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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Probiotics
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dmb2151    0

I received my celiac diagnosis in early December, and have been gluten free since, but I am still experiencing some symptoms. When I went back to my gi doctor in January, she said that it is probably just taking some time for my intestines to heal. I go back in March, but have not had much relief of my digestive symptoms. I am still experiencing loose stools and nausea. I have read a lot about probiotics and they can be helpful in the intestinal healing. I plan on asking my doctor to recommend a probiotic, but was wondering if anyone else can recommend a good one for celiac disease. Thanks!

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Diane-in-FL    28

I take Culterelle. There are others, but this one seems quite popular with folks here, and it is making a difference with me. But you doctor is right.....you are still healing.....and a probiotic should help you. Good luck! :)

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IrishHeart    1,634

Probiotics are a must for celiac guts.

http://thefooddoc.com/probiotic_facts

Custom Probiotics are a very good product (and he will talk to you on the phone as well.) They provide a broad spectrum of beneficial flora.

http://www.customprobiotics.com/

OTC Culturelle work very well, too. My GI doctor recommends this one because it is backed by clinical research. Just be sure to get the dairy-free ones.

They helped me immensely ---and my GI tract was a burning mess.

Best wishes. Hang in there. :)

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tom    75

I get PB8 at Whole Foods. The green-top one (aka veg formula) is dairy-free. Apparently many probiotics are grown with dairy involved. I don't know a lot about it but when I 1st started probiotics yrs ago I started getting my weird detached "living-in-3rd-person" symptom until I read more & stopped taking those.

I don't get that w PB8 green-top.

I've also heard it's good to switch 'em up to get different strains but haven't seen another I want to try. (Partly because the place w the largest selection also has !~@%$#$%& fragrances by the pill aisles & I can only read for as long as I can hold my breath :angry: )

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Cathey    6

I was going to suggest ask Irish Heart. See she already replied. I'm using ones I buy @ my Dr's office along with an Aloe drink. I was uncertain of what I was using and Irish Heart researched what I was using as a go. I fell so much better on the Probiotics and Aloe. It really has settled my stomach and less abdominal and gas issues. They really work.

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eatmeat4good    313

Ha! Me too!

I was going to say Irish Heart recommends Culturelle...but as you can see....she doesn't miss a beat!!

Love ya Irish!

And yes, I'm taking my Culturelle!!

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Mom-of-Two    7

Interestingly, I have been giving my kids both Culturelle probiotic (adult capsules opened and dumped into food/drink) for over 3 years now, I use them for immunity, keeping them regular, etc. I was taking them before getting my celiac diagnosis, and then my primary dr recommended a different one by Renew Life-- still thinking I had IBS. I have two boxes of them, been taking 2 a day (30 billion). The Renew Life are multiple strains and a combination of bifido and lactobicilli bacteria, supposedly beneficial for both large and small intestine.

They seem better, but I need to get more Culturelle for the kids and am wondering which would be more beneficial for me, Culturelle is so ofen recommended.

I have heard that you should switch up the bacteria, but my GI said that is not true at all, so long as you take it every day, the good bacteria continues to populate the gut. I asked her because my kids have been taking Culturelle so long, but she said t's great for them.

I have to use what is left on these but does anyone have knowledge about the Renew Life? They are a huge digestive company, and their product line is pretty impressive, lots of "critical care" probiotics that could be helpful to celiacs.

I want to be taking the right one to speed healing!

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dmb2151    0

Thank you for all the replies! Sounds like Culturelle is a good one, I will definitely ask my doc about it.

Thanks for the help :)

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IrishHeart    1,634

If it matters to your doctor, My GI doc thinks they are especially good because of the lactobacillis strain.

"Lactobacillus GG was discovered in 1985 at Tufts University in Boston, MA by Dr. Sherwood H. Gorbach and Dr. Barry R. Goldin. Considered to be the premier probiotic in the world, Lactobacillus GG has been the subject of more than 400 scientific studies."

Here, you can print this off:

http://www.culturelle.com/about_culturelle

Celiacs guts are deficient in the good gut bacteria and need them replenished. They have helped every single celiac I know!

Just IMHO

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