• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Canker Sores
0

12 posts in this topic

I have had canker sores ever since I was a little kid. Recently (past 6-9 wks) I have at least one if not several at a time. In doing some research on canker sores I have found that the is a connection with celiac disease. My other symptoms that could be related are abdominal pain and bloating, gas, fatigue, muscle aches, mental fog, depression, anxiety, sleep problems. I also have PCOS which can cause a lot of the same stomach and fatigue issues. I recently had my labs done and my CRP was 29! My Dr did not think much of it due to the fact that at that time I was eating way to many carbs for someone with PCOS. Long story short, has anyone else had issues with canker sores? I can not get back to the Dr until mid March and am trying to plan what I will address with him. Thanks for any input

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My daughter (who refuses to get tested for celiac) has been plagued with canker sores her entire life. They became especially troublesome in her teen years, and her dentist told me, "These aren't normal canker sores. Your daughter has some type of auto-immune disease." My mother, son, and I all have celiac....and my daughter has been diagnosed with IBS of the small intestine. I strongly suspect that the canker sores are the result of celiac.

0

Share this post


Link to post
Share on other sites

Yes, I have had cancker sores. When I asked doc if there was anything I could do for them he told me there was not. Online info said to avoid toothpaste with a certain ingredient which my toothpaste did not have so I figured it wasn't the toothpaste. I found another site that said to take 1000 mg of l-lysine daily, treid that and it worked in just a matter of days. As soon as they went away I stopped the lysine and so far (crossing my fingers) they ahve not come back!

0

Share this post


Link to post
Share on other sites

I have had canker sores ever since I was a little kid. Recently (past 6-9 wks) I have at least one if not several at a time. In doing some research on canker sores I have found that the is a connection with celiac disease. My other symptoms that could be related are abdominal pain and bloating, gas, fatigue, muscle aches, mental fog, depression, anxiety, sleep problems. I also have PCOS which can cause a lot of the same stomach and fatigue issues. I recently had my labs done and my CRP was 29! My Dr did not think much of it due to the fact that at that time I was eating way to many carbs for someone with PCOS. Long story short, has anyone else had issues with canker sores? I can not get back to the Dr until mid March and am trying to plan what I will address with him. Thanks for any input

Yes! I've had those little white canker sores since I was a kid too. I always thought it was from a herpes virus 'til just yesterday I read about them being tied to celiac. I would also get swollen lymph nodes just under my jaw on whatever side of my mouth had the sore. I always got them on my inner lip or gums. I thought I was just weird all these years with all the odd pains I sometimes get but now maybe I will have an answer. What other symptoms do you have, if any, that seemed weird to you until you linked them to celiac?

0

Share this post


Link to post
Share on other sites

Yes! I've had those little white canker sores since I was a kid too. I always thought it was from a herpes virus 'til just yesterday I read about them being tied to celiac. I would also get swollen lymph nodes just under my jaw on whatever side of my mouth had the sore. I always got them on my inner lip or gums. I thought I was just weird all these years with all the odd pains I sometimes get but now maybe I will have an answer. What other symptoms do you have, if any, that seemed weird to you until you linked them to celiac?

Yes. I got them a lot too. I've only been gluten free a short time but no canker sores since going Gluten-free. I did also switch to the a toothpaste without SLR because I was so fed up with the painful mouth sores and trying everything. I use Pronamel toothpaste.

0

Share this post


Link to post
Share on other sites
Ads by Google:


My son had frequent canker sores that started as a toddler -- until he went gluten free at 15. Three years later -- he now only has them on rare occasion -- just prior to a cold/flu bug.

0

Share this post


Link to post
Share on other sites

I usually take the L-lysine 500mg twice a day because your body can not digest 1000 mg at a time. This used to help me in high school, but not touching me now. As far as my other symptoms: tired ALL the time, insomnia, hungry all the time- even after eating a full meal, headaches, mind fog, adbominal pain, bloating, constipation. I also have PCOS and have 2 small children, work full time, and am in full time grad school. I have been blowing off the symptoms thinking they were all related to that. I have had many stressful events in my life, but have never had constant canker sores. Recently I was put on a low carb "lifestyle" change for my PCOS and that has made a difference with my abdominal pain and bloating. I am not really strict, I am just more mindful of not eating breads and pasta. I see my Dr this week and was going to talk to him about it. Last year when I had my labs checked my c-RP was 29!! that can happen with PCOS, but it is a little scary to me considering I am only 33. What other tests should I ask for?

0

Share this post


Link to post
Share on other sites




I usually take the L-lysine 500mg twice a day because your body can not digest 1000 mg at a time. This used to help me in high school, but not touching me now. As far as my other symptoms: tired ALL the time, insomnia, hungry all the time- even after eating a full meal, headaches, mind fog, adbominal pain, bloating, constipation. I also have PCOS and have 2 small children, work full time, and am in full time grad school. I have been blowing off the symptoms thinking they were all related to that. I have had many stressful events in my life, but have never had constant canker sores. Recently I was put on a low carb "lifestyle" change for my PCOS and that has made a difference with my abdominal pain and bloating. I am not really strict, I am just more mindful of not eating breads and pasta. I see my Dr this week and was going to talk to him about it. Last year when I had my labs checked my c-RP was 29!! that can happen with PCOS, but it is a little scary to me considering I am only 33. What other tests should I ask for?

Sorry to have to ask, but what is CRP? Regarding the PCOS, you might want to research iodine deficiency. Some doctors claim that's what causes PCOS as well as fibrocystic breasts and thyroid issues. Celiac may have something to do with those things as well, so the iodine is kind of a whole other topic but these doctors say thay have cured these things with iodine supplementation.

0

Share this post


Link to post
Share on other sites

Canker sores ? Is that the same as mouth ulcers? I had no idea it could be related to Celiac....I've never had them before, this past week I've been struggling with them inside my cheeks, tongue and palate.....Very hard to eat with this.....The pharmacist told me to use Peroxyl mouthwash.

Besides all the other symptoms like diarrhea, abdominal pain, muscle cramping and weight loss; how miserable does one have to get to start feeling better? I think depression is setting in because of lack of sleep. Guys, this is miserable.

Sorry to be such a crybaby.

0

Share this post


Link to post
Share on other sites

Sorry to have to ask, but what is CRP? Regarding the PCOS, you might want to research iodine deficiency. Some doctors claim that's what causes PCOS as well as fibrocystic breasts and thyroid issues. Celiac may have something to do with those things as well, so the iodine is kind of a whole other topic but these doctors say thay have cured these things with iodine supplementation.

C-RP is c- reactive protein. Normal is 0, 3-5 is a mod risk for heart disease and >5 is a high risk for heart disease. It signifies inflammation and atherosclerosis. My thyroid has always been in the normal range. I have never heard of iodine def causing PCOS. It is caused by insulin resistance and endocrine problems. I will check into the iodine deficiency theory.

0

Share this post


Link to post
Share on other sites




I had canker sores my entire life. I'm kind of a research nerd, so I've spent a lot of time looking into it. Prior to my own diagnosis, I came across research indicating a zinc and B vitamin deficiency as a possible culprit, along with sodium lauryl sulfate in toothpaste. I did take supplements for a time, but once I eliminated gluten, I had no more canker sores at all. I continue to use sls-free toothpaste (Xyliwhite by NOW) because sls isn't something we should be putting in or systems anyway. I can see the vitamin deficiency being a possible secondary cause, since there is a related absorption issue. But to further back this up, I just recovered from slowly glutening myself over the course of months. Once it reached critical mass, my face, head and shoulders erupted in painful blemishes, which I'd been prone to my whole life, but never bothered to look up until this time I also broke out in the tell-tale stomach rash. Most relevant to your post though, I got a couple of canker sores too. They began healing immediately and went away once I identified the hidden offender (wish I could say the same for the dh around my hairline!) I hope this helps.

0

Share this post


Link to post
Share on other sites

I usually take the L-lysine 500mg twice a day because your body can not digest 1000 mg at a time. This used to help me in high school, but not touching me now. As far as my other symptoms: tired ALL the time, insomnia, hungry all the time- even after eating a full meal, headaches, mind fog, adbominal pain, bloating, constipation. I also have PCOS and have 2 small children, work full time, and am in full time grad school. I have been blowing off the symptoms thinking they were all related to that. I have had many stressful events in my life, but have never had constant canker sores. Recently I was put on a low carb "lifestyle" change for my PCOS and that has made a difference with my abdominal pain and bloating. I am not really strict, I am just more mindful of not eating breads and pasta. I see my Dr this week and was going to talk to him about it. Last year when I had my labs checked my c-RP was 29!! that can happen with PCOS, but it is a little scary to me considering I am only 33. What other tests should I ask for?

My daughter's canker sores were debilitating enough that her physician eventually sent her to Mayo Clinic for a diagnosis--iron malabsorption. Her ferritin, % of saturation and iron levels were way out of the normal range. When she gets a supplement that she can absorb, her canker sores are gone. Yes, I know, it screams to me of a gluten problem, but her celiac panel was negative. You don't argue with Mayo.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,321
    • Total Posts
      935,471
  • Member Statistics

    • Total Members
      64,982
    • Most Online
      3,093

    Newest Member
    RocioC
    Joined
  • Popular Now

  • Topics

  • Posts

    • So I have one pesky symptom that in the last few years has cropped up and never gone away. Lack of motivation to do some very basic things. So basic it's embarrassing to talk about. I barely manage to do a lot of adult tasks these days. It's a real stretch. It's like something is blocking me. Anyways, so I'm talking to my psych and she suggests adderal for it as we've tried lots of different avenues for this issue and none have helped. My bipolar is totally under control, for an entire year so far. My anxiety is ok with a script. It'll be even better once I get one major thing that I won't get into here taken care of. But I'm not the super motivated, extremely hard working person I used to be. It really changed basically when I got sick about 9 years ago. So, does anyone else take adderal? I've got the pills next to me but worried to take them. Not sure why. Any help, advice, reassurance is welcome.
    • Yeah I need someone to attend with me, I had someone else but they canceled on me. The hotel room is booked from the 16th-20th of August. I can pick up from the airport, greyhound, or train station and drop off if need be, room is booked from the 16th technically a day before the convention so you have time for sightseeing. Room is a double queen and you get your own bed. It is a anime convention with many Japanese guest this year, I will provide snacks, meals, etc with the room fee and I will accept paypal, credit card, or cash. Meals will be made decided on after talking with whoever is rooming with a diet build around what you can eat. The room will be gluten, corn, dairy, and peanut free. I do bring a chef kit with me including griddle, steamer, rice cooker, etc.
    • No anti-sm(lupus)? Yes, anti dsDNA is for SLE(lupus). No ENA panel,anti-RNP, anti-SS-A, anti-SS-B, anti histone, scl-70, etc? I'd ask for a referral, if you feel that there is something going on. I think that would be a logical step because of the positive ANA and lack of investigation. 1:640 is definitely positive. 
    • My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary. 
    • Hi there!   I follow a low histamine diet that Cycling Lady brought to my attention a long time ago.  Citrus fruits and their juices are histamine releasing foods.  High histamine levels can cause hives just like in an allergic reaction.  Here's a helpful site:   https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ I don't drink orange juice because because of the hives and stomach upset I get from it, and also because I'm type two diabetic and my system can't handle all the sugars in it.  High glucose contributes to inflammation. I also avoid things with added flavors and scents because they often contain sulfur components like sulfites or sulfates.  Corn products are often processed with sulfuric acid.  Some Celiacs, like me, develop a sulfite sensitivity.  Here's a helpful site:  http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/ Garlic and onions are high in sulfites.  People who can't tolerate foods high in sulfites are often deficient in a trace mineral, molybdenum.  Molybdenum is also involved in blood production.  Here's another site:  http://www.whfoods.com/genpage.php?tname=nutrient&dbid=128 So, there's not always a simple answer.  I'm leary of processed foods because you don't really know how they're processed and what really goes into them.  I'd rather stick to fresh foods.  Hope this helps.
  • Upcoming Events