• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weight Issues
0

13 posts in this topic

I am new to the gluten free world. I received my Celiac diagnosis in December. I have been gluten free since the biopsy, as my doctor said he could see the damaged just from the endoscopy. The biopsy confirmed.

My whole life, I have been very fit. Starting a few years ago (assuming when the Celiac started), I started gaining weight for no reason. I had not made any changes in my life, and the weight just kept creeping up. I wasn't worried at first, because putting on the first ten pounds didn't bother me. I am now 50 lbs over my ideal weight. I had hoped that since going gluten free, it would be easier to lose the weight. I have noticed an increase in energy, and so have been exercising regularly, including cardio and strength training about 4 times a week. Since going gluten free, I have been eating healthier as well. I eat a lot of fruits and veggies, lean meats, and stay away from sweets. I do eat some gluten free substitutes, but only about once a week. For example, I'll have gluten free pasta for dinner one night a week.

Since going gluten free, I have gained about 4 more pounds. I am so frustrated with it all. About a year ago, I was diagnosed with hypothyroidism, however, my levels have been good.

I know that a lot of undiagnosed Celiac are underweight and so gain weight with going gluten free. While others are overweight before diagnosis. Those of you who were overweight, when did you start seeing a weight lose, if any. And how hard did you have to work for it?

I know for me, it's only been 2 months, but I'm curious with others results. I have been trying really hard, and seeing the scale keep going up, is really discouraging.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I haven't been able to loose what I gained before I was diagnosed but in great pain. I still have not been able to loose it and am overweight, but I also have pain exercising in cardio. I just bought some weights this week hoping to see if I can do it without pain.

0

Share this post


Link to post
Share on other sites

I am almost two months into it and am just now seeing a bit of progress. Not so much in weight loss but less belly. You also have to exercise a bit, and work on your 'core' muscles. The older you are the longer it takes.

0

Share this post


Link to post
Share on other sites

I was really overweight and miserable.

I'm 5 ft. tall and when I was active and healthy weighed between 115 and 120 until I started getting sick. Then the weight went up to almost 200 pounds. I wasn't able to eat or drink very well. I stayed sick for 7 years with Dr.'s calling it Fibromyalgia...when in fact, I am Celiac. When I figured it out I was thrilled. About the third month of being gluten free I noticed the weight coming off without my working at it. By the 6 month mark the weight loss was dramatic. It seemed like my metabolism finally started working again for no reason. Just the way it seemed that I had gained weight for no reason. We now know that the reason is Gluten. I am one year and 4 months gluten free and my weight is 110. My muscles are strong and good now. I'm growing muscle where I never had any before and it happens even if I don't do any exercise. Somewhere along the line I decided to go Paleo and not eat any grains. That is when my health really started improving and my muscles started working great and my energy level stayed good. I feel fantastic now. Mark's Daily Apple if you are interested.

My general rule of thumb is to consume at least one pound of meat a day and one pound of frozen veggies of some sort and then I can have some Dove Chocolate. Protein seems to build muscle and this is the only time I am without mysterious food reactions.

Apparently I was a really small person under all that Celiac inflammation. Literally everything is better my muscles, my skin, my hair, my nails, my digestion, my weight, and my moods. I have Hashimoto's but it has stabilized and I am not on medication for it. Finding out about Celiac changed my life entirely for the better. Give it some time and hopefully your body will respond and lose weight. If not you might want to try Paleo too. A lot of people feel better on it and it's not just for Celiacs but it happens to be perfect for us. Best of luck.

0

Share this post


Link to post
Share on other sites

krystynycole - I'm so sorry to hear you are in pain. Luckily, in the past two months of being gluten free, my energy levels have increased and I am able to hit the gym without much pain. Good luck to you!

BarryC - I too am noticing my belly is a little flatter. What I don't get is that the weight is the same. I am only 23, so was hoping this wouldn't be too hard. I do go to the gym, and do a lot of strength exercises, including my core.

eatmeat4good - THANK YOU for your advice. Your story sounds very similar to mine. I'm a bit bigger, 5'4" and before Celiac was a muscular 125 lbs. The weight kept coming on for no reason. I first had my thyroid tested over a year ago, and sure enough, Hashimoto's thyroiditis. I've heard that going gluten free can help hashimoto's as well, but I have never heard of someone being able to be off their meds because of it! I would LOVE to get there some day too. I'm not a big fan of taking prescription meds for the rest of my life. It's only been two months for me, so I am really hoping that I will start seeing a difference soon. I eat healthy and work out but the weight will not budge. So I am assuming that I am still in the healing stages. I've heard about the Paleo diet. I would really like to not have to resort to this, as I am not sure this is something I could do for life. But thank you for the info, I have looked into it and will probably start eliminating more grains if I don't see a difference soon. Thanks again :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi,

I was diagnosed in early January. Fit and fine :) before getting sick, by the time I was diagnosed I topped out at 212 lbs.

It has been about 6 weeks since being diagnosed and I weighed in today at 195! My energy level, aches, pains etc have improved so much i feel like a new person. Two things I did that I think have helped me -

1. Joined wight watchers, really the only plan you can do with Celiac. It helps me keep track of what I eat and has helped me rely more on fruits, veges, protein and dairy (have to take Lactaid if I consume dairy). Because the gluten-free substitute foods seem to be such a high point value (WW tracks in points) I eat them in moderation.

2. I have been going to the local YMCA. I committed to a couple of days a week at first and then stepped it up from there, when I can't go to the Y I break out the Wii Fit :). It feels good to be moving again.

A little about me, I am 5'4" and 48 years old.

0

Share this post


Link to post
Share on other sites

I think everyone's bodies react differently depending on how Celiac has effected your system.

I was painfully thin before going gluten free, and now I can't stop gaining weight. I've gone up 4 pant sizes in a year, and my pants are starting to get tight again!

0

Share this post


Link to post
Share on other sites

honestly gluten free didn't stop my weight gain because it didn't stop my overeating, just lessened the degree and the types of foods I overate on.

Personally I think weight gain has a lot less to do with gluten and more to do with sugar, emphasis on fructose especially. Fructose is a sugar that can't be used by the brain or muscles so it converts straight to fat when you eat enough of it, sucrose is 50% fructose and things like high fructose corn syrup, honey, and agave syrup contain a higher % of fructose to glucose which make them immediate fat packers. Basically you can assume that anything that tastes sweet contains fructose with the exception of some herbs and specialty concoctions, like stevia or artificial sweeteners. I'm a big believer of eating very low carb for weight loss. If you switch your dietary staple from carbs (aka sugars) to fats, your body will be put in a state of burning fat for energy rather than sugar, this state is called ketosis. Basically ketosis is when your glycogen stores in your liver are depleted and not replaced (this happens through not consuming carbs) and ketones are produced. Ketones repress appetite naturally so there is dramatically reduced hunger (especially false hunger). This also happens during fasting. I'm just starting to experiment with the paleo lifestyle for controlling weight gain and overeating (as well as depression and some other things) but it seems really promising, marksdailyapple.com is a really great site

0

Share this post


Link to post
Share on other sites

This is me!

I am 4 months gluten free, I am still 25-30lbs overweight. I am eating healthy, started running again, only running about 3 miles a week, with an increase plan in a couple of weeks I should be running 5 miles a week. The weight just isn't budging! It went up 4lbs since going gluten free and now is just staying still.

I recently removed lactose from my diet as well, because I started having problems, and now I am struggling with eating too little at work...and STILL the weight hasn't moved! Ugh.

I am very frustrated.

0

Share this post


Link to post
Share on other sites

I've never been small, but I'm 5'3" and when I was healthier (about 19 years old) I was about 145 pounds. Over the past four years (I'm now 23) I've gained weight continually, regardless of what I tried. In July I hit my all time high of 275 pounds. In August my weight started dropping and hasn't stopped. I've been very ill since then... Now, I'm only one week gluten-free, so not enough to affect my weight, but I'm 200 pounds. I guess the disease hit a really bad spot...? I'm not sure because my eating hasn't changed until just now.

0

Share this post


Link to post
Share on other sites

ChristenDG~I just noticed you started going gluten-free 2 days before me. I tried 2 years ago and gave up because it was too hard (even though I started feeling much better in 3 weeks.) Good luck, I hope you see many good results!

0

Share this post


Link to post
Share on other sites

I lost all of my weight before going gluten-free. I did the South Beach diet (which is essentially gluten free, but we weren't calling it that). Lost about 20 pounds. I started competitive swimming, and continued to lose weight (put me at about a size 10). But I had horrible migraines. I was eating bread and veggie meats (brief stint as a vegetarian, and toast was convenient as a pre-practice snack). I also had had gastritis since middle school. So I went gluten-free, and my symptoms stopped within a period of weeks. Since then, I've hovered pretty well in the size 8-10 range. For me, it's been sugar...when I eat more sugar, I naturally gain weight. I've been trying to exercise, but unfortunately, I've been having bad lower back and hip pain, which decreases my incentive to exercise. But my goal for this week is to try to stretch out the pain and get back on the treadmill.

0

Share this post


Link to post
Share on other sites

Hi

I am new to this website but have been diagnosed with celiac since 1997. I am 5'7" tall, 66 years old and weighing 184. When I was diagnosed I dropped below 120 lbs and it was still going down. As soon as I went on the gluten-free diet I started improving and have now reached this unwanted weight. My question is how do I lose the unwanted pounds? I would like to drop at least 20 pounds. After always being so very thin and ate a lot, it is hard to now turn that around. Anyone have any ideas?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,678
  • Member Statistics

    • Total Members
      63,884
    • Most Online
      3,093

    Newest Member
    Mato Sapa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol Cheers Sorry, best of luck! Matt  
    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
  • Upcoming Events