• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Have Some Questions About Celiac Disease
0

13 posts in this topic

I have some questions about Celiac Disease I am wondering if I have Celiac Disease because

1. I have Anemia

2. I have Bloating at times

3. I have Vomiting at times

4. I have Headaches at times

5. I have autism

6. I have Hypothyroidism

7. I have belching or flatulence

8. I am having off and on diarrhea

9. I am having tummy cramps

If you know the answers please message me.

I want to say thank you to anyone that responds to my question.

Channing

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I had all of the above except for #5 and I have celiac. You should go get tested.

0

Share this post


Link to post
Share on other sites

You really can't know until you get tested. All of the things you mentioned are definitely symptoms of Celiac, however they can be symptoms of Other things as well, that is why they call Celiac disease the Great Immitator.

0

Share this post


Link to post
Share on other sites

It's very possible you have celiac. You may also just be gluten intolerant. I teach students with autism and have a nephew with autism. Over the years I have seen many people with autism feel MUCH, MUCH better going off gluten even if they aren't celiac. If your tests are negative, it might be worth a shot to go off and see if it helps. Doctor's really can't explain the connection to autism and gluten, but I've seen it myself it can make a big difference.

1

Share this post


Link to post
Share on other sites

One thing that I didn't see in any of the other post. Your test wont be 100% accurate if you go on the gluten-free diet before the endoscopy. I've been diagnosed back in October, and feel so much better since starting the diet after the diagnoses.

0

Share this post


Link to post
Share on other sites
Ads by Google:


With those symptoms you definitely need to have the blood panel for celiac disease, which consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

This panel can be ordered by your primary care physician - you don't need to go to a specialist. It is important that the last test is included, because it is a control for the other tests - if you do not make normal quantities of IgA then all other IgA testing is invalid. And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

Do keep us posted and let us know if there is any other way we can help, and by the way, welcome to the board. :)

1

Share this post


Link to post
Share on other sites

And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

No other way?? You HAVE to keep eating gluten? I so want my daughter to get tested but no way would she

eat gluten!? She would have to take a week off work to even begin that. It makes her feel so bad....

0

Share this post


Link to post
Share on other sites

And do keep eating gluten until all your testing is finished, which may include an endoscopy if your blood tests are positive.

No other way?? You HAVE to keep eating gluten? I so want my daughter to get tested but no way would she

eat gluten!? She would have to take a week off work to even begin that. It makes her feel so bad....

Unfortunately it's true. This is why I consider myself non-confirmed celiac because I didn't know this until a month later and didn't care to go back on gluten and all the baggage for just a label. But that's my personal feeling in my situation. Some people psychologically need the confirmation and there is nothing wrong with that. Others may need it for school accommodations under ADA (Americans with Disabilities Act).

0

Share this post


Link to post
Share on other sites

I can't imagine going back on gluten to get a piece of paper. Going gluten-free and having some symptoms improve right away and experiencing the effects of accidentally getting glutened is proof positive for me. Is there a compelling reason to have the biopsy? A close friend was diagnosed 2 years ago from the bloodwork, which was borderline. She went gluten-free and responded very positively. About 6 or 7 mos later she had routine endoscopy for previous reflux damage to her esophagus and asked them to check her small intestine villi. There was still damage. She is in her 60s like me though and I do know it can take much longer for our guts to heal.

I guess there may be other reasons to get the biopsy even after bloodwork and symptom relief from being gluten-free, maybe insurance?

0

Share this post


Link to post
Share on other sites

I self-ddiagnosed myself as having celiac disease. Why, because I could be a text book case for Celiacs. I have almost every syptom of the disease or did have untill I quit wheat. Only been gluten free since March 19 2012, but have seen such big improvements since then. My mental capacities suffered so bad I thought I was gooing crazy. After being gluten free, all the mental confusion, mmemory loss, brain fog has gone away. Proud to be gluten free.

0

Share this post


Link to post
Share on other sites

Most of the symptoms that you have can be symptoms of celiac. I had all those except #5 and 6. But i also had so many more than that!

0

Share this post


Link to post
Share on other sites

There is a high rate of False Negatives with a lot of the tests. My mother has studied and Preached the gluten-free Lifestyle to me for years on end, I have listen but didn't want to think I had the Allergy. My mother's doctor had her go off the gluten and when her health improved the dr. diagnosed her with Celiac Disease. She when from having all (with exception of #5) the symptoms you described plus more. Now she hardly has any of them, there was extensive damage done to her kidneys, liver, stomach and Small Intestine that she still has stomach issues but as long as she doesn't slip up and eat Wheat then the stomach issues are almost nonexistent.

0

Share this post


Link to post
Share on other sites

I self-ddiagnosed myself as having celiac disease. Why, because I could be a text book case for Celiacs. I have almost every syptom of the disease or did have untill I quit wheat. Only been gluten free since March 19 2012, but have seen such big improvements since then. My mental capacities suffered so bad I thought I was gooing crazy. After being gluten free, all the mental confusion, mmemory loss, brain fog has gone away. Proud to be gluten free.

I know what you mean! I've been in the same place! I started the gluten free process in Jan...but gluten is in sooooooo much I really haven't been entirely gluten free for very long and keep accidentally eating it and finding out later...lol. Good job! Isn't it wonderful? Do you think you'll get tested? I've been a little frusturated lately because I am so sensitive to it I can't even have food cooked on the same pans :'( Which I thought was insane till I went and tried and now I feel 100% better! I feel like bubble girl! :'( So now I'm going to put myself through hell by eating gluten for my doc apt next wed...not excited but need to show them what happens... Thanx for sharing Im glad I'm not the only one!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,792
    • Total Posts
      932,467
  • Member Statistics

    • Total Members
      64,273
    • Most Online
      3,093

    Newest Member
    midwayliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.
    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
    • They rotate growing rice and oats in the same crop. I unfortunately am intolerant to oats.  I have Dysbiosis according to a stool test, which is why I am quite sensitive to gluten among other foods.  May I ask what AI you have that makes you sensitive to carbs? I have been in and out of the doctor since November 2016 with chronic pain.  Trying to figure out what is going on with my gut, it's terrifying. I tried Dynasty jasmine rice from Thailand the other day which was recommended in 2009 by someone on here and a few hours later had the worst low blood sugar attack I'd ever had in my life. I am severely underweight due to the pain and I think this happened because I ate a bit too much (I LOVE rice) upon my first introduction back into my diet.  Even so I reacted just as I do when I ingest gluten (intense anxiety/hard to breathe/fast heart beat/constipation/intense pain under my ribs) So I don't think Dynasty is a safe brand, not for me at least. I only react this way to gluten. My other food sensitivities, the symptoms pop up around 24 hours later and are completely different. 
    • Thanks so much for the information. I tried Dynasty jasmine rice which was a recommendation from a sensitive individual on here. The post I believe was from 2009 so there's plenty of time for practices to have changed. I only ask this here again for updated information as I tried the Dynasty brand and got sick. I do not have Celiac disease (according to an Endoscopy) however, I have been gluten-free for 2 years and only ate a cookie or a donut maybe a few times a month for a year and a half before I was tested. I actually like going without gluten as I get less low blood sugar attacks and rarely ever get migraines. Not to mention, before I had the Endoscopy I was fasting for 2 days with no food or drink while I received other tests while I was in the hospital. I also got a colonoscopy at the same time so I had to clear my system out completely. My doctor believes I have a non-Celiac gluten sensitivity due to my symptoms after ingesting gluten. I was diagnosed with Dysbiosis so it could be my body lacks the correct bacteria to break down gluten. I have several other food intolerances including dairy and oats which many facilities process along with rice. 
  • Upcoming Events