• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Happy (Re)Birthday To Me!
0

15 posts in this topic

Happy Birthday to me! And Happy Re-Birthday to me too! Thursday is my birthday yes, Im a Groundhog. And in two weeks, it will be five years since I was diagnosed and went gluten-free. I have to say that this is one of the best things that has ever happened to me, after the birth of my kids.

Since diagnosis, Ive adapted to eating gluten-free and manage most situations pretty well. Business meetings and travel are still a challenge, but not unmanageable. Im known for having both a KIND bar and a LARA bar in my purse at all times.

My recovery was pretty easy and a lot of problems cleared up unexpectedly. What had become daily episodes of gas, burping, indigestion, stomach gurgles/rumbles, big D, nausea - all gone. Canker sores a monthly or weekly occurrence gone except for after glutening. Arthritis in knees, hips, spine, feet

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


First--Happy Birthday!!! Second, I'm surprised to see that your life story so closely mirrors mine. I was diagnosed at 47, and my son was the same age as your own son: 15. I'm also grateful that he was spared the many years of illness, and he grew to be tall (6'4") just like your son. The charts had indicated that he was supposed to be 6'5" to 6'8", but his growth slowed tremendously when he developed celiac at age 11. He didn't disclose to me that he was feeling ill, and it wasn't until he was 15 that he began to have problems attending school because he'd become so very ill. You and I both have a lot to be grateful for. Isn't it nice to say good-bye to the arthritis and plantar fasciitis?

When asked what I miss most, I also respond with, "Croissants!" And I also miss puff pastry and phyllo--ah, just to be able to eat them one more time would make me feel so fulfilled...

I enjoyed reading your post...and wish you a most wonderful birthday!

0

Share this post


Link to post
Share on other sites

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

0

Share this post


Link to post
Share on other sites

Happy Birthday!!!!!!!

0

Share this post


Link to post
Share on other sites

Happy Birthday!!! Your post is an inspiration to so many who are struggling to regain good health!!!

It's my son's birthday today, too...another groundhog.

0

Share this post


Link to post
Share on other sites
Ads by Google:


HAPPY BIRTHDAY! :D

It's so nice to read your story of gaining good health, both for yourself and your son.

It sure sends a strong message of hope for those new to the diet, like me.

0

Share this post


Link to post
Share on other sites

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)

0

Share this post


Link to post
Share on other sites

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - http://glutenfreegoddess.blogspot.com/2006/10/coconut-carrot-cake.html

Brownies - http://glutenfreegoddess.blogspot.com/2006/01/dark-chocolate-brownies.html She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

0

Share this post


Link to post
Share on other sites

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

It's funny about the plantar faciitis...I had it so bad that I couldn't walk at times in the 3 years before diagnosis. Even wore a night-splint for 10 months straight. Special shoes, inserts, ice - no dice. Nothing helped. But then in all the excitement about celiac, it took me about a month to realize that I wasn't in pain anymore. It could be a coincidence...but it never came back!

0

Share this post


Link to post
Share on other sites

happy birthday(s)!!! it's awesome to feel so much better after so many years of being ill for no 'reason' - i was 47 when i was diagnosed, too - and my b-day is next week :) *aquarius rocks*

0

Share this post


Link to post
Share on other sites

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - http://glutenfreegoddess.blogspot.com/2006/10/coconut-carrot-cake.html

Brownies - http://glutenfreegoddess.blogspot.com/2006/01/dark-chocolate-brownies.html She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

Yay, thanks! :)

0

Share this post


Link to post
Share on other sites

Happy birthday :) this post made my day as its giving me hope! I was undiagnosed for 20 years, ecstatic to finally have an answer and feel better. But I feel like I've been more sensitive than ever, even the tiniest bit of cc and I'm down for days. Your post gives me so much hope not ro give up on myself. Thank you :)

0

Share this post


Link to post
Share on other sites

Happy Birthday from one Prof to another! :)

Thanks for sharing your inspirational story.

I am a late-in-life DXed celiac myself, but this last year of being gluten-free has been a year of slow healing and because I relentlessly pursued a DX, I feel as though, I too was re-born. I was the walking dead for 3 years. Not anymore. It will take me a while, but at least it is progress. ;)

Good for you--- and continued good health to you!

Cheers,

IH

Love the Abigail Adams quote, BTW--very true indeed!

0

Share this post


Link to post
Share on other sites

Thanks everyone! While some parts of the gluten-free diet are confounding, overall I am very happy and I'm glad if that gives others hope for the future. My big hope is that as more people get diagnosed, the food industry (especially restaurants and caterers) develop ways to accomodate us easier.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,805
    • Total Posts
      932,565
  • Member Statistics

    • Total Members
      64,298
    • Most Online
      3,093

    Newest Member
    Kategarrett
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi kelzz..........the only way you will find out if the increase is from gluten exposure is to have your doctor run the correct test.  I have said this a million times on this forum but I will say it again.....the DGP/IgA tests for reaction to gluten ingested. The tTg/IgA tests for intestinal damage and that can be elevated from other autoimmune diseases, or from ingested gluten.  So you are either being glutened in sneaky ways OR you may have another autoimmune issue going on. Sorry my answer is so late but I have been on vacation. I hope this information helps you!
    • Ok, so long story, but I'm hoping some knowledgeable folks can chime in and tell me if a) I'm not crazy for thinking this sounds a lot like celiac and not a lot like anything else and  are the tests being run the right ones? I had malabsorbtion symptoms my whole life, rashes on the inside of my elbows and knees, chronic constipation, chelisis, brittle cracking nails, my hair sheds a ton, irritation on the edges of my scalp, blistery rashes on my hands, low iron, low blood sugar, bloating, painful gas (like bring me to my knees type). I pretty much just accepted it as my normal, and when I went to get the skin issues checked out in my early 30s, I was just told it was eczema and sent away. The rashes on the insides of my elbows and knees went away when I was about 15 or so, but in my 20s I started seeing a blistery, itchy rash on my elbows occasionally. Fast forward to 2015, and I have a terrible outbreak of GI symptoms (always constipation with me, with the occasional horrible D experience sprinkled in) along with a pretty bad itchy rash on both elbows. I start researching and find that a lot of what I have experienced sounds like DH/celiac. By the time I get my referral in and appointment to the GI doc, I've decided to cut milk out of my diet. I thought back to when I had the last period of time where I had no GI symptoms, and it was when I was last deployed. The dairy in the chow hall was either expired or near it, so I lived on eggs, rice, and chicken, and hot sauce. ;p. Once I cut out milk, and I saw a pretty impressive relief of most of my symptoms. The chelisis is gone, my rash disappears, bloating is much better, gas pains are gone. I get tested for celiac- negative, lactose intolerance- negative, SIBO- positive. Two rounds of antibiotics 6 months apart and my SIBO (methane type) clears up. Basically they said I had IBS-C and my skin issues were likely unrelated. I'm pretty sure my issue with milk is casein-related, because my son has the same issues with casein, and I sure have GI issues when I drink it. (TMI... mucousy rabbit poo). So I figure most of my issues have cleared up, no active rashes, good right? Nope. Since then, I had a couple outbreaks on my elbows, but they went away fairly quickly, My scalp rash thing ebbed and flowed, and my hair still sheds a ridiculous amount. About a month ago, I had another rash outbreak on both elbows, a couple blisters on my hands... and it stayed. After a month of rash, I finally contacted my doc and said "look, this rash is active, please take a look." Just as if it sensed it, the rash started clearing, that same day. :-< By the time I saw her a week and a half later, it was gone, save for a couple scabs. So, good news is my doc disagreed with the GI doc and said it sounded auto-immune to her. I'm military, so I get what I get for referrals, labs, and doctors, but she's luckily very good and knowledgeable. She ran the following tests: Complement Panel: Awaiting results C-Reactive Protein: Awaiting results Celiac Disease Ab IgA Panel: Awaiting results Tissue Transglutaminase Ab IgA: Awaiting results
      Gliadin Ab IgA: Awaiting results Endomysial Ab IgA: Awaiting results Rheumatoid Factor: NEG Comprehensive Metabolic Panel W/eGFR: Normal with the exception of a higher than normal Urea Nitrogen/Creatinine (indicates poor kidney function or bleeding in intestines (ding ding ding) My GFR was normal, so kidneys are probably okay. ESR: 9 (normal is 0-20) Indicates inflammation  
    • I've tried 3 shampoos and a skin cream, sorry can't recall names! It can keep it under control but I want to know why it happened in the first place. I was already gluten-free, and never had it in my life beforehand. Just looking for a magic cure
    • There isn't a cure that I'm aware of. Mine is much, much better since I went gluten free but it's liable to recur, especially if I get run down. Nizoral is most effective shampoo but it contains wheat protein so take care!
    • Currently, a gluten-free diet is the only way to manage celiac disease. Can a celiac vaccine change that? One company thinks so. ImmusanT corporation has developed a therapeutic vaccine, Nexvax2, that is specifically designed to treat celiac disease. The vaccine is an adjuvant-free mix of three peptides that include immunodominant epitopes for gluten-specific CD4-positive T cells. The vaccine is designed to neutralize gluten-specific CD4-positive T cells to further antigenic stimulation. View the full article
  • Upcoming Events