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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is This A Normal Reaction To Sugar And Caffiene
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I have been gluten-free for 3 yrs in march after being gluten-free for about 1 yr I started having problems with other foods so now I try to stay away from processed foods.

sugar reaction - for christmas I had 2 small gluten free cookies and about 20 minutes later I was shaking and I had an insane amount of energy, like I was literally running in circles trying to calm down enough to sit. after this reaction I pretty much limited my sugar in take a ton. I had the same reaction when I ate a couple starbursts. I tried eating a small amount of sugar everyday to see if I could build a tolerance but it just seems to be getting worse.

caffiene reaction - my friend convinced me to try a coffee icecream so I tried about 2 oz and about 15 min later I was shaking and bouncing off walls, this was about noon, I was hyper the rest of the day and I pretty much didn't sleep that night. that was a couple yrs ago. If I eat chocolate I have a similar reaction. I do not drink coffee or soda (pop) except on rare ocasions. Last week I tried mountain dew for the first time in 3 or 4 yrs and I only had 1 glup at 7pm and I was instantly awake (i think this was caused by the bubbles), about 20 min later I was bouncing off walls, shaking, and talking fast. I was at a dance and I literally never stopped moving for 5 hours and I was still full of energy, I ended up not being able to sit still until about 4 am.

Is this normal?

should I see a dr about this?

would eliminating caffeine and sugar be a good idea?

any other advice?

Thanks in advance

AP

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You definitely should see a doctor and have your blood sugars checked. Don't mess around with this, i.e., do it soon. Eating simple sugars raises your sugar levels and and then drops them rapidly. This could be the cause of your shaking. But I don't know.

As for the coffee, caffeine can do this to many people. I have not intentionally consumed any caffeine in 38 years because I don't sleep for 1-2 days afterwards. No cokes or sodas, no regular tea. I can have decaffeinated coffee even though it still lhas some caffeine and, strangely, the caffeine in chocolate doesn't bother me, but a cup of regular coffee has me bouncing off the walls. So eliminating caffeine would be a good idea for you.

But you should definitely see a doctor regarding your blood sugars.

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I was tested for diabetes at the beginning of the school year, because I had (still have) increased thirst/urination, fatigue, vision problems, and headache. they did used a glucose meter and measured my sugars when I went in and said that they were normal. they also checked my thyroid, which was normal, and checked for mono, also negative.

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Have you had a fasting blood sugar? Or a glucose tolerance test? I would tend to think there must be something wrong with your sugar metabolism somewhere. :) It should not make you shaky, while coffee definitely can give you the coffee jitters :D

Just for interest, what were your thyroid results? I know you said they were 'normal' but what were the measurements?

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I haven't had a fasting blood sugar or glucose intolerance test, the dr (at student health services) said i didn't need them becuase my blood sugar was in the normal range when they tested it, even though type 1 diabetes runs in my family (my paternal grandmother and all of her siblings)

they only told me the thyroid test was fine.

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Can you get a copy of the resultls? They recently (well, about 9 years ago but it takes a while for the medical profession to catch up :P ) revised the ranges of normal for thyroid. It used to be that you were considered normal if your TSH was under 5. Now if you are over 3 you are out of range, and really, the lower your TSH is the better. That's the only reason I asked, to see what range they were using.If you had a TSH of 4.9 in the old range you would be told you were fine, whereas nowadays that is considered to be hypothyroid.

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I haven't had a fasting blood sugar or glucose intolerance test, the dr (at student health services) said i didn't need them becuase my blood sugar was in the normal range when they tested it, even though type 1 diabetes runs in my family (my paternal grandmother and all of her siblings)

they only told me the thyroid test was fine.

As far as the sugar, one test will not tell you if you have blood sugar problems or not. I can test my sugar and have it be normal, but if I eat something with sugar in it I get ill. I also have an issue with caffiene but along with getting hyper it hurts my stomach too. Anyway, if the doctors don't want to do a glucose tolerance test or a fasting test which is also not always accurate you could get a cheap meter and test your sugar yourself. Good luck.

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I am also reaching a 1 year point after gluten and have also found I am troubled with the same symptoms. I am reacting to sugars and getting shaky and at the same time almost craving them. I have also been tested twice for diabetes in this past year and have another doc appt this week. Let us know how your result turn out.

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Caffeine and I don't mix well. I can drink it for one day but then after a few days running it will mess me up. When I was concerned about my blood sugar my doctor gave me a meter and test strips and had me check my levels every day for a 2 week period. You really can't depend on a one time reading to know what is going on. You would get a more meaningful measurement by checking your blood sugar an hour after eating and 2 hours after eating. For me getting rid of white rice dropped my sugar levels back down. But mine were only slightly elevated.

I still drink tea but only herbal caffeine-free teas. I use stevia to sweeten it.

I did have the bouncing off walls thing happen after getting some iodized salt in my diet for the first time in 5 years. That made a big difference as my thyroid kicked into action and started pumping out thyroid hormone again.

I do get somewhat of a sugar rush but not as strong as you described. Mine used to be stronger but has mellowed out since I changed some things in my diet.

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