This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Sorry to hear that you had been gluten free when you were tested for celiac disease. The only way to get an official diagnosis is to do a gluten challenge under a doctor's care:
As far as recovering from a glutening? Everyone is different. It can take a week or months to recover. There is no speedy way...rest, stay hydrated....
Ok... drum roll....
Cyclinglady wins! I am just anemic - ferritin is quite bad (10ng/mL), but hemoglobin still intact. Didn't get a look at the full results (Canada problems - doctors only give you the full print-off if you harass them for it), but everything else was apparently ok. I'll be downloading the full results for my file tomorrow from the lab. Not too worried about this, as I've been much more anemic in the past and managed to recover pretty quickly via supplementation. I'll be back for a second blood test in 6 weeks to check it's worked.
So while this certainly answers the question of why I've been feeling so crappy for the last few months, the iodine thing still remains a bit of a mystery. I have been avoiding large hits of iodine for about a week and will probably keep at it for a few more to see what (if anything) happens. But for now... more steak and liver haha.
I only test positive to the DGP IgA (even in follow-up testing) and my biopsies were a Marsh Stage IIIB. Thankfully, my GI ran the entire panel! Most doctors prefer the good, but cheaper TTG IgA test, but it does not catch all celiacs like me. In fact, it often does not catch young children and really old people based on a few pretty recent studies. I would also suggest requesting the rest of the celiac panel.
Keep advocating! 😊
Just search for GIs in your area. Usually doctors post biographies. Look for someone who mentions celiac disease in his/her bio. Then call the office to confirm. Sacramento is a pretty big city. If you are not successful, there is a celiac disease center at Stanford University.