80 Rookie

Welcome to the forums!!

Whit's fur ye'll no go by ye! ;)

Link to comment
Share on other sites
frieze Community Regular

another nurse here. had a ggmother macnish, does that count? lol

looking forward to being in the UK around the Olympic time....hope to get "up" your way.

Link to comment
Share on other sites
Bubba's Mom Enthusiast

Welcome to the forums! You've had a long time to adjust to a gluten-free life style. Maybe we can pick your brai....I mean, maybe we can share ideas on how to navigate social functions? ;)

Deltron..I just love it when you speak French. :D

Link to comment
Share on other sites
AVR1962 Collaborator

Hello, been to Eidenburgh and had a wonderful time. I live in Germany myself.....about done with the rain here this winter but thankfully so far it has been quite mild as far as temps are concerned. Hang tight, you'll get the diet down, it just takes a buit and once you've got it, it won't seem to bad. Being off glutens makes a big difference!

Link to comment
Share on other sites
glutenized Newbie

Hello folks..I'm new here.. I have had coelicas for 9 years and I live in Scotland.. Come say hi

:unsure:

Hello, I'm new to this forum also. My wife has recently been diagnosed with Celiac and we are here to learn more and also hear about some great gluten free recipes!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...