• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Confused About Gluten Free Products..
0

Rate this topic

12 posts in this topic

Recommended Posts

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Many of us avoid all gluten because it is just not worth the risk of getting shampoo in your mouth when showering, or gluten off your hands from lotion or gluten in watering eyes from mascara. It doesn't mean we would react but it just seems so much easier for me to get the gluten out of the house entirely and not even think about it.

Share this post


Link to post
Share on other sites

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

Share this post


Link to post
Share on other sites

I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!

How do we go about finding out if our daily favorite products for skin, hair, makeup etc. contain gluten? It makes sense to not use topical gluten as our skin absorbs these products. :(

Share this post


Link to post
Share on other sites

You need to familiarize yourself with all the different ways that gluten hides. Anything that says wheat, oats, barley, avenin (oats) is of course out, although some claim hydrolyzed wheat protein is okay but I avoid it. You can call or email the manufacturer or there are iphone apps available. Here is a link: http://www.quora.com/Where-can-I-find-gluten-details-for-ingredients-commonly-found-in-beauty-products that has other links.

Share this post


Link to post
Share on other sites
Ads by Google:


Quite frankly, I don't believe the "experts" who say that gluten must be ingested to cause DH. There simply have been no real studies done on this. All I know is that if I use a shampoo that contains wheat, my scalp and face break out all over in DH. Back when I didn't know I had celiac, I wore lipstick (only in my teens)....and my lips would swell up and turn purple. It wasn't from ingestion of gluten--it was from the gluten touching my lips. DH is quite a different animal from celiac, I believe, and it definitely needs to be studied more.

  • Upvote 3

Share this post


Link to post
Share on other sites

I am newly gluten free. I understand I cannot eat anything with gluten and have been doing okay with all of that but I am confused about topical gluten, if that even makes sense ha. I have heard two things, you cannot have any makeup made with gluten touch your lips. I have also heard you cannot use anything with gluten on your body period. I do get the DH rash, but I have never found it came from a certain product, so I assume it was the food I was eating. Could some explain this to me please :)

That is very astute of you to recognize the connection between a DH break-out and it being connected to the food you are eating! That is supposedly the way it works as the reaction comes from within but I think that anyone who has skin issues with Celiac probably runs a higher risk of having an additional wheat allergy, which is different to an intolerance. Coming into contact with the offending product would cause that type of reaction.

You must not use gluten containing lip products, whether you have DH or classic Celiac. You ingest what you put on your lips and that's why you have to screen lipstick. As far as body lotion is concerned, that can be personal choice but you have had issues with skin products so you might want to find one that isn't a problem and just stick with that. I always screen hand lotion, for obvious reasons, and just use that on anything else. Otherwise, I don't worry about stuff I won't ingest.

Share this post


Link to post
Share on other sites


Ads by Google:


Another ingredient to look out for that is derived from wheat is panthenol, and I agree with mushroom and rosetapper23!

Share this post


Link to post
Share on other sites

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

Share this post


Link to post
Share on other sites


Ads by Google:


Welcome to the board Bellanovia. It's amazing the things we learn are connected to celiac. So many things make sense now that I couldn't figure out before or that I thought were just an odd problem I had.

Share this post


Link to post
Share on other sites

I also agree with mushroom & rosetapper23 & ciamarie!

Another reason not to use gluten containing topical ingredients is that Vit E is absorbed through the skin. Now if that Vit E happens to be wheat derived then what do you think is going to happen?

I have dh ~~~ I know that NOW. But for 7 or 8 years I have not been able to wear makeup of any kind. It would itch me so! And my face, particularly my eyes would swell up. I would wear it, come home & right away wash it off ~~ still had reactions. Tried 20 or 30 products ~~~ with the same results. Guess what? Now that I found out I am celiac & with dh & looked for gluten-free makeup. I found Afterglow (online) which is gluten free ~~~ pricey but gluten-free. I tried it. I'm a very happy girl! For the first time in years & years I can wear makeup. It's like a miracle.

OH MY GOSH!! I used to use certain makeups that would make my face itch and turn bright red and I just wanted it off asap! I wonder if it could have been something with the gluten...however, now I wear numerous different kinds. So is most foundation contain gluten? :(

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,156
    • Total Posts
      939,972
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you all for your great suggestions! Will take all of it on board
    • Dairy is a major issue with celiac, due to the enzymes to break it down being produced by the villi tips being mostly destroyed or damaged first. Eliminating for a few months may be critical. I might suggest digestive enzymes, I am taking Jarrow Enzymes at 2x the dose, Jarrow Bromelain, and sometimes some extra papaya enzymes. I have issues breaking down the large amounts of foods I consume otherwise (I am trying to body build bulk). I also would look at some protein powders if I was you. Vegan protein powders are easy to digest most times an can be great. Pumpkin Seed protein is the easiest on the stomach, being a balanced PH, high in zinc, iron, magnesium, it is very good for recovery and putting on weight in addition to others. Might also consider blends, try not to get anything with too much gums in it. I like NutraKey V-Pro and MRM Veggie Elite. I also buy a whole list of others. On her food, veggies, and meats should be cooked to almost mush, try using a crockpot and stewing them. This will make them easier to digest and break down.
      Is she having any other issues? Like Bowl issues? I find I can loose hunger if I back up, and I have to take magnesium like crazy and eat a whole lot of fiber to keep it moving. Take it you already read the newbie 101 section about getting all new cookware, and deconing the house? Bit of a extra tip I swear by to everyone, Freezer Paper/Butcher Paper. Makes a nice clean prep surface and easy clean up.
    • Hi Kirsty, Gluten messes me up in a lot of different ways, some of which I recognise in your first list. You can find a massive list of symptoms associated with celiac here: https://glutenfreeworks.com/gluten-disorders/symptom-guide/ and it may be that some of your other symptoms can be found there. It's also worth searching this forum as it's been going for a long time, in internet years at least.  It certainly messed with my blood sugar and like you I'd take tests which didn't reach the extreme values, but that didn't stop the symptoms. The only way I realised this was when I removed it from my diet, for other reasons and found that a load of different other symptoms also resolved.  After this happened I then went back on to gluten for a test, a gluten challenge. My symptoms came back, but my blood test and endoscopy were negative for celiac. My consultant told me to avoid gluten for life.  In your case you need to decide whether to push for more celiac testing or not. If not, please consider fully excluding gluten. My own experience is that it's not something that you can have a little of and get a health benefit, you are still engaging your auto immune system. Obviously if you're experiencing extreme symptoms when you remove it you should do it in consultation with your doctor, but maybe if you could just get through those difficult first few days you may experience relief from some of your symptoms? Best of luck matt    
    • So... his gp did a genetic test - positive - and has referred him to a gi. His paed and diabetes educator have ordered the genetic test and another coeliac screen for 3 months and then they will decide if he needs to see a specialist because they're still convinced its most likely a false positive. Why test at diagnosis of diabetes if they don't believe the results anyway? Why is this disease so confusing for the medical world?  Anyway we're sticking with the gp and hopefully it won't be too long before he gets into a gi.  It seems that blood tests don't matter in any situation. If they can find any excuse to invalidate them they jump at it.  Makes me so infuriated I just laugh about how I already seem to know more. 
    • Thank you! I have been considering lactose, though I'm reluctant to remove more things from her diet. She has not had the classic lactose intolerance symptoms of diarrhea, gas, or bloating, though I know she could still have trouble with it. She's been on the medication for less than a week, so it's not the cause of her symptoms. I did not call the manufacturer but it is listed as safe on glutenfreedrugs.com (under the brand name periactin). It was prescribed by a pediatric GI who specializes in celiac. The first question my daughter had for the doctor was whether the medication is gluten-free, and she told us it was.   
  • Upcoming Events