• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Critical Replies
0

42 posts in this topic

You people!!! :angry: :angry: :angry: :angry:

If you were to bother to educate yourselves and read all the science I have read but can't be bothered to look up right now, you'd realize that NONE of your B12 remedies will work UNLESS you expose the tablets to the full moon as close to the spring equinox as possible AND you can only purchase them from the site that charges you twice as much, but guarantees that they've been chanted over to remove residual evil from the manufacturing process (touching metal and all that).

No wonder none of you are getting any better. <_<

I thought there was a goat sacrifice involved..... :blink:

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else :lol:

0

Share this post


Link to post
Share on other sites

I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else :lol:

Yes Beebs, it was mommy forums I was referring to in my earlier post! Hormones...!

0

Share this post


Link to post
Share on other sites

The worst hey? I ended up getting so stressed on one I had to leave because it was making me anxious!!! haha~

0

Share this post


Link to post
Share on other sites

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D

I tried that. My boobs got bigger but I was still feeling lousy.

1

Share this post


Link to post
Share on other sites
Ads by Google:


I think people are people, sometimes people are grumpy, sometimes they take things the wrong way etc. I'm not sure there is a really nice way of saying someone is wrong? Obviously they think they are right. and most people get defensive when they are called into questions I think. I just leave it - even if someone is glaringly wrong about something I'll let others say something because I can't be bothered arguing over things. Having said that - this is by far one of the the nicest forums I have ever been on. You want to see mean, bitchy and critical? Log onto mothers forums - I swear - they are something else :lol:

Problem with not saying anything is that everyone ends up thinking the can't lick envelopes or drink tea because of imaginary gluten! :lol: The Internet is a very weird place.

Little do they know that vitamin B12 manufactured during a full moon that has been put in the trunk of a hollow oak tree for six months and then homeopathically treated with the color blue would let them lick envelopes without fear. ;)

1

Share this post


Link to post
Share on other sites

If it was my reaction to a 15-year old review article that set this off (which I suspected from the moment I saw the post), you might notice I apologized in the thread.

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D

My husband has volunteered to do this for me. What a guy! :rolleyes:

1

Share this post


Link to post
Share on other sites

I don't think a single forum exists out there with *no* drama - and if it does, it only has a single member. :lol: I run a forum, I get how difficult it can be to maintain the peace. I think this one has seemed quite nice and welcoming thus far, but I'm used to boards full of catty bored women. :P People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice. :)

2

Share this post


Link to post
Share on other sites

Little do they know that vitamin B12 manufactured during a full moon that has been put in the trunk of a hollow oak tree for six months and then homeopathically treated with the color blue would let them lick envelopes without fear. ;)

OK guys! I want to see some valid research on this B12 stuff! Please include your pics of aliens or the Yeti. :P

1

Share this post


Link to post
Share on other sites

When I took a sublingual B12 ( it must not have had the full moon Rx) an alien took ahold of my body and threatened to feed me to the Yeti. I pleaded and said "no, no, not the Yeti," and he said "Oh, all right, I'll just give you a face full of acne". Do you think it was a glutenized alien that he was able to summon forth acne like that? I'm sorry, I have no pics for documentation, either of the alien or the acne :P and fortunately didn't get as far as the Yeti.

2

Share this post


Link to post
Share on other sites

Staying on Topic....with respect to the OP:

If I didn't know better, I would say there was a full moon rising in these recent days. :unsure:

I used to make fly by pass and post a response to a questions when I checked my computer. Now, I have to think, analyze and think again, to insure it's dissection won't be too painful. And yet, I still don't get it right. Now that's not right, I'm sorry to say. :huh: It saddens me, terribly.

Sometimes words expressed, are hiding the brokenness we have all felt at times in our lives. We should respect that more when we choose to respond and lighten up a bit. IMHO.

2

Share this post


Link to post
Share on other sites

People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice. :)

Well said.

0

Share this post


Link to post
Share on other sites

I don't think a single forum exists out there with *no* drama - and if it does, it only has a single member. :lol: I run a forum, I get how difficult it can be to maintain the peace. I think this one has seemed quite nice and welcoming thus far, but I'm used to boards full of catty bored women. :P People need to do their best to type as though they were speaking to one face to face... beyond that? Taking the good and leaving the bad is my best advice. :)

:lol: :lol: catty bored women :lol: :lol:

sounds like the drivel they call "daytime TV"

Hurrah!! Another voice of reason for the fold! Welcome, kiddo! ;)

1

Share this post


Link to post
Share on other sites

Now, I have to think, analyze and think again, to insure it's dissection won't be too painful. And yet, I still don't get it right. Now that's not right, I'm sorry to say. :huh: It saddens me, terribly.

Sometimes words expressed, are hiding the brokenness we have all felt at times in our lives. We should respect that more when we choose to respond and lighten up a bit. IMHO.

0

Share this post


Link to post
Share on other sites

:lol: :lol: catty bored women :lol: :lol:

sounds like the drivel they call "daytime TV"

Hurrah!! Another voice of reason for the fold! Welcome, kiddo! ;)

haha! Yes, so true. The internet has allowed a new world to open up - those daytime tv shows have lost some of their viewership to things like mommy forums and scrapbooking message boards. :D

Thanks! Glad to be here. ;)

0

Share this post


Link to post
Share on other sites

Glad to be here. ;)

Glad to have you, Melissa.

1

Share this post


Link to post
Share on other sites

One other point I forgot to make: The whole thing about backing every little thing up with official research. Research in the area of GI is really far behind what many of us on here already know. If we only followed published research, then those of us with NCGI would not have "existed" before 2009, and largely still don't if you look at the medical community at large. So while I always appreciate having research to back things up, for me I think there is a grayer area where people's personal experience is really valuable. If all I wanted was PubMed docs I could get that elsewhere. What I am here for is living breathing individual experiences that fill in the blanks where current research is lacking. Official research is icing for me, not a requirement...and if someone tells me that slipping b12 tabs into my bra each morning will give me a boost, I'll be sure to research it myself before proceeding! :)

I sooooo agreee!!!! BRAVO!

Also....You know GUYS....theres allways the negitive button. I overstepped once when I was first diagnosed...but the moderators sure put me if my place! I was sooo offended by what someone had done that I said something...and was told that it was a miss understanding.But being still glutened and irritable and very emotoonal ...I remember it felt like such a harsh slap in the face ..especialy that (-) mark glaring at me!

I felt so hurt (the gluten again) I allmost didn't come back! But I realized I was being over emotional and appologized to the poster and the board in general!I remembered feeling like EVERYONE was AGAINST me! It was Just me though....noone else even cared! It's easy to get to emotoanal...selfcentered..and whatnot when your sick...it's part of our disease...we have embalances...no one day is the same! and we should allways take that into acount..you never know where people are mentaly when they write things...they probably have no IDEA how there coming off! Look at KARANG...LOL she comes off harsh sometimes ..but extreamly caring and sweet at other times...once I got to know her better...I realized she just has a very sharp wit(Dry sence of hummor)

But is actually a very nice person!

But like I said...Its easy to take offense (and misspell..LOL)...But if your REALLY ERKED...USE THE NEGITIVE BUTTON!!! :ph34r:B)

( p.s. Heart you KARANG...don't take this the wrong way...your just a good examle because you come across harsh sometimes..LOL..and your not the ONLY moderater either...but once you get to know a persons personality better, it's not so harsh!) :D:D:D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,784
    • Total Posts
      932,407
  • Member Statistics

    • Total Members
      64,262
    • Most Online
      3,093

    Newest Member
    plimpyanp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello and welcome I'd just echo CyclingLady - do you need to put yourself through this? There are lots of good reasons for pursuing a diagnosis but amongst the strongest are helping you to 'keep honest' on the diet or ensuring that your not denying yourselves a lot of foods for good reason. Neither of these apply to you and so I'd have to ask what you have to gain by putting yourself through it?  Oh and: Me too, but every so often I fall of the wagon into a gluten free cheesecake or similar Best of luck!
    • My own bugbear is that in dismissing the fad diet journalists will typically reference Celiac but will often say that only Celiac patients should be following the gluten free diet. Whatever the consensus medical opinion of NCGS, it's a fact that there are many people who are not diagnosed Celiac but who have been advised by their doctors to follow a gluten free diet. That distinction is typically too subtle for such articles and they therefore help to support the idea amongst the wider populace that if you're not celiac you can eat gluten and if you're avoiding it your either deluded, a chronic attention seeker or jumping on a bandwagon. A reductive and potentially harmful generalisation. 
    • Hello,  Celiac Disease and alcohol consumption cause malabsorption that can lead to vitamin deficiencies. Nutrition has a part to play in connective tissue disorders like arthritis, Sjorgren's, Ehlers-Danlos, and polychondritis.  Here's an article about EDS and nutritional therapy. http://www.chronicpainpartners.com/nutritional-therapeutic-strategy-for-ehlers-danlos-syndrome/  Vitamin D is really important in controlling inflammation.   https://www.ncbi.nlm.nih.gov/pubmed/23830380 You might consider checking for vitamin deficiencies at your next doctor's appointment.   You might want to look into a low histamine diet and mast cell activation syndrome.  I found going on the Autoimmune Immune Paleo diet, a low histamine diet, and a low sulfite diet simultaneously helpful.   The low histamine diet doesn't allow anything fermented. If your reaction to the fermented cabbage is "ugh," it's your body telling you not to eat it.   Cabbage, fish oil, and wine are high in Sulfites.  Metformin is a sulfa drug.  Your body might be inflamed because of a Sulfites hypersensitivity that may occur with Celiac Disease.   These are things I found helpful.  It took several months to figure out what works for me.  I'm doing much better now.  Like CyclingLady, I "eat to my meter" and don't take medication.  I hope this helps us on our journey to wellness.
    • Well first things first, I always read your posts with interest, you have gone the extra mile for answers, put the intellectual work in and crucially kept a rational and grounded perspective throughout and if anyone deserves them you do.  Sadly of course I don't have any,  so I'll simply send my sincere best wishes across the Atlantic.  I really do hope you find your answer.  On this: I tested negative for celiac and my endoscopy didn't show villi blunting. I do however definitely react to gluten in all sorts of ways. So I'm in the nebulous NCGS group, a condition that most of the world seems uncertain even exists or if so questions its relation to gluten.  I wanted certainty and answers and I never really got them. I've come to accept that it's an imperfect world and this is still in medical terms an imperfectly understood area. I've had to park the question of whether I had celiac but it wasn't picked up (there were some flaws in the diagnostic process) or early onset celiac or NCGS or its really fodmaps and I'm working on a false correlation or it's NCIS, no, CSI New York, etc etc. In the end I was exhausted, sick of feeling ill and had proved to my own satisfaction that gluten was a problem and I decided to leave it at that. It's not ideal by any means, but, hey, whaddya gonna do?  There are things I know about my own condition that I can't necessarily demonstrate or have validated by a test. It is, by definition, anecdotal at best, but I'll offer it in any case. One of them would be the recovery on the gluten free diet. This was very much a matter of time. I did have some very quick responses, within a few days for instance for an improvement in brain fog, anxiety etc. Some of the weirder neuro symptoms seemed to take much longer and although the endoscopy was negative for villi damage I can't help thinking that malabsorbtion may be an explanation for the time some of these longer term issues took to resolve.  Weirdly some of those neuro symptoms, say the muscle twinges, that took a long time to resolve now seem to trigger occasionally I think in response to minute cross contamination issues. I have no idea what this means, maybe they require the least amount of gluten present to present so they were amongst the last to stop? I know just a few days ago I was noticing an errant muscle repeatedly twitching and I started thinking about the bbq I'd just risked using... None of which of course proves anything or gets you further down the road. I do think however that this: is a good idea and I'd encourage you to push that limit back from the end of summer to a date at least 6 months and perhaps longer away (I'm thinking 12). The gluten free diet is a pain in the arse but it's healthy (or it is if you make it so) and aside from a slight increase in expense it's increasingly straightforward to follow. Go gluten free, apply just the same rigour in pursuing the diet that you have in looking for answers. Do the food journal. Do the whole foods for 3 months, cross contamination procedure with pans, check toothpaste etc.  In short, proceed as if you'd had a positive celiac diagnosis and try to eliminate all doubts. For X many months, live as if gluten free isn't a choice, but a necessity.  It makes it easier believe it or not. Give the diet sufficient time and you will be running perhaps your last test by yourself, for me that was the most significant test of all.  Oh and on this: I learnt, at great personal cost in terms of the sheer misery I went through that my view of health professionals was juvenile and unhelpful. The unquestioning belief that as children we invest in doctors, nurses etc can translate into an over investment of trust to a level which would not be the case in any other comparable scenario. You go to them at your weakest moments, in search of validation, comfort, solutions etc. and if you have a bad experience the first impulse is to blame yourself or question your own experience. Well I'm way past that now. Just like any other walk of life there are good, bad and lot's of indifferent people working within. I've had some great experiences but I've also had some awful ones and indeed just a few days ago I had one so bad that for the first time in my life, I lodged a complaint. Please understand as a British person this is very unusual indeed  It was a horrendous meeting and I was treated in such an appalling way that if I related it here you may not believe me. A couple of years ago it would've destroyed me. Now I just shrugged it off, then realised that if I allowed that behaviour to pass unquestioned I'd be doing a disservice to the next person who had to suffer that kind of treatment. You've shown on here your an intelligent person with a fully justified and admirable engagement in looking for answers. If your doctors aren't picking up on that the fault lies with them. tldr **** them. Best wishes from the sunny UK  Matt  
    • I think the gripe with this sort of article is that it's not telling the right story. When you write anything, you have a choice about whose story you tell and the consequences of it.  While such articles are factual in the sense that objectively, a GFD is worse than a similar regular one, the focus of these articles undermines the struggles of those who must be gluten-free while also not really giving any information that is likely to result in changed behaviour. All this sort of article does is justify the anti-gluten-free circlejerk. I think many of the journalists here think they're on the side of people with celiac disease because they're underlining that the fad diet is dumb/pointless/harmful/whatever. While this may be true, the message the reader remembers is this: the GFD is frivolous. It doesn't matter if there's a line in the article that says something about how the GFD is a medical necessity for those with celiac disease. People don't remember the asterisk in the article. All they remember is that the GFD is for idiots.  What would be valuable and useful is discussing celiac disease - symptoms, longterm consequences etc. and how strict those with celiac disease must be with the GFD in the context of this research. This will do a better job of convincing people that the fad diet is dumb, but do so in a responsible way that doesn't undermine the real problems faced by those with celiac disease or other medical conditions. Plus, the increased awareness might make someone realize that they should get tested.
  • Upcoming Events