• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Positive Or Negative? Should Have Results Soon...
0

4 posts in this topic

Recommended Posts

Coeliac is supposed to run in families...my father has it (diagnosed about 14+ yrs) and my son has it (diagnosed last week)...whats the chances of me having it?

Blood results...no idea what they mean but I know they wernt clear...something was high at 20 (0-15 being normal) and something else being Negative (which being negative instead of positive can affect the first score)...anyone have any idea what this means???

Biopsy...should have the results fairly soon, they said a week (which is tomorrow) but I think thats being rather optimistic!!

Id like to know what people think, will I have it or wont I?? Im really eager to get the results!!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


ravenwoodglass    1,214

No matter what the results of your tests it would be a good idea to try the diet yourself if you are having any symptoms. False negatives are always a possiblity with testing.

Share this post


Link to post
Share on other sites

No matter what the results of your tests it would be a good idea to try the diet yourself if you are having any symptoms. False negatives are always a possiblity with testing.

I dont really have any of the classic symptoms such as diorea (i dont know how its spelt) or stomach cramps but have always suffered with mouth ulcers as far back as I can remember and after having both my children I have lost weight and cant put it back on. At one point my partner actually asked me if id been eating?! Im always eating!!

Whatever the results I think I will try it anyway and see what happens. My daughter has her blood test tomorrow, shes 4 and is really not goin to like it :(

In a way it would be easier if we all just ate gluten free!

Share this post


Link to post
Share on other sites
ravenwoodglass    1,214

In a way it would be easier if we all just ate gluten free!

Yes it would be easier. You may not have what a lot of doctors consider to be classic celiac symptoms but I bet your mouth ulcers will go away and you will feel better over all.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,866
    • Total Posts
      938,397
  • Member Statistics

    • Total Members
      65,764
    • Most Online
      3,093

    Newest Member
    Isobel Brady
    Joined
  • Topics

  • Posts

    • I had my endoscopy first - I was anemic and having Restless leg syndrome and palpitations.  The doc came out and said "You've got this scalloping of the intestines that we sometimes see in celiac. I took biopsies. I'll order some blood tests" My antibodies were off the charts high. I had no GI symptoms. Pathologically, celiac is divided into 3 stages:  Grade A/Type 1: increased intraepithelial lymphocytes but no villous atrophy Grade B1/Type 2: villi still present but shortened  Grade B2/Type 3: complete villous atrophy Most people that have untreated, symptomatic celiac have some degree of villous atrophy/blunting. But your biopsy still could be celiac. But, I agree with ironictruth. If the labs are positive and you get better with a gluten free diet, I think you have your answer. When I had a repeat endoscopy 15 months later, I still had IELs on the biopsy (but no villous atrophy) which apparently can take several years to heal. So I have no idea or I'm getting a little cross contamination or this is normal healing. Or it could be from the NSAIDs I take for my aches and pains......Frustrating to say the least. Let us know what the labs say....
    • A half-time report on what we've learned about each other so far in the Relational Aspects of Food Sensitivities research. The study is geared toward gaining perspective on the perceived impact one adult's food restrictions cause in a household when cohabitating with other adults. It may ultimately yield strategies to address the social and emotional impact of living with food sensitivities. It aims to provide coping strategies, solidarity and empowerment to our community. View the full article
    • Feel free to discuss ANYTHING here. Nothing is tmi! We have heard it all. And you can be as dramatic as you like, we will still be here for you.  SSRI's are a bear to come off of. I got off one and for MONTHS I had the zaps in my brain. I must say I did not do it slowly or carefully and put myself in the throngs of withdrawal. Did you get off your med with the help of a doctor? (It's best to do so.)
    • If you do have celiac disease, antibodies can continue to rise and attack for days, week or months after a gluten exposure.   I hope you feel better soon.  
    • Thanks for the thoughtful replies, everybody!  I want to highlight that it's just been almost 4 weeks since I've eliminated gluten (and I've been very strict about it) - prior, I could eat gluten with no issues that like this. A sandwich would rob me of energy, but not in a way I could associate with having eaten the sandwich. How insane that four weeks off of gluten could produce this new exposure reaction for me   1.5 weeks into being gluten-free I felt well enough to taper off my OCD meds and so, while I haven had had any noticible negative reactions, SSRI withdrawals can resemble gluten exposure (although the symptoms I don't think are often delayed) - so I wonder if a weird mix is happening there.  And also... I'm mostly just stunned that my body could react so extremely now to what it used to take with relative ease a mere 26ish days ago. It's good to know this is an actual thing and not me being dramatic about my new eating regimen.   It literally feels like death and like I'll never getting through it - but I'm staying reasonable about it and woke up this morning feeling less terrible (although I've had to make several trips to the bathroom - tmi I know).  Thanks so much!
  • Upcoming Events