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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Flu Like Aches
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14 posts in this topic

I keep getting hit with these flu lke aches in my whole body(especially my legs). first mystomach gets off... just gassy and acidy and maybe slightly nauseus and then the aches set it. It is awful and usually last a couple of days to a week sometimes. always seems to be related to my stomach though whe my stomach is better then the aches are gone. I can get diahrea as well like this last time. Does anyone get these symptoms. I am so frustrated right now because I have my entire family here right now to celebrate my birthday and i am scared to eat and making sure no one goes in my bathroom! Is this a typical symptom. Maybe i would just feel better if i knew i wasn't the only one.

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Deb, I would say this is pretty common. At least it is for me. I get like that too... Then go through periods where I am terrified of eating anything.

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I would get that too, it swhy I missed so much work, cause i felt like i was sick from a flu or something all the time, which led my boss to say. you should go see a doctor, and so on.

Terribly achy feeling, tired, explosive. I have scented candles in my bathroom that are on any time a guest is by.

Of course I also have the cat box in there, so I blame it all on them. All my friends are aware of my urgent needs as well.

Hope you feel better.

Elonwy

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I keep getting hit with these flu lke aches in my whole body(especially my legs). first mystomach gets off... just gassy and acidy and maybe slightly nauseus and then the aches set it. It is awful and usually last a couple of days to a week sometimes. always seems to be related to my stomach though whe my stomach is better then the aches are gone. I can get diahrea as well like this last time. Does anyone get these symptoms. I am so frustrated right now because I have my entire family here right now to celebrate my birthday and i am scared to eat and making sure no one goes in my bathroom! Is this a typical symptom. Maybe i would just feel better if i knew i wasn't the only one.

<{POST_SNAPBACK}>

deb ,

hi , your not alone all last winter I keep going to the docs and he kept saying I had the flu, I ached, sick to my stomach, didnt want to eat and head aches, they were so awful id have days couldnt get off the bed except to go take a shower, didnt eat anything ,

then the flu turned into broncial and spend 3 weeks on meds and got sicker, started having panic attacks ,

finally when went back to docs told him it wasnt the flu something else was going on, he sent me to a specialist who did blood work and apparently knew about celiac disease.

had my biopsy in may and been gluten free,since. it has gotten better and

as I find more and more foods and recipes to fix it is getting easier.

I still have days where im very tired but realize part of that is the 40 plus pounds i lost this past winter.

these boards help so much ,gl and I hope you will start feeling better soon.

rosie

Ps I usually cook and fix most of my food , and dont eat out , this way I know every thing is as safe as I can make it. right now its too soon for me to try packaged foods,still remember how sick was .

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hi no, youre not alone in feeling this way. I woke up this morning feeling horribly achy...just like the flu. I couldnt do anything today-not even walk my puppy. I feel like I worked out at the gym for hours and now feel sore. Im cranky and irritable as well as having a sore/bloated stomach.

Im suspecting it is Celiac-related, as I had PF Chang for dinner last night and indulged in a ton of food they swore was prepared gluten-free (they do have a specific gluten-free Menu, which is why I wanted to try it in the first place).

The chinese food was the best!!! I havent had chinese food with flavoring or noodle dishes since before being diagnosed, 6 yrs ago. Now Im second-guessing if there wasnt some gluten lurking somewhere. I would be surprised, as I enjoyed this non gluten-free tasting food.......said to myself: this is too good to be true, anything gluten-free doesnt taste this sinfully delicious!!!!!!!!!

My best advice is just to stay calm, relaxed, take a hot shower/bath, watch a movie, read, call a friend........anything pleasant to take your mind off it. Eventually it'll pass, as does everything else in life!!!!

If anyone else experienced any gluten in their food from this well known place????

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Hi Deb,

As you can see you are definitely not alone with these symptoms.

The achey feeling is my main symptom when I've had gluten. I get the same stomach symptoms as you without the big D (I get more constipated than usual if that's possible). The aches and tiredness last for at least a week - stomach clears up sooner.

I have different symptoms to the other foods I'm allergic/intolerant to but you are describing my typical gluten symptoms!

We all know EXACTLY how you feel re being embarrassed. I had the runs at work yesterday - tiny office with the loo right next to the kitchen :ph34r: . My face is still red!

Chin up!

Yvonne

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I made it through my party and was pretty good by nighttime thanks to my wonderful husband who gave me a great massage. The next morning the aches were completely gone. My stomach however is on high alert and very sensitive.

I realize now that I have been getting gluten from the beginning. ieat sushi and I never knew that the crab that is in it which is fake is made with gluten!!!!!! I eat sushi all the time!!! omg

Thanks for all the replies. it is going to make me even more vigilant about getting that gluten out.

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Deb- YES! 2 weeks ago I was so achey they tested me for Lyme disease. Negative and then after the gluten got out of my system, thye aches went away. They're back today after eating Garden of Eatin tortilla chips. Garden of eatin will no longer guarantee their products to be gluten-free as they are processed on the same lines as gluten. Ahhhhh!

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Deb- YES! 2 weeks ago I was so achey they tested me for Lyme disease. Negative and then after the gluten got out of my system, thye aches went away. They're back today after eating Garden of Eatin tortilla chips. Garden of eatin will no longer guarantee their products to be gluten-free as they are processed on the same lines as gluten. Ahhhhh!

<{POST_SNAPBACK}>

OMG...I've been having symptoms for over a week now. I've been sooo careful with everything I eat. I've been eating the Garden of Eatin tortilla chips... :blink:

I'm just learning...I've only been eating the "safe" foods. Those chips were on WF's gluten free list. :angry:

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Hey- What's the WF list? I read about it on the Delphi Forum. Here's the link:

http://forums.delphiforums.com/n/mb/messag...iac&msg=42465.1 and click on the top one on the right side (through April 2005). It's been an invaluable resource..

Don't forget to tell me what the WF list is. I'm sorry you don't feel good- you would think that eating organic tortilla chips would be a no brainer. :angry:

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My husband is really achy also & has said he feels like it is the flu. He is meeting with a nutritionist today & hopefully if he has been exposed to gluten in some food we are unaware of then they can help & maybe ease his pain. Just yesterday he got it bad. We aren't sure if it was the Jimmy Dean Turkey Sausage or the Cousin Willies popcorn that got him. Anyone know?

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Hey- What's the WF list? I read about it on the Delphi Forum. Here's the link:

http://forums.delphiforums.com/n/mb/messag...iac&msg=42465.1 and click on the top one on the right side (through April 2005). It's been an invaluable resource..

Don't forget to tell me what the WF list is. I'm sorry you don't feel good- you would think that eating organic tortilla chips would be a no brainer.  :angry:

<{POST_SNAPBACK}>

It was a list of gluten-free foods I printed from the Whole Food's website. I took the list shopping with me and only bought stuff off the list. I have the Delphi list too but I use that for the trips to the regular supermarkets. Like I said I'm new at this so I'm basically trusting these lists. DAMN...I just looked at the Delphi list.

They will no longer guarantee ANY of their chips as gluten-free because they are processed on the same equipment as other gluten products. :( I guess next time I need to be more diligent. Maybe this is why I've been sick though...do you think the risk for contamination with these chips is high? It sucks because I'm never going to heal if I keep messing up like this :angry:

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That's funny (not ha ha but ironic) as I use the Whole Foods list too. I ate their chips since going gluten-free (usually sesame blues) and always wondered why I felt hideous after (I thought I was having problems with salsa). Now I realize it was the chips, not the salsa. I am new at this too (went gluten-free in January) and I think it is possible to be this sensitive- I'm finding out I am (sick three days now after eating those chips).

My theory is even if you read, hear etc. that it's gluten-free and you have a reaction, then don't eat it. No matter what anyone says. :angry: Beverly

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My theory is even if you read, hear etc. that it's gluten-free and you have a reaction, then don't eat it. No matter what anyone says.  :angry: Beverly

<{POST_SNAPBACK}>

Yeah...thats what I'm starting to figure out. I'm glad I saw your post cuz maybe now I have an explanation for these reactions I've been having. I also reacted to Glutino blueberry breakfast bars (which are really good). I don't know if there can be any contamination with these but I'm just going to stay away until I'm healed. Maybe then I won't be as sensitive...this could be wishful thinking but we'll see. :)

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