• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

If Looks Could Kill
0

5 posts in this topic

I'd be dead. My husband had an appointment today with his endocrinologist today and I always tag along so I know firsthand what I need to know. Over the last few years he has been having increasing trouble controlling his blood sugar. During this time he has also had increasing bowel issues. Last fall he was told he has IBS. His mother is constantly weak, tired and has been battling lymphoma for many years.

So, unable to keep my mouth shut as the doctor offered suggestions I asked if it was possible that celiac could contribute to his increasing troubles with his spikes and lows. The doctor filled out the paperwork for blood work while my husband glared at me. Now I wouldn't wish celiac on anyone, but I also don't want to spend a decade watching my husband die of cancer while losing his feet a toe at a time and counting the days til he ends up on dialysis. (Okay, morbid but I this sort of thing just pops in my head.)

As an extremely picky eater, he would have significantly more trouble adjusting to a gluten free diet than I did. The doctor did suggest that even if the blood tests are negative that it wouldn't hurt to go gluten free and see if symptoms improve and if they do to try a little gluten again and if he gets sick again that it's obviously celiac. He mentioned that it's far easier today than it would have been a decade ago, although I doubt my husband finds that encouraging. (I could have kissed him, I didn't imagine I'd ever talk to a doctor who knows half as much as my limited knowledge of celiac.) All that's left for me to do is convince my husband, regardless of the test results, to go through with at least trying a gluten free diet.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

I would have done the same in your shoes. Those symptoms are just too closely related to gluten intolerance/celiac.

Kisses to that endo!! :lol:

However, since you are already gluten-free, converting the two of them will not be more work for you, in fact it will be less. (As I recall, MIL lives with you guys?)

Ask him to give it a go (no cheating!) for one month. That's it.

Make some special treats and he'll be hooked on gluten-free foods.

Bet him his blood sugars and bowel issues start to resolve.

and I bet....You will win this bet. :)

1

Share this post


Link to post
Share on other sites

I wish she lived with us, but no, it's her house. She wouldn't entertain the idea of making these changes in her life and frankly we don't have the kind of relationship where I would be even remotely comfortable talking to her about it. She's still convinced that all of my health problems are because of my bunny.

Right now I'm just hoping the test results come back positive. If they don't my husband will probably spout off about how I'm wrong (even though I'm not) and that will be the end of that. I did make Rice Krispie treats tonight which are one of his favorite snacks, hopefully I'll convert him one way or another. The logistics will be much easier but it'll be like trying to feed a picky toddler. :lol:

0

Share this post


Link to post
Share on other sites

Good for you Adalaide, I don't know why some people wnat to close their ears but you are opening to options, options which are all good to investigate. My husband's health is not as good as it could be, has had a life-long issue with allergies and just keeps taking meds. I have repeated aske him if her thought about actually finding out what is causing hime issues and he repeatedly drgas his feet.

If the results don't come back positive and he starts with the "I told you so," at least you now know and there is no longer the guessing game.

0

Share this post


Link to post
Share on other sites

Have they looked at possible gastroparesis? I have it. It can make blood sugar very hard to control. Mine started out with bowel troubles and then progressed to throwing up.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,135
    • Total Posts
      929,117
  • Member Statistics

    • Total Members
      63,552
    • Most Online
      3,093

    Newest Member
    JonDee
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you all so much.  It's so great to know there are people out there that have shared my experience. I was feeling quite alone in this. I could never believe that I just had anxiety, and that was that. There has to be a reason for my body to act this way. I feel validated,and hopeful and that's a huge thing for me. I'm going to see my doctor next week, and see what she thinks. I'm hopeful that with all my symptoms (anxiety, skin rashes for months, sensitivity to light|sound, headaches, vertigo, temper) she won't shrug me off. My mom has Crohn's disease so maybe a connection. Thanks again for your advice and your ear, it truly helps.
    • I do buy Plantar's nuts too.so if you are looking for peanuts, cashews, etc
    • I have bought nuts from other suppliers like these black walnuts that only process their nuts (no fancy flavorings...just these black walnuts): https://black-walnuts.com/ You do need to confirm that nuts are not processed on equipment shared with wheat if they are not certified gluten-free or in a shell by calling.  So, mostly, being lazy, I just order from Nuts.com.  
    • We were diagnosed with Diabetes first, but I think she already had celiac prior.   Our doctor told us that she has celiac only 3 months after diabetes.   Her TTG was off the chart high.   Our endo offered to formally diagnose her with celiac without the endoscopy, but I refused to believe she had celiac.   She had no symptoms.   An endoscopy confirmed it.   We went gluten free.  She still is a silent celiac.   We would never know about her celiac if it weren't for her type 1 diabetes.   They did all sorts of blood test on her.   I think her ttg was already off the chart high when she was first diagnosed with diabetes, but since the diabetes is so overwhelming at first, they simply waited 3 months before telling us about the celiac too.  I think this was a kind thing to do. Looking back, she did have a symptom, she stopped growing for a little over a year!   My daughter was always tall for her age, she was a huge toddler, 90th percentile.   One of the tallest kids in her class, then suddenly, I noticed that she became the shortest among all her friends.   At the time of her diagnosis, she was 10 years old, and was only 25th percentile in height.   She is 13 now, and is growing and gaining height.   She is about 5' 2" now.  So while she does not get sick with gluten, we take her gluten free diet very seriously.   Our TTG has been dropping continuously over the 3 years, and it is getting VERY close to be under normal range.   Just on the border, but not quite there...yet.
    • Funny story ediblejack, foodiespoon, and several other companies make edible utensil. While they do have a gluten-free line the primary lines all use  wheat. You might run into these market, party, sampling event, or have a foodie/ecocrazy friend who has them. I considered using the gluten-free ones for my bakery and sampling a few years back and did my research.
  • Upcoming Events