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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ultrasound Results. Cysts On Ovaries.
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9 posts in this topic

I just spoke with my PCP about the results of my ultrasound. She said that there is a 4cm cyst on my right ovary and another smaller one on my left. My question is has anyone ever had ovarian cysts or heard of them being related to Celiacs? My GI problems are still continuing, and getting worse. Or are they not related and I am just insane? Thank you in advance for any responses!

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Can't comment on whether ovarian cysts are related to Celiac, but I have had one before. It was suspected to have been caused by the mirena IUD. It was deemed a "simple" cyst and went away on it's own about a month after having the IUD removed. My cyst caused lower back aches, pelvic cramps, and general abdominal discomfort. This all resolved once the cyst was gone. Of course my other GI and other symptoms continue.

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I have a history of "functional" cysts -- the ones that are related to your cycle and come and go. I've had them since long before being diagnosed with Celiac Disease so have no idea if they are related. My doctors just watch them since I don't usually have any problems or symptoms, and if I have pain issues they check via ultrasound to see what is up -- they probably wouldn't do that except that I had a cyst that no one knew about and it caused torsion of one of my ovaries (OMG! that was like being hit with a sledgehammer, it literally caused me to collapse in a fetal position on the floor!) which led to emergency surgery to remove it (the cyst not the ovary.) But that is not common...and if the doctors know they are there and keep track of how they are growing (if they are growing at all) the cysts are not usually something to fret about. What does your doctor want to do about it?

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I've been wondering this myself!

I'm not diagnosed, but pretty sure I have a problem with gluten. About a month ago, I went for a CT scan and was told that I have a 2.7cm cyst on my left ovary. My ultrasound to check up on it isn't for another month.

I have no idea if this is related to the GI issues I've been experiencing.. but it's definitely food for thought.

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Add me to the list of those with Ovarian cysts. As it was explained to me...in a woman's cycle a little cyst forms on the ovary and bursts when the hormones tell it that it's time to. That sends the egg down the tube to the uterus. Sometimes that cyst doesn't burst when it's supposed to, and continues to grow.

Sometimes they cause symptoms..and sometimes they don't.

I found I got achy pelvic pain on whichever side it was on, and sometimes migraines. When they finally did burst I'd feel a sharp cramping pain.

I had this going happen off and on for years. It was before I was DXed with Celiac. I don't know if there's a link, but I know a lot of Celiac women have fertility issues, so maybe this is what is happening with them?

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Thank you for the responses ladies. Each day I get more and more frustrated. I feel crazy somedays. My brain fog is getting so bad, I have a hard time getting through the day. I have to keep telling myself that I am much more fortunate than others who have had to suffer like this for years, and sometimes decades. I almost feel selfish for getting so frustrated just because I want to know what is wrong with me.

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I completely understand your frustration! You know yourself better than anyone..and when something isn't right you feel it and want answers. I hope you get things worked out so you feel better.

(((hugs)))

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I have a problem with cysts. I've had them in my face, breasts, and even had a giant liver cyst that had to be surgically removed (it was fused to my gallbladder, so that had to go too). Dr. said he had no idea why I had so many cysts or how one got to be the size of a soccer ball. Maybe it's related to celiac, I wasn't diagnosed at the time. So many things are related to celiac that I wouldn't be at all surprised :o

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I did not know I had had an ovarian cyst until one time I got my annual intrvaginal ultlrasound which stated "The ovarian cyst present on examination last yearis no longer present." :blink:

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