• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

We Need To Start A Thread On Stupid Stuff Doctors Say!
0

Rate this topic

280 posts in this topic

Recommended Posts

That dr must be getting some kind of kickback because he tried to get him on Viagra, cholesterol meds AND diabetes meds.

Think Big Pharma controls the health care profession? <_<

I was never this jaded in my thinking until the last few years when I received the worst medical "care" possible. No help; just a shoebox full of drugs. You can't believe the stuff I was given just to pacify me. :blink:

Doctors push meds --to "symptom-treat" before they even try to think of a CAUSE for the symptoms.

Instead of having someone change their eating habits, for example, they prescribe Lipitor, GERD medicines and blood pressure meds. How about suggesting they step away from the table and get some exercise, doc??? Because that might mean less people in their waiting rooms!!

Xanax and anti-depressants are given out like M and Ms.

ARRGH....And sadly, it will never change.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My brother was very colicky as a baby, so much so that my mother decided to take him to the doctor. The doctor's advice? Don't bring him on your good carpets. :blink:

Share this post


Link to post
Share on other sites

So, after I posted my cynical thoughts about the medical profession this AM, I went to the dentist and the Newsweek magazine just fell open to THIS article (honest) and I laughed and thought, O M G! they have to see this. :rolleyes:

Here is one tidbit:

"The average time a patient has to present his concerns before

being interrupted by the doctor?

23 seconds."

<_<

oh, there more....

http://www.thedailybeast.com/newsweek/2012/04/15/why-your-doctor-has-no-time-to-see-you.html

Share this post


Link to post
Share on other sites

So, after I posted my cynical thoughts about the medical profession this AM, I went to the dentist and the Newsweek magazine just fell open to THIS article (honest) and I laughed and thought, O M G! they have to see this. :rolleyes:

Here is one tidbit:

"The average time a patient has to present his concerns before

being interrupted by the doctor?

23 seconds."

<_<

oh, there more....

http://www.thedailybeast.com/newsweek/2012/04/15/why-your-doctor-has-no-time-to-see-you.html

And that's BEFORE they walk in and ask, "So how are you?" :rolleyes:

:lol:

Share this post


Link to post
Share on other sites

The last time I read the amt. of time you had to voice your symptoms to your doc it said just under a full minute. So ever after that I made sure I was talking fast. Know what happened? Doc offered me anxiety meds & anti depressants. You can't win for losing.ohmy.gif

Share this post


Link to post
Share on other sites

That's because we are not REALLY sick, honey---we're just anxious and depressed and......wait for it......menopausal..... <_<

Share this post


Link to post
Share on other sites

Think Big Pharma controls the health care profession? <_<

I was never this jaded in my thinking until the last few years when I received the worst medical "care" possible. No help; just a shoebox full of drugs. You can't believe the stuff I was given just to pacify me. :blink:

Doctors push meds --to "symptom-treat" before they even try to think of a CAUSE for the symptoms.

Instead of having someone change their eating habits, for example, they prescribe Lipitor, GERD medicines and blood pressure meds. How about suggesting they step away from the table and get some exercise, doc??? Because that might mean less people in their waiting rooms!!

Xanax and anti-depressants are given out like M and Ms.

ARRGH....And sadly, it will never change.

I have to say..my exerience with Dr.s has not been good. They don't listen and insist on putting people on anti-depressants, no matter what their ailment is.

When I kept complaining about my many various symptoms from unDXed Celiac..they kept offering me more med to numb me down! :o

It really is like they get a kick back for some of those meds? :blink:

Share this post


Link to post
Share on other sites

Which is why I have a list of questions I have to "interview" a doctor I've been told is good before I even get into his "practice". Top of the list is, "Can you listen to a question I have without using that time to think about what you're going to say next?"

Share this post


Link to post
Share on other sites

I haven't been officially diagnosed, as my doctor believes only in celiac disease, not gluten intolerance. I can't get a proper test for either because he believes I am to large to have celiac.

His first solution - I am pregnant.

I think I would know if I was.

Even though I insisted I WASN'T, he still sent me for a pregnancy test.

The result was of course - negative!

Second solution - it's your blood pressure.

I am an 18 year old girl and have had normal blood pressure all my life.

He suggested blood pressure tablets, even though my blood pressure is perfectly fine when I get it taken at chemists and at home.

Third Solution (His current one)

Take some paracetamol.

It's all in my head, nothing to do with my stomach.

Share this post


Link to post
Share on other sites

I have to say..my exerience with Dr.s has not been good. They don't listen and insist on putting people on anti-depressants, no matter what their ailment is.

When I kept complaining about my many various symptoms from unDXed Celiac..they kept offering me more med to numb me down! :o

It really is like they get a kick back for some of those meds? :blink:

Yes they do, of a sort. Get kickbacks.

Drug reps romance them, take them out to very expensive dinners....our son's ped's wife was in a Mom's group with me and she'd let some of it slip.

They get them into these coupon things where the doc gives you a coupon with his promo code on it and the first rx is very reduced in price but of course the following aren't...and they track the promo code through the pharmacy. I don't remember exactly what the doc got for that one but I remember wanting to vomit when I figured out why he was pushing.

They don't even have to coupon it - I believe the manufacturers track sales through the pharmacies.

Ooooh yeah, pharma "buys" docs left and right.

Share this post


Link to post
Share on other sites

I haven't been officially diagnosed, as my doctor believes only in celiac disease, not gluten intolerance. I can't get a proper test for either because he believes I am to large to have celiac.

His first solution - I am pregnant.

I think I would know if I was.

Even though I insisted I WASN'T, he still sent me for a pregnancy test.

The result was of course - negative!

Second solution - it's your blood pressure.

I am an 18 year old girl and have had normal blood pressure all my life.

He suggested blood pressure tablets, even though my blood pressure is perfectly fine when I get it taken at chemists and at home.

Third Solution (His current one)

Take some paracetamol.

It's all in my head, nothing to do with my stomach.

:o Shocking! Is there a different Dr. you can see? If it were me...I wouldn't want to see this clueless Dr. for anything!

Share this post


Link to post
Share on other sites

He suggested blood pressure tablets, even though my blood pressure is perfectly fine when I get it taken at chemists and at home.

Since you have used the term "chemists" for pharmacy, are you in the UK or Ireland perhaps?? :)

Guess the US docs are not alone....

Share this post


Link to post
Share on other sites
(His current one)

Take some paracetamol.

It's all in my head, nothing to do with my stomach.

I think our doctors have gone too far with the gut–head connection... :o:unsure:

Share this post


Link to post
Share on other sites

That story is whacked.

Total insanity. A disgrace.

That poor woman.

Hope the family sued the hospital--although it would not be much comfort to them.

Share this post


Link to post
Share on other sites

Since you have used the term "chemists" for pharmacy, are you in the UK or Ireland perhaps?? :)

Guess the US docs are not alone....

Australia :)

Share this post


Link to post
Share on other sites

So this happened 10 years ago, I was in CLEVELAND CLINIC. I had a team of doctors, I don't remember maybe 6-8 doctors all in my rooms standing over me, looking at my charts, and examining me. One of them looked at my mother and asked a very simple question. "Can she Feed herself" I was sitting there drawing pictures, of my family and trying to ignore them because I was tired of being a lab rat, when I heard this question, my head snapped up to my mom just waiting on what she would do. My mother's face got all red and she looked at them, and said very simply "Ask Her yourself." They looked at each other and was like she can talk.

I dont know what they was smoken that day, but I had been on a 24 hour video surveillance since I got there. I could hook and unhook myself from the machines, they couldn't keep me in the bed. The nurses threatened to tie me to the bed. All they had to do was read my chart, to know that I was a fully functioning 16 year old.

I remember one of them turning to me and asked what I was drawing, I told them, they asked my several questions, had me to all of these coordination tests and left more confused then when they came in the room.

Share this post


Link to post
Share on other sites

Teddylab: I am 250 lbs at 5'8'' and as far as I can tell I am intolerant, possible celiac. I have yet to be able to get to see a doctor about it. My mother is Celiac and was 210lb at 5'2''. There are two different kinds of celiacs ones that cant gain any weight from eating Gluten and there are those that their body stores the gluten because it cant do anything else with it.

Share this post


Link to post
Share on other sites

My DH goes to the dr for a bad cough. He had had it for a couple weeks and it was not going away.

Dr examines him, talks to him and leaves the room. Dh calls me on the cell and says "Viagra isn't for coughs, is it??". :rolleyes: I told him to grab his cough Rx and get out of there!

That dr must be getting some kind of kickback because he tried to get him on Viagra, cholesterol meds AND diabetes meds. He does not have high cholesterol. He does not have diabetes. He doesn't need the other stuff either. At least he got his cough medicine.

originally, Viagra was used for pulmonary hypertension. Which can cause a cough.

But i am thinking this more in the same line as giving a woman AD.....

Share this post


Link to post
Share on other sites

This might be more appropriately termed Stupid stuff doctors do & stupider stuff pharmacies do.

This is a long, complicated story which I'm going to try & make as short & sweet as possible.

The players:

doc 1, doc2, NP (nurse practioner)

Mu hubs is hypothyroid & takes levothyroxine. We moved & had to find a new doc. We took him to a doc's office to get a new script for the levo. He was seen by the NP who wrote the script for a year's worth of levo. The script was signed by doc 1.

Doc 1, doc 2 & NP are apparently all co-owners of the practice. We take hubs script to CVS & get 90 day supply. When that runs out we get another fill for 90 days. This leaves 2 fills for 90 days each remaining. At some point after the 2nd fill; the parties involved have a falling out & the practice is closed. 1 day it's open, the next day it's closed. The phone is disconnected. There is no note on the door saying what happened or where any of the docs can be found or contacted. Time comes for the 3rd fill. I call in the refill & tell them we'll p/u on X day. X day comes & I go in to p/u. It's not ready. ????? 4 days have gone by -- why is it not ready? They look around & check the computer. They say we can't have the refill & someone called me to let me know. NOPE, they didn't --- I have voice mail & no one called. They say they can't do it b/c doc 2 called them & said doc 1 has a separate practice & tells CVS not to fill any more of doc 1's scripts from the old practice. CVS can't tell me how to contact doc 1 who signed the script. Also they won't or can't tell me where to reach doc 2 or the NP.

Later that day I call CVS & question again why they refuse to do the refills. This time they say it's a legal matter & won't expostulate. I make some phone calls around town & from that & the computer manage to track down doc 1 who signed the script. 4 calls back & forth to his office net me --- "Your hubs can drive 65 mi. to the new office & doc 1 will see him (of course paying AGAIN) & doc 1will write a new script". The person on the phone recommends I have the script transferred to another pharmacy for the remaining refills. And says the doc says the reason CVS won't fill the remaining is b/c they are mad at doc 1 as his patients are getting their scripts from him filled everywhere except CVS. ????????

I decide to see if another pharmacy will do it. That is a "hometown" pharmacy. The pharmacist tells me what happened with the whole thing. He says that when the falling out happened that doc 1 came after hours to the practice & cleaned everything out of the practice including all partners & employees personal possessions along with all patient records & everything; leaving an empty office. But the pharmacist says it's ridiculous for CVS not to refill the script --- the doc who wrote it is still licensed & there is no problem. so he calls CVS to get the script transferred to him. Much to his surprise CVS refuses to transfer the script to him & says, "they are no allowed to talk about it at all". By this time I am LIVID! I ask for whoever regulates pharmacies in the state b/c I'm going to call on CVS. He gives me the agency but also tells me there is a law stating that any pharmacy can refuse to fill any script at any time for any reason. And the law was put there b/c "sometimes you just get that bad feeling about a script". I will say that he is totally sympathetic to the situation & thinks CVS is acting badly.

Now, I don't know where doc 2 is but NP has a new practice & the pharmacist tells me where & the # but also says that NP won't be able to do anything about the script b/c he can't access the patient records b/c doc 1 has them in his possession & refuses to give them up.

So it all boils down to this:

A couple of docs are acting like spoiled little 5 yr. olds throwing temper tantrums & being greedy on top of it & the patients are suffering & paying the price. Furthermore CVS is acting like another 5 yr. old in refusing to fill the remaining refills on valid scripts & furthermore refusing to co-operate with other pharmacies.

Who loses?

WE DO! ph34r.gif

Share this post


Link to post
Share on other sites

Absolutly shocking! :o I'd demand to get the medical records. If doc 1 doesn't turn them over..report him.

I'd also be looking to turn CVS in for not allowing an RX to be transferred. They might not want to fill it..but surely they can't refuse to transfer to another pharmacy?

One more reason to get copies of all medical tests, etc.

Share this post


Link to post
Share on other sites

I am getting the records from doc 1. Just to put him to the trouble of doing it.

Let's just say that "I have taken care of the problem".

But the fact remains that it happened in the first place & there are lots of patients out there getting caught in this crossfire & I'm sure many of them don't know how to fix it.

Share this post


Link to post
Share on other sites

But the fact remains that it happened in the first place & there are lots of patients out there getting caught in this crossfire & I'm sure many of them don't know how to fix it.

Just a ridiculous story, honey--sorry it happened. :(

?? and people wonder why stories abound on the news of "average nice people" who can't take it anymore and snap and go all postal.......??.

  • Upvote 1

Share this post


Link to post
Share on other sites

I am getting the records from doc 1. Just to put him to the trouble of doing it.

Let's just say that "I have taken care of the problem".

But the fact remains that it happened in the first place & there are lots of patients out there getting caught in this crossfire & I'm sure many of them don't know how to fix it.

I'm so glad you've gotten some resolution.

At the first of the year we changed insurance and they make us get our RXs through their mail order business.

We had to get new RXs written rather than transfer the ones we had in place, so I had to scramble to get those and get the meds in hand for my hubby who travels for his job. One of them didn't come, and there was no mention of it, so I called them. They said our insurance wouldn't allow the RX! :angry: I made several calls. I was mad that the insurance company could deny a prescribed RX..but they could AND the mail order company didn't say why it wasn't filled. I was thinking they had a supply problem and it would be coming! The med had a warning to not stop taking it abruptly. :o I was really panicked, and scared for him. I ended up finding a generic at Walmart and have to buy it out of pocket.

Share this post


Link to post
Share on other sites

I'm so glad you've gotten some resolution.

At the first of the year we changed insurance and they make us get our RXs through their mail order business.

We had to get new RXs written rather than transfer the ones we had in place, so I had to scramble to get those and get the meds in hand for my hubby who travels for his job. One of them didn't come, and there was no mention of it, so I called them. They said our insurance wouldn't allow the RX! :angry: I made several calls. I was mad that the insurance company could deny a prescribed RX..but they could AND the mail order company didn't say why it wasn't filled. I was thinking they had a supply problem and it would be coming! The med had a warning to not stop taking it abruptly. :o I was really panicked, and scared for him. I ended up finding a generic at Walmart and have to buy it out of pocket.

WTF??????mad.gif

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,142
    • Total Posts
      939,890
  • Member Statistics

    • Total Members
      66,131
    • Most Online
      3,093

    Newest Member
    Larryx
    Joined
  • Popular Now

  • Topics

  • Posts

    • My son is 13 and we have been dealing with his unusual issues for years. By 3rd grade, he was The Hulk, breaking things, punching holes in walls and raging. He had depression, anxiety and panic attacks. His skin would have rashes or turn bright red and i didn't understand why (now i know it's salicylic acid added to conditioner, sunscreen, lotion, ect). We realized that dyes were a problem and cut those out. Little by little, we removed sulfur, sulfites, preservatives, salicylates (aspirin-we assume he will be allergic to this but he has never had it and we won't ever test it, most fruits, spices, veggies and honey), nitrates, soy sauce and many more. He lived on an all home made, special diet and he was better but not well. (We did the Feingold and Failsafe Diet but that wasn't enough). He was diagnosed with hypersensitivity to medication by 5th grade (tried anti-anxiety meds-big mistake). Consecutive doses of anything would get stuck in his body and then the real fun started, full body rash, suicidal thoughts, vomiting and my least favorite-hallucinations. He was in the ER for a fall from a tree and they gave ibuprofen and Vicodin. Within 30 minutes the rash spread up and down his whole body (including under the damn cast). The worst night of my life was trying to keep him from breaking his own cast off and talking him down from trying to hurt himself.                                                                                                                                                                                                                                                             We tested my son for everything and anything, hormones, vitamin deficiency (later found out they don't test for nearly enough to really know) and thyroid. Everything was normal but a mildly low vitamin D level. He was very unhealthy, he was sick a LOT, allergies were bad, asthma and he developed food intolerances out of nowhere. We did a gluten/dairy free diet (because his sister is gluten/dairy free) but it made no difference and his diet was already so restricted. We did a year long food journal and also found an issue with pork, apples, citrus fruit, cinnamon, ect.  I researched my kid like it was my job. We tried many vitamins and supplements and he had bad reactions to many of them. I finally found a man with several of the same gene mutations (we tested with 23andme.com) who's Dr. thought it was a PST-Pathway issue. We decided to try the protocol of vitamins, supplements and amino acids to see if it made any difference and OMG, what a difference. At this point, we didn't have a pediatrician that actually listened so I asked several doctors about the specific vitamin/minerals/amino acids and kept all the does to a child size dose.  We had always used epsom salts as a response to a reaction in something, not as a preventative measure. We now soak his feet twice a day in Epsom salt water (or in the bath), it gives him a form of sulfur that his body was missing and now he can eat anything he wants (except soy sauce but we'll gladly leave that out). He takes molybdenum everyday with magnesium/calcium and vitamin D3 (and when we stop that, panic attacks come back. Weekly he takes milk thistle (we tried L-Glycine but too much gave him terrible insomnia (like 3 days of barely any sleep) and milk thistle works just as well to keep his liver open and working it's best), B vitamins, Cod liver oil capsules with Vitamins A and D and liquid Zinc.  His personality changed on the L-Glycine in a more outgoing way but then in a manic, not himself way so that scared us. Since the supplements started (6 months ago), his anxiety and depression is gone (and it was really controlling how we lived). He would never talk to people before...he was diagnosed with selective mutism but we felt that was incorrect and he was just very shy. He never liked talking with adults. Now, there is no problem, he is not super chatty with everyone but all he adults in our family noticed immediately. He is ready to stop home schooling and start high school next year. He has become a responsible, sweet, calm and caring child. No more daily fights, no more holes in the walls, no more rage. Our daughter has anorexia and we have been very busy dealing with her behaviors and missed the daily vitamins on occasion for several days....old son comes raging back. It doesn't take too long to figure out the mistake and gets him back where he needs to be. We did some genetic testing with a neurologist who specializes in metabolic function and while he tested for some helpful issues relating to hypersensitivity to medication, I still got the impression that he thought it was a placebo effect. We have burned through many therapists, pediatricians, a neuropsychologist, a psychiatrist, a gastroenterologist and possibly this neurologist. I hate not being taken seriously because while they may not agree with my ideas, they have nothing to offer in return.   
    • Yep no fruit, juice, sugar, or grains like oatmeal. The sugars glucose, fructose etc. Are common causes of flares in some. Sugar free fiber like nuts, but butters, cocanibs seem to be great for me. Keto diet sugar free high fat, mostly over cooked to mush or blended works great for me......heck as a baker I had to invent low carb, grain free, starch free bread. Sorta lead to a god like revelation and business took off with diabetics and my bakery.
    • Gastritis was my initial diagnoses before finding out I had celiac. The pains from the gastritis were terrible. I had to wake up in the middle of the night to eat cause I felt nauseous. The Doc prescribed me omeprozole and antacids. I took the meds for about a week but I cured it mostly by not drinking and eliminated caffeine intake. Alcohol was one of the main causes for mine 
    • The UC is a whole different beast. I’ve been eliminating tons of food. Meat is definitely good to me. I can eat all the steak, chicken, and pork without problems. I agree that paleo would be great for me. I’m gonna look more into their recipes.  Have you had any problems with fruits and veggies causing flare ups? I make smoothies with mixed berries, banana, gluten free oatmeal, spinach, and a splash of juice. It seems to be a cause. Maybe it’s the high fiber? I’m not sure. That and caffeine. I’m having a hard time eliminating caffeine though  
    • Pain wise a glutening celiac gets me more central gut pain and much worse with sharpness, urge to vomit, gurgles etc. UC is more along the the outside edges of your abdomen from the sides, lower area around the belt line, and upper area right under the rib cage, and is more of a boat and pleasure pain like your intestines are huge feeling.  UC triggers alot more gas, and makes you want to lie down I get the urge to massage and press on the pressure areas as it seems to help.
      Timing wise Celiac glutening I notice within 20-60mins and main vomiting starts in 1-3hours after eating it. UC flare you get it like 4-18hours or later depending on transit time of your food. A glutening will normally result in both a celiac reaction and a later UC reaction. For me a gluten CC or consumption issue also causes neurological symptoms, this is not true for some people but for me I also have a gluten ataxia, so the anxiety, panic, fog, mind looping, numb hands, loss of coordination or straight up motor loss is definite sign for me. Others will have to keep track with a food diary to nail down there own as every person can have a slightly different reaction.

      I also find with UC I do not directly vomit, Sometimes with UC it can trigger constipation and if not remedied in 12-24 hours leads to m system backing up and vomiting. Celiac can also cause me constipation but there is a slight difference in where it seems to get stuck at first. Hard to explain but you can sort of feel it. Also I find a gluten celiac response will result in a week or more of constipation issues. Starting mid section then moving to the outside gut area and  but some people do not get these and get D instead. So this is not very reliable.

      UC flare ups for me with my damage also always have bloody stools, worse flare ups its not just streaks but clots. Red and Dark red show it is in the large intestines. If you get tar like black  and red it is either a sign it is way back in the large intestine or in the stomach or small intestine. This makes my Anemia SOO much worse. Imagine how you feel with the loss of blood coupled with inability to efficiently absorb nutrients like iron and magnesium

      Thing to recall is UC is mostly the large intestine while celiac is mostly the small, so symptoms and trying to get the feeling of where the problem is can help.  Also if you get a glutening expect to have the UC flare up right after the celiac flare up.

      NOTE it is hard for me to say still, on the exact details and clarity, it has been since june of last year that I had a major gluten consumption issue. UC I get more regular but without the direct comparison in a while my memory is a bit iffy. Just trying to recall those exact pains and feelings from that last time. Also UC seems to wax and wane in and out while almost always being present for months in the background you just feel a bit off in the gut. SO many triggers, I felt that for years I swear til I went to this keto diet and dropped all fruit, sugar, carbs, and grains. Could have been the anemia, but I think it was more of a combination of the inflammation, bleeding, gas, and just being uncomfortable.
  • Upcoming Events