This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Found this article that suggests a link between PD and the Mthfr genes (which are also associated with Celiac Disease). Taking methyl forms of B9 (methylfolate) and B12 (methylcobalamine), and B6 (P5P), makes these vitamins more usable to people with the Mthfr genes.
Celiac Disease causes malabsorption. Celiacs on a gluten free diet may develop deficiencies. (Gluten free breads and cookies are not required to be fortified with vitamins like their gluten containing counterparts.)
Perhaps adding these vitamins would be beneficial.
Hope this helps.
I'm not sure that this is the original study I looked at, but it does describe the different antibodies found circulating in the blood that is specific to DH (anti-eTG, which is analogous to anti-tTG in regular celiac disease). At any rate, it seems that they can test for it, but many labs do not have the ability to do so or doctors do not know to ask for this lab test. So I suppose if one was very interested in a diagnosis, one could go to a research centre where they would likely have the ability to test for its presence!
Welcome. You might consider staying on gluten and seeing your doctor for a celiac blood test panel. You need to be consuming gluten for several weeks prior to the blood draw otherwise the tests can be invalid. You could have celiac disease or a gluten sensitivity. The only way to know for sure is to get tested as there are over 200 symptoms attributed to celiac disease and those can overlap with other illnesses. Best to rule out celiac disease.
Celiac disease symptoms are like a chameleon -- always changing.
Yes, you can get diagnosed with biopsies prior to having a celiac (antibodies) blood panel. That what they did BEFORE the blood test was invented.
Thyroid issues are common with many who have celiac disease. It was prudent that your doctor ordered these tests. The lipase test is linked to the pancreas. Again, a poor result can be attributed to celiac disease.
So where oh where to begin. I read all and everyone's post because as a community I think it's extra special when people have others they can vent to that understand how each other are feeling. Ok enough with the gushy stuff. Down to business. I have been gluten free for almost 9 months October 4 (im counting) the relief I have felt is diarhea is gone. Another good positive symptom and sign is I'm 5'7 so at diagnosis I withered away to about 108 (very sickly all muscle was gone) I now I got weighed in at 122 today! And I'm literally eating whole foods some extra food maybe some chips here and there but I've always been a chip person. I haven't weighed 122 since I was 18 (Im 29) so that part had me excited. Except for the last few weeks my fatigue has come back with a vengeance. I don't know where it's coming from, i got my thyroid (just tsh until I see endo at end of month when she will check all thyroid hormones) and it was at 3.45 I'm not on thyroid hormone so I wonder if this is causing my fatigue and fast weight gain since I started gaining weight pretty fast (even though I needed it, it happened all at once over a month) I'm also having severe hair loss. I had my iron checked and it's all went up except my ferritin which was at 15 last week's blood test. My symptoms consist mainly of hair loss, shortness of breath, dizziness especially from sitting to standing, really bad raynauds attacks everyday all day (on feet) neck pain (severe) now new symptom started about 4 months ago the back of my shoulder bone to the elbow and clavicle bone are all hurting so so bad. I don't expect anyone to know what's wrong with me I just felt like venting. Also I was prescribed neomycin and xifaxin because a hydrogen breath test showed high methane in my test but normal level hydrogen so the actual SIBO test was negative but she was confused about the high methane and said I may benefit from the antibiotics. I still am waiting to get them from my insurance. I'm a seronegative celiac with positive biopsy. We've already gone through and rules out other scenarios for the villous blunting and IEL's. Any info would help me. I feel so weak some days. And all doctors want to say it's anxiety. I've heard that for far too long I actually went to a hematologist today because I've been freaked out the last year my wbc have been at 3.3 which my lab range is 4.5 and above to whatever the higher limit is. He told me to do a bone marrow biopsy because of the pain in my shoulder and arm and my "low wbc "which he wasn't even concerned about. Is this necessary right now or am I just spooking myself. Is it common to have low wbc. Could it be the extra methane in my breath or whatever. Any help would be great. Listen I have friends and family but they won't listen to all this. They think most of this is in my head.