• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease Or Brain Tumour
0

6 posts in this topic

Hello All,

I am quite new to the world of Celiac Disease. I am currently in the process of having my blood tested and I have to wait until March 16th to get the results. (I am currently living in Vietnam and they had to send the tests away). That means almost 3 more weeks to wait. What I am experiencing now is frightening the daylights out of me. I am not sure if I should keep waiting for the blood results or go to the doctor for a CT scan of my brain. I am hoping that someone who has Celiac can tell me if this is normal. I should add that I just started this morning on a gluten free diet.

What is happening is that my brain feels like it is floating above my body. Sometimes I get dizzy and sometimes, when I am looking at something, the picture of what I see sort of "flashes" to the next scene. I am also forgetting the simplest of things (what I had for dinner 2 nights ago, that I left the water running in the sink for the dishes, important things I am supposed to do etc.) This is very unlike me to forget anything. In my head I am, of course, thinking brain tumour.

If anyone else has experienced this I would love to hear from you. Is this something that could be typical of Celiac. I have read about "Brain Fog".

Thanks for your input. I look forward to hearing from you.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


There you are, Cate! Welcome to the forum!

Se if you can get check for vitamin deficiencies. Or if that's difficult, just assume you have them and try and supplement. Celiac makes it hard to take in the nutrients you need. Anemia, low B12, iron, etc can make you dizzy & foggy.

0

Share this post


Link to post
Share on other sites

some have neurological symptoms from gluten

google hadjivassiliou and he explains the antibodies and mechanism

0

Share this post


Link to post
Share on other sites

some have neurological symptoms from gluten

google hadjivassiliou and he explains the antibodies and mechanism

THank you - I will check that out. I am going crazy :(

0

Share this post


Link to post
Share on other sites

See how you feel on the gluten-free diet. I can understand the worry about having a brain tumor. I'm sure most people on here have thought they have had some terrible disease because of this. I thought for sure I was going to get cancer. But now I feel like I'm on my way to being so much healthier. I had brain fog for as long as I can remember. I've had dizzy spells too. I would sleep a lot and get migraines. Since going gluten free I've had maybe 2-3 migraines since. For me the whole brain fog thing feels like my brain was sitting in dirty dish water. My memory was getting worse. Usually when you can't remember something you know if you really think about it it'll come back to you. Well it was getting to where when I couldn't remember something it felt like my brain just deleted what I was trying to rememeber. Be patient and take things a step at a time. I know it's hard not to worry but if you worry too much you're just going to upset yourself. There is a lot to learn and it can be overwhelming but the people on here are very helpful and sweet. If you have any questions just ask and we'll try our best to help :)

0

Share this post


Link to post
Share on other sites
Ads by Google:


See how you feel on the gluten-free diet. I can understand the worry about having a brain tumor. I'm sure most people on here have thought they have had some terrible disease because of this. I thought for sure I was going to get cancer. But now I feel like I'm on my way to being so much healthier. I had brain fog for as long as I can remember. I've had dizzy spells too. I would sleep a lot and get migraines. Since going gluten free I've had maybe 2-3 migraines since. For me the whole brain fog thing feels like my brain was sitting in dirty dish water. My memory was getting worse. Usually when you can't remember something you know if you really think about it it'll come back to you. Well it was getting to where when I couldn't remember something it felt like my brain just deleted what I was trying to rememeber. Be patient and take things a step at a time. I know it's hard not to worry but if you worry too much you're just going to upset yourself. There is a lot to learn and it can be overwhelming but the people on here are very helpful and sweet. If you have any questions just ask and we'll try our best to help :)

Thank you for the info. Have you had any testing done?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,759
    • Total Posts
      932,240
  • Member Statistics

    • Total Members
      64,224
    • Most Online
      3,093

    Newest Member
    Pameela Moore
    Joined
  • Popular Now

  • Topics

  • Posts

    • These results, assuming you have been on a gluten free diet since the original tests in 2015, likely mean you are still being exposed to gluten which is why you still feel shitty.  Go see a GI or go on a non processed gluten free no going out to eat strict diet for 3 months and see how you feel. 
    • Kitty!  Thank you so much!  Reading these words is so reassuring....  I've had a horrid weekend googling 'white spot on tongue'  - so many horror stories about such a symptom.   I then read a few more articles which were more balanced and gave other things - such as teeth grinding and sharp teeth being a cause, which for my sanity's sake I'm trying to focus on!  Esp. as said sore is remaining stubbornly on my tongue! I must thank you for the links, too. Fascinating: In one it talks about 'Crazy muscle cramps in the form of stabbing pains in toes, calves, arches of feet, and backs of legs.' The Deficiency: Magnesium, calcium, and potassium. "If it's happening frequently, it's a tip-off that you're lacking in these,"  That's absolutely incredible - I never knew that, as at night I am being woken by these pains in my toes and feet.  Thank you so much.  I did used to supplement these things and have stopped.  I will look into this and try to eat more healthily and supplement too in the short to medium term while I recover.   I'm off to see my doctor tomorrow so having this information that you have sent in mind will be so helpful.   My tongue is the weirdest colour - my dentist spotted it straight away and said, 'Wow, you are anemic'.  So if my ferritin is low - which I know it is  - I'm probably running other deficiencies too.  Thank you so much again for taking the time to post. Cristiana x
    • If you need any suggestions for gluten free equivalents just ask. Lots of different opinions on foods here.
    • Thank you so much for saying that. I don't deal well with unexpected things and getting a phone call saying hey we want you to go to the hospital for an endoscopy has thrown me for a loop. I googled celiac and everything mentioned cancers, chirosis, and lots of scary stuff. It caused me to go into a panic. 
    • Having celiac means you have to buy brand b instead of brand a. A diagnosis for most people just means they have to go gluten free. Think of it in phases. phase 1 - eat all of your favorite stuff with wheat, barley and rye until after the official diagnosis. phase 2 - eat stews and simple foods until your symptoms go away. phase 3 - eat whatever you want as long as it's gluten free. There's lots of great tasting equivalents to the stuff you're used to. Barilla pasta, Canyon Bakehouse bread, Betty Crocker cakes.   Oh, and the endoscopy is easy peasy.
  • Upcoming Events