• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gi Symptoms & Behavior
0

4 posts in this topic

Hello! I'm brand new to the gluten free world and have been looking for answers. I went and got tested today (6 vials of blood!) from my family doctor and in a few weeks the results will come back, then the allergist, blah blah blah and etc. After reading a couple of posts, I'm glad I'm not alone with my weird mood swings and no longer feel like a hypochondriac! My roommate and friends believe that I am one since I have a headache every day and my stomach hurts after every meal. Nice support system eh? Haha.

So my symptoms, and I by no means have it as bad as some other people, but answers are comforting and help my confused mind.

When I eat a ton of bread I go through these very weird mood swings. I'll be best friends with everyone, feeling good etc, and then within a 5 minute turnaround, I turn into this straight up witch. This usually lasts for a couple of days (and it's mainly aimed at my roommate and the only adjective I can describe is loathing). Bloating happens in there and then the uncontrollable and never ceasing urge to pass wind. It's quite embarrassing. And then I go back to normal, until I have more gluten-rich meals. I'd say this happens at least once every two weeks.

Aside from that emotional rollercoaster, Sidenote, I literally went and got an epi pen when I found out that I'm HIGHLY allergic to peanuts. Like, go down the peanut aisle and my eyes start to water and my stomach starts to...burn? It feels like a feral cat was let loose and is scratching its way out...unsuccessfully. So recently, I've started to notice that I break out in hives and get the feral cat stomach after eating foods. Bananas, grape soda, gardetto's original mix, tortillas, mac and cheese, and more that I cannot think of at this moment. I love Buffalo Wild Wings and usually order the honey bbq crispy chicken wrap, and then suffer the acid reflux consequence a few hours later. Last week I took part in this and it triggered a migraine along with the FC stomach, hives, and a long night of being in serious discomfort.

Like I've mentioned, I am seen as a hypochondriac. It's extremely frustrating to have no one believe me, except for the quirky nurse today who finally found someone (moi) who has the same issues as herself.

Also, randomly, my left leg goes numb from time to time. I can be sitting cross legged, and only my left foot is numb - not my right. I don't have diabetes (was already tested) and just find it peculiar that this happens.

Sorry if this is a long post, like I've mentioned previously, just looking for answers/others who have similar symptoms.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Carpe...

My symptoms are mostly neurological but I seen your post and wanted to bump it up. Perhaps others with more similar symptoms will see it and respond.

You must have felt great after talking to the nurse and getting validation for your symptoms. :)

Welcome to the forum.

0

Share this post


Link to post
Share on other sites

Hi Carpe

I've only just seen your post. Your symptoms are fairly similar to mine. I wouldn't have said that major mood swings was my number one symptom, but it was definitely part of the mix. I rather find mood swings are worse now if I get glutened, rather than before I went gluten free. My major symptoms were migraine and chronic joint and muscle pain. Reflux, abdominal pain, gas and bloating were all there, and chronic, but never at the level where when I grumbled to a doctor, they always found some other cause (ovarian cysts, consitipation, appendicitis - the latter was a misdiagnosis, the others were problems secondary to gluten intolerance).

After suffering these chronic problems my whole adult life, things started to escalate about 3 years ago. The stomach issues got worse, the migraines got worse, and I suffered more frequent episodes of major migraine with vomiting and D, plus huge back and hip pain. Whilst I had always suffered from chronic fatigue, I managed it. This now got worse, and I started to feel really ill.

When it started to get worse, I had a frozen shoulder which took about a year of steriod injections, anti-inflammatories and physiotherapy to recover. Then after another year, the other shoulder went. This time it did not respond to treatment, and that led by a circuitous route to my "diagnosis" which is presumed rather than confirmed because I am sero-negative to the antibodies and my doc asked me to trial a gluten free diet rather than send me for biopsy....During this time I would wake up and my arms would be numb. My shoulders are now recovered, and the numbness did go too, but I am still a bit creaky and these problems do flare up again quickly if i get glutened.

A few months before I went gluten free I developed chronic sinus pain (after having had a drippy nose for a couple of years). Then I suddenly started getting a photosensitive rash, then a burning rash on my face, then hives. The hives continued for a little while after going gluten free, and I noticed a reaction to either tomatoes or, more likely, nuts. This reaction to these foods did not last, and I no longer get hives or photosensitive rashes. The burning face comes and goes, and seems to vary with trace gluten exposure. The sinus pain and drippy nose has lessened but is still there after 6 months gluten-free. I have found that anti-histamines help with this. It is possible, even common, for celiac to go hand in hand with allergies. Sometimes the allergies will settle down once your system calms down once it has been on the gluten free diet for a while. IrishHeart has posted elequently on this issue on a number of occasions.

Whilst I wouldn't wish celiac on anyone, I do hope that you find the triggers for your symptoms and can successfully eliminate them.

0

Share this post


Link to post
Share on other sites

I definitely had a lot of neurological symptoms before my diagnosis and they seemed to have gotten worse after going gluten free and accidentally being exposed. I had tingling in my hands and would get terrible cases of sciatica and would even faint - the doctors diagnosed me with syncope. All these random symptoms didnt make sense until I was diagnosed with Celiac. Now, when I get exposed to gluten, I become a raging b**** and my family just knows to clear out of the way. My fiance, bless his heart, has been very good about it and just understands that its going to happen - he runs, hides, and starts playing video games with his headset on.

No, you're not a hypochondriac and I think its pretty clear that you have issues with gluten which would definitely explain everything you're describing. Do your symptoms subside when you're not eating gluten? I think you have your answer right here! Welcome to the forum!!! :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,396
    • Total Posts
      930,324
  • Member Statistics

    • Total Members
      63,814
    • Most Online
      3,093

    Newest Member
    MH0730
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks to both of you for your replies. I wasn't so much concerned about the arsenic (although that is an additional consideration) as I was about the glycemic level. I don't bake enough to make blending my own flour blends worthwhile, so I will definitely check out the links you provided, Ennis_TX. So far I'm tolerating oats and my gastro doc says I can keep eating them as long as they're certified GT. I just looked at some crackers I have for hummus and noticed their main ingredient is rice. I should probably just eat the hummus with veggies!
    • I agree with Ennis.  It sounds like she is getting access to gluten way too often to expect healing.   I had some pretty severe patches of intestinal damage when I was diagnosed.  Anemia was my symptom and I had no gut issues then.  So, just because she injests gluten and does not have some major symptoms right away, does not mean she is not building up antibodies.  Have those antibodies been re-tested to see if they are in the normal ranges now?  Missing patches of damage in the small intestine is possible.  Heck, the small intestine is the size of a tennis court (goggle it).  So easy to miss.  Also, your GI should have taken more than four samples?  How many were taken? (Forgive me, if I have forgotten.) Cross contamination in your house is real, especially if you have kids in the house.  Member Jebby, a preemie doctor who has celiac disease, was not getting well.  Turns out her four small and adorable children were glutening her.  She made her house gluten free.  Just something to consider.   You mentioned she had access to gluten at a party.  So, does that mean she caves in and eats it?  She needs to become a stakeholder in this diet.  
    • I think that if you soaked in the paddle in vinegar and scrubbed it a few times, you will be fine.  But if in doubt, just set the mixer aside for a while until your family's health has improved.  In the meantime, use your arm to mix dough!  My grandma never had a mixer!   I bought a bunch of new stuff because I had been married for 25 years when diagnosed.  It was time for new things!   Everyone is different in their response to gluten.  Science has given us a good estimate, but we know that nothing is "one size fits all".  You just have to figure out what is best for you and your family.   My anemia resolved within months of being gluten free (ferritin levels).  I still have Thalassemia, but it is mild and my body has adapted.  It is most likely the one reason that I never made the Olympic team!  😆 BTW, family and friends are not allowed to bring in gluten into our house with the exception of beer.  They can contribute to a potluck by bringing beverages, uncut fruit and veggies, new condiments, tableware, and ice cream ......etc.
    • Thank you so much. It's so nice to have such friendly and helpful people to talk to while I await my answers.  I had an interesting experience yesterday... I ate a bowl of Kraft mac n cheese... then passed out for 4 hours and woke up vomiting. I've had a lot of experiences like that after eating over the past 2 years, but I never put those pieces together because celiac disease was totally off my radar. Just found it very interesting.  I've been pushing down lots of gluten-y foods just to make sure my tests will come out right. So tired of waiting! Really, if this isn't the answer to my 40 lb mysterious weight loss, fatigue, and painful gas/bloating... then what's left? Cancer doesn't seem likely in a 33 year old, but I am really scared.  Thanks for helping me through this. Anyone who stumbles accross this place is lucky to find such supportive and kind, helpful people!
    • Hello and welcome I don't have an answer, like you I'm eating rice in processed foods as well as a side dish so I'm also wondering if I'm eating too much. If the rice is in a product like flour there's no way to tell how its prepared etc However for this: You can pre soak and rinse the rice in advance and change the way you cook it to reduce your exposure by up to 80% Details: http://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice    
  • Upcoming Events