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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Going To The Doctor...
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5 posts in this topic

Hi friends. I'm going to a new doctor to get a second opinion. I've been gluten free almost 5 months and am still experiencing gastrointestinal symptoms on a very strict gluten free diet. Some symptoms include extremely fatigued, rapid and irregular BM's and flatulence. This stinks. I'm grateful for any words of wisdom. Thank you.

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Have you been tested for dairy? soy? Corn?

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Have you been tested for dairy? soy? Corn?

No, ma'am, I haven't. I've been off of dairy, too. I have wondered if it could be corn or eggs...not sure.

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For the fatigue; have you had your iron and ferritin checked? How about your thyroid? Vitamin D? All of these can contribute/cause extreme fatigue.

As for the other symptoms things to consider: gallbladder problems, other food intolerences, SIBO, yeast, possible CC? Just food for thought.

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Mamaw is right--other allergens could be additional culprits.

You should also look into possible additional sources of being trace glutened too. I had to stop using my oven since the self cleaning cycle did not work. I bought a largish dedicated toaster oven to replace it. I also had to stop using lip balm (I use petroleum jelly), change my lipstick, and change out all my soaps and lotions, including what I use to wash my floor with and dishes. I also had to start washing my hands a lot before putting them to my face since one can get trace gluten from shaking people's hands as well as from doorknobs etc. etc.

Finally, after much time, I discovered I am also salicylate sensitive. This is a huge category since salicylates are in a lot of fruits and vegetables as well as nuts, seeds and herbs (including spices). Much like aspirin, it protects the plants from the elements. It can mess with a person's intestines as well as the nervous system, liver and skin. It too damages the villi in the intestines (i.e., besides the gluten). Corn and coconut by the way are high in salicylates, whereas brown rice is safe. Am hoping you don't have this. Though if you do have this condition it is far better to know about it than not. If you decide to investigate this possibility, its best to drink spring water since filtered water usually filters through coconut based charcoal.

Might be best to keep a food diary and note how you feel before and after you eat. Taking your pulse before and after and then a couple of hours after you eat can also give you some good clues. Going on a simplified basic diet can help initially to make your determinations less complicated.

Go luck in your detective work!

Bea

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