• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nose Bleeds
1 1

15 posts in this topic

I know that there have been some much older threads written about nose bleeds in relation to Celiac Disease, but they haven't been updated in years, so I decided to do a new one.

I've suffered from nosebleeds all of my life, particularly in the winter. I've had particularly bad stretches where I will have up to 3-4 per day and they are very hard to stop as well. I've had the inside of my nose cauterized twice. It was extremely painful and didn't help at all. I've seen eye, nose and throat specialists who say that I have a deviated septum, but are still puzzled as to why I have them so much. Last winter was probably the worst period for me. For about 3-4 months straight, I had terrible nose bleeds that wouldn't go away. One of my doctor gave me some nose clips that I would use in these cases.

I was diagnosed with Celiac disease nearly 2 years ago. However, it's only been in the last few months that I've finally started to heal and make progress. 1 year ago when I had such bad nosebleeds, I had been on the gluten-free diet for a good 6-7 months already, but they were really bad. I often get them in the middle of the night and they wake me up.

Anyway, I've been doing much better this winter with the nosebleeds but they are still an issue, although much less so. Many of my other symptoms including weight loss, acid reflux, fatigue, acne and brain fog have improved a good deal.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My son and I (both celiacs) have also been plagued for most of our lives with nosebleeds, though they have lessened dramatically since going gluten free eight years ago. My neighbors used to think my son had AIDS because his nose bled so often and so copiously. I assumed then, as I do now, that we were low in Vitamin K due to malabsorption. I still don't clot well, but I rarely have nosebleeds now. The nosebleeds were especially bad whenever I was pregnant, and I had to have my nose cauterized both times--but, like you, it didn't help. Usually, I'd start bleeding uncontrollably again the very next day.

My son's pediatrician suggested coating the inside of his nose with Polysporin or Neosporin, and that worked somewhat, especially in the cold months. Apparently, when the membranes get dry, they can bleed more easily. Hopefully, your nosebleeds will start to taper off, too.

0

Share this post


Link to post
Share on other sites

I had nosebleeds come upon me suddenly. It was the last straw that sent me to another doctor and to a diagnosis of celiac. Since then i've been supplimenting my gluten free diet with copious sprinkling of parsley (vit k). The nose bleeds went away within a month and haven't come back. Hope yours are as easily resolved.

0

Share this post


Link to post
Share on other sites

I was plagued with nose bleeds for years. I thought it might have been the dry climate I was in and would try to keep my nose moisturized, not sure it really helped. I stopped blowing my nose as hard and I think that did help. Infact, I try not to blow my nose unless I have to because of all the nose bleeds. I now live in a humid area and still am very careful about any pressure to my nose and I have had less issues.

0

Share this post


Link to post
Share on other sites

I used to get regular nosebleeds, particularly as a kid. Only once since going gluten free, and that was when my sinuses, which are also a problem, were particularly painful.

Interesting about the vitamin K.

For me, I suspected it might be linked with systemic inflammation. Another of my symptoms was painful varicose veins in my legs, and so-called "pelvic congestion", which I was told is varicose veins in the pelvic area. I've suffered from this my whole adult life, just not at a level to pester the medical profession. Since going gluten fee I've noticed that the veiny patches on my legs stopped throbbing, and the pelvic discomfort seems better too, although that is hard to distinguish from pain to ovarian cysts (which I also had) and from abdominal pain due to more classic celiac symptoms.

0

Share this post


Link to post
Share on other sites
Ads by Google:


My son and I, both celiacs have had problems with nosebleeds. I rarely get them since diagnosis, but for my son, they are a sure sign that he has been glutened. He is sensitive to lower levels of cc than I am. They go away again within 3 days or so upon removal of the offending food. He is on a very strict gluten free diet and every new food is added carefully, one thing per week with careful tracking of any symptoms. When a problem arises then it is time for careful eliminations.

He also gets too sick to attend school with all his other symptoms, so we don't go to all this effort just for the nosebleeds which could of course be caused by other things.

0

Share this post


Link to post
Share on other sites

sounds like nosebleeds are more common than I thought. I mention nosebleeds as one of my symptoms of Celiac Disease and everyone I've told is in awe and can't see how it relates to celiac disease at all. But I explain that you can have up to 300 different symptoms affecting any body part. I also used to suffer from severe and chronic yeast infections since I was 13. Those were awful. I'm now thinking it was because my immune system was low. I have no idea how long I've had celiac disease. I suspect a good portion of my 33 years of my existence. Besides the weight loss (I've gained all the weight back now, including more...) and the acid reflux, I have non-classic symptoms. Psychological problems, anxiety, brain fog, acne, bruising, restless leg syndrome, insomnia, anemia, fatigue, yeast infections, back pain, female issues among the nosebleeds. My nosebleeds come along suddenly at anytime, but often when I'm sleeping. Also when I take a shower, bend over, etc. Just had a minor one this morning. So annoying...

0

Share this post


Link to post
Share on other sites

My husband, who is not a celiac, has had trouble with nosebleeds his whole life. It's not as bad as you describe, but some similarities. There is definitely a connect to dry air, and to transitioning from cold to warm. (Dry, fragile vessels suddenly getting a flood of warm blood can burst.) He suspects his is partially due to what he suspects was an accidentally broken nose when he was young (5 or 6), but we'll never know. He also has mentioned using vaseline to help them, and being *very* careful about blowing his nose.

At the least, you might try a humidifier in your bedroom in the winter?

0

Share this post


Link to post
Share on other sites

Those nosebleeds are something else. I used to think that my son must be picking his nose to cause them, or at least initiate it. Then one time we were at the table together. His hands were nowhere near his nose and it just started gushing. I use humidifiers, and dehumidifiers and monitor the humidity and that does help somewhat. He doesn't get them too often anymore as we have gotten our diet under control.

0

Share this post


Link to post
Share on other sites

Yup, I also used to get terrible nosebleeds that wouldn't stop for literally hours. Looking back, there were multiple factors, including candida, dairy, and gluten. Nutritional deficiencies also played a part, though from what I can tell this was a lesser issue.

Thankfully, I haven't had even a single nosebleed in years.

0

Share this post


Link to post
Share on other sites

I do use a humidifier in my room and also use Ayr nasal gel, but still have nosebleeds. Like I said, they are much better now, but still come more often than I would like...

0

Share this post


Link to post
Share on other sites

I experienced these as a child, very embarrassing being taken out of class at school pouring with blood. Eventually homeopathy helped clear it up but I'm now thinking it may have been linked to celiac as I'm reading of several people who had it as a symptom.

0

Share this post


Link to post
Share on other sites

Did you also bruise easily and have you experienced tiny, pin prick like bruises?  I had both along with nosebleeds pro=ior to getting off gluten.  It was an immune disorder called idiopathic thrombocytopenic purpura or immune thrombocytopenic purpura.  Look up ITP and see if it fits.

0

Share this post


Link to post
Share on other sites

Interesting you ask that, at my last blood test my bruising lasted ages which for someone of 29 I found really odd! When I was rushed to hospital post knee surgery the ambulance lady remarked that I was a bleeder and have always found when I get a cut it bleeds a lot and is thin.

0

Share this post


Link to post
Share on other sites

Ive noticed improvements since going gluten free. As to the nose bleeding, I have that to. For a year or so was pretty bad to. Anyway still have them but no where near as bad as I used to. Of course Ive only been gluten free for a few weeks. I noticed however that taking hot baths will cause nose bleeding if I stay in the tub to long. I used to sleep in the tub when taking baths for an hour or even two at a time sometimes, given the hot water is so relaxing. So if the gluten had caused problems with my sinuses, and something has, as my nose stays stopped up about all the time. During long baths it seems the fumes from chlorine irritates my nose way more causing the nose bleeding. Just mentioning a connection there between chlorine fumes effecting a nose that's already inflamed because of gluten. Seems gluten intolerance causes IBS with often diarrhea as Ive had such for a few years. Read gluten damages the intestines causing that. Along with the dizzy spells as I read gluten causes the bodies antibodies against the gluten to attack the cerebellum which causes dizzies among other things. Also read gluten intolerance causes hypertension something I have as well. And of course my per-diabetes which can cause bad dizzies sometimes when eating sweet stuff,,while other times I can eat anything sweet, except anything with gluten of course. So gluten intolerance can cause lots of issues in many different areas. Including thrush tongue, something Ive had a few years now,, as Ive read the weak thin intestines damaged by gluten allows yeast into the blood stream that may settle different places in the body,,such as in the mouth. So theirs my two cents worth.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,675
  • Member Statistics

    • Total Members
      63,883
    • Most Online
      3,093

    Newest Member
    Stephanie kate
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
    • I don't know what you drank or where.... so here are a few thoughts. - sure, a dive bar might have dirty glasses and serve a cocktail in a beer glass?  But a nice reminder place, with a dishwasher, should be fine.  If it's a sketchy place, Stick to wine, then it's served in wine glasses that aren't used for beer or bottled ciders in the bottle.   - ciders on tap might, just a slight chance, have an issue.  Because of beer on tap, mixed up lines, etc. - you may have a problem with alcohol - you may have issues with The  high sugar content of the drink.  I know I have similar issues if I drink serveral ciders of extra sugary brands - are you positive it was a gluten-free drink?  Not this " redds Apple" pretending to be a cider - it's beer with apple flavor.  Or one of those " gluten removed " beers?  
    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
  • Upcoming Events