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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lip Issues?
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7 posts in this topic

Feel free to move this into a new section since I'm new here.

I have had issues with health for years and recently, around christmas, I had blood test results come back saying I am one number from being technically "celiac." You need an 11 or higher to be counted as "positive" and I have a ten. Can't remember exactly what the number represented, some type of antibodies? I forget quite honestly.

Also very low on b12 and vitamin D. I started taking a bunch of vitamin recommended by a holistic doctor I go to..but I don't think I absorb anything.

I didn't think celiac was really that bad until recently I've been having bloating problems, stomach issues, etc. And recently, last week, I've been having this really strange lip issue. First it started out that my lips were really dry for the first two days and when I drank pop my upper lip felt tingly and numbish. Then the third day I woke up and my upper lip(not the outside, but the inside by gums)was swollen and hurt. The next day I woke up with blood crusted on my lips, painful, still swollen, etc. Little bits of skin came off when I rubbe da wet washcloth over my lip to clean it.

Every day the pigment of my lip inside has gotten more and more red. It feels like the entire inside is burned and I lost a layer of skin. I noticed at lunch in my cars mirror that the red pigmant is literally spreading onto my gums. The part above my two front teeth is much more read than any other part of my gums. It's literally "spreading."

I'm only 17, nearly 18, and can't really afford a gluten free diet or anything, etc. I am hoping to get vitamin b12 shots since it will be directly into my blood stream. I assume since I'm having more and more syptoms that number of antibodies(or whatever it is) is probably getting higher and I'm getting worse. :X

Anyone know what this is? I do have another holistic doctor appointment this wednesday as a checkup. (I'm scared to admit to her I haven't improved my diet too much.)

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If you have Celiac, you need to be on a gluten free diet, hon.

No excuses.

Celiac disease is not curable, but it is treatable by a strict gluten free diet. That's it.

This is not something you can do once and while.

It will not do any good to take B-12 injections if you are continuing to ingest gluten. The gluten is CAUSING the deficiency in the first place.

You have symptoms because you are not following the diet.

From your confusion, it appears you do not really understand the disease process, what gluten antibodies are, etc. and you need to learn about celiac disease right now.

Start reading, because this is for life.

WHO diagnosed you? That doctor should have told you EXACTLY what to do. When you say "Holistic"--do you mean a Naturopathic Doctor?? or a Medical Doctor who is also integrative?

You should see a medical doctor --preferably the one who diagnosed the celiac--right away about those sores.

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The medical Dr. may not know anything. Mine didn't regarding celiac, absolutely stupid. The blood test just came about 10 years ago and mine know nothing. Can you see a demitologist? My dentist is clueless about celiac too. He has no clue that celiac causes emamal to deteriorate. So you need to see first the Dr. that did your blood test, then a dermitologist.I've heard some know about celiac. And I agee with the others, get rid of the holistic one. Eating gluten free can be cheap if you want it to be. It just takes planning and that is the hard part.

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I was thinking, if your gums are sore and "peeling", you could also have periodontal disease.

My lips often peeled and I had sores on my mouth and inside--from gluten.

See the doctor who diagnosed your celiac right away!!

Since you are a minor, can you get your parents on board with the gluten -free diet?

Surely they understand you have this disease.

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My lips peeled and shredded for over a year before I found out about gluten and went gluten free. I used to use a steroid ointment to treat the pain it caused, it completely went away when i had been gluten free for a few months.

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do you use lipstick? if so there might be gluten in it causing this issue.

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do you use lipstick? if so there might be gluten in it causing this issue.

I'm new here at this board so I'm not sure if, as a 20-something, I still count as a 'young adult [???]'. But anyway, here's my answer: I was getting sores inside my mouth ALL the time before I was diagnose with celiac (by blood test and endoscopy). That went away about a month after I started going gluten free.

As for doctors: My regular doctor is awesome, but my gastroentrologist talks to me for five minutes and then sends me out the door. I don't feel like I get much in the way of an exam with him. And my dentist was completely clueless about what celiac really meant. He thought it was the same thing as 'lactose intolerant'. To which I had to say, no one gives you a tummy ache and the other prevents me from absorbing the food I eat, causes malnutrition, my severe anemia, and could cause a bunch of awful cancers if not taken seriously. People are so ignorant about celiac, it's not even funny.

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