• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Get Worse At 5 Mo. Gluten Free?
0

6 posts in this topic

Recommended Posts

saintmaybe    39

I've been five months gluten free, and it was all going really well. Adjusting to the diet, getting healthier, getting my energy back.

All of a sudden, I've developed two new food sensitivities in two weeks. Corn, which is confirmed, makes me as sick as if I've gotten a huge dose of gluten. Soy, which I haven't completely nailed down yet, seems to be a new one, because I was eating stuff with soy last week. Now this week, I feel like I've been hit by a truck, and those are the only things I can isolate as repeatable causes.

I know it's normal to develop more sensitivities as time goes on, and I know it's normal to get more sensitive to gluten itself. My question is around what time in your recovery did your extra food intolerances start showing up?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Aly1    23

For me it was at about the 3 month mark...I'm at 4 months and still in the middle of dealing with it... :0P

Share this post


Link to post
Share on other sites
UKGail    18

I noticed worsening sensitivity after 3 months too. For me, I think it is mainly increased sensitivity rather than anything else (I am still dairy and oat free), but I am not ruling out other issues. Have gone back to diet basics to try to sort it out.

Share this post


Link to post
Share on other sites
abaker521    1

Wow.. it's 5 months exactly for me as well and I'm right where you are! I was doing well.. then all the sudden felt like I relapsed. I just started cutting out dairy so we'll see how that goes, but I'm so frustrated (actually scared more than anything). I read that some people have salicylate intolerance which absolutely terrifies me since that includes all my favorite foods. I'm seeing my primary doctor tomorrow so I guess we'll see what he says. I'm trying to eat as plain as possible (although I have yet to give up my morning coffee.. which I buy organic and grind at home). Today I just had some dry rice chex mix and a green smoothie (made with organic spinach, fresh blueberries, assorted frozen fruit and organic almond butter). We'll see how I feel later! My biggest issue is just terrible bloating, gas, and of course the 'big D'.. I've also heard SIBO could be a culprit. :(

Share this post


Link to post
Share on other sites

I was great til 5 1/2 months.

I honestly think I was glutened, though - one big one. Then several small ones (eating out).

I did discover taking Claritin (half dose) helped get rid of some symptoms I was unsure were gluten or allergies. My allergies had been great gluten-free, though, til that point. I wonder if getting glutened triggered them?

I wonder if at around 5 months we start getting comfortable and adding in more potential cc or allergens? I know I did. I got braver (and dumber, apparently).

I also discovered my hubby's snoring is interfering with my sleep (he's on an out of town trip and guess what - im sleeping and my body feels sooo much better).

Share this post


Link to post
Share on other sites
Ads by Google:


UKGail    18

Prickly, I think you are sadly probably right about getting complacent (or dumb). I started enjoying myself eating more gluten free baked goods and started slowly going downhill again. Then I got dumb and went to the bagel shop to get a toasted bagel for my daughter. Waiting in the bagel shop for 5 minutes got me good. I was ill for days, not well for a further week, and my digestion still hasn't got back to where it had been before I got adventurous. Dumb is very a good word for it!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,683
  • Member Statistics

    • Total Members
      65,843
    • Most Online
      3,093

    Newest Member
    SherriLynn
    Joined
  • Popular Now

  • Topics

  • Posts

    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. If I ever get glutened by something then I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
  • Upcoming Events