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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Back From Ct

2 posts in this topic

We were in Danbury, CT all last week visiting my FIL. Overall the trip was really good and we had a nice visit with my FIL and his wife. We went to Mystic Seaport and had a great time and we couldn't have asked for better weather that day. It was beautiful out. My hubby had misunderstood his dad's directions and we were headed to Boston before we realized we had missed our exit. Hubby was ticked but later we laughed about it. The rest of the time we spent visiting, swimming and hanging out in the hot tub. Friday morning we had to move rooms abruptly because water started pouring out of the celing over our bed. Someone above us plugged the toilet and it was overflowing. When we checked out on Sunday we noticed we didn't get charged for the last two days! On the way home we got side swiped by another car on the interstate. It scared the kids and myself, but everyone was fine. The other car pulled off behind us after the accident. They were nice people and were concerned. There was hardly any damage to our car(some scuffed paint), so my husband told the other people he didn't want to report the accident. They were happy with that and we went on our way.

Whenever we travel we always pack food and a cooler. We also stayed in a suite with a kitchenette so that was a huge plus. I couldn't believe the availability of products in that area. If you can imagine it, you almost certainly can find it. I went to the local Trader Joes. Honestly, I wasn't all that impressed. What I did find to be the most awesome place was a store called Stew Leonards!! OMG, I could spend all day in that place!

The boys and I survived my inlaws place without getting glutened. However, all three of us got zapped at a restaurant in Mystic on Wed. night. It wasn't to bad of a reaction for us luckily. Nothing a few zantac and gas ex didn't help. I'm still not quite right but at least I didn't get hit with major D. Youngest boy had a belly ache and oldest boy was had a lot of gas pain and bloating. Friday night my oldest boy broke out in hives head to toe. We battled the hives till we got home last night. I broke down and took him to the ED because he was so miserable. He got an epi shot and steriods and was sent home with a RX for steroids to take for the next 4 days. I checked with the allergist this morning and said there wasn't anymore he could do at this point, but to check in next Monday and we would go from there. I'm not sure if it is one of his diagnosed allergies causing a flare or something he ate. To our knowledge he doesn't have any food allergies.

So overall we had a great time even with all the mishaps. They make for a more memorable time. :lol: :lol:


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I'm heading to Mystic next week - can you tell me where you got glutened?? Thanks!


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    • My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary. 
    • Hi there!   I follow a low histamine diet that Cycling Lady brought to my attention a long time ago.  Citrus fruits and their juices are histamine releasing foods.  High histamine levels can cause hives just like in an allergic reaction.  Here's a helpful site:   https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ I don't drink orange juice because because of the hives and stomach upset I get from it, and also because I'm type two diabetic and my system can't handle all the sugars in it.  High glucose contributes to inflammation. I also avoid things with added flavors and scents because they often contain sulfur components like sulfites or sulfates.  Corn products are often processed with sulfuric acid.  Some Celiacs, like me, develop a sulfite sensitivity.  Here's a helpful site:  http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/ Garlic and onions are high in sulfites.  People who can't tolerate foods high in sulfites are often deficient in a trace mineral, molybdenum.  Molybdenum is also involved in blood production.  Here's another site:  http://www.whfoods.com/genpage.php?tname=nutrient&dbid=128 So, there's not always a simple answer.  I'm leary of processed foods because you don't really know how they're processed and what really goes into them.  I'd rather stick to fresh foods.  Hope this helps.
    • No, no, no!  Don't cut yourself off from your friends and social life because you feel you can't eat what everyone else is eating!  I can't think of a single bar or restaurant I've been to where I haven't found something to eat.  It may not always be what I would like to order/eat, but I'm not sitting without food while everyone else is eating!  If I'm going to a private party or someone's home where I'm concerned about food selection, I bring my own, tell the hostess and without making a big deal of it, eat what I brought.  Other times I eat a bit before I go, snack on the veggies or other obviously safe food,  and eat when I get home. If I go shopping for the day or somewhere that it's difficult to pick up a quick gluten-free snack, I put a piece of fruit or a gluten-free granola bar in my purse in case I get hungry.   It's only a big deal if you make it one.  I have been gluten-free for 7 years.  My attitude about food is now this:  eating out is strictly a social event. I always find something to order though at times it seems the gluten-free selections are kind of bland, but I won't go hungry.  If I want a good, tasty meal, I make it for myself at home.  There is nothing that I can't duplicate in my kitchen in a gluten-free version.   It's only been a couple of months for you so I'm hoping you will gradually see that this becomes such a way of life that you won't even give it a second thought.  Your meal prep will take less time as you grow accustomed to this--any new diet takes time to learn.  Good luck and hang in there!
    • Amazing!  You should feel very optimistic!  It sounds like you are doing everything right...great job!!😊😊😊😊
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