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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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    • Looks the same unless I make the browser window thinner by about 20%. If I make it 20% thinner the poster identities and new topic button show up.
    • My daughter's burping what terrible! We saw a pediatric GI at the University of Chicago. Insurance covered the breath test. We tried flagyl first but my daughter had a bad reaction to it and so the doctor ordered Xifaxin. She had to submit additional information to get it covered, but ultimately it was covered by insurance. But honestly, the SIBO returned several months later.  I couldn't get an appointment with the same GI doctor because insurance changed who they would refer us to. It would take months to change insurance to get to see the doctor. So,  I did a bunch of research and basically treated her myself.  I really recommend finding a doc that tests for SIBO. I found that just the SCD was not enough. If it's SIBO (or candida overgrowth,)  you need to reduce the fermentable carbs. There is a book and app called the Fast Tract Diet that worked the best for us. It allows you to calculate the fermentable carbs you are consuming.  If you reduce them far enough, you start to have bacteria die off. That diet, with a combination of herbal antibiotics helped tremendously. The addition of Atrantil (developed specifically to treat SIBO) and Iberogast (to increase motility) has finally allowed her to start to increase her fermentable carbs. It took about 6 months to get there.  By the time we were able to see her GI doc again, she was basically on the mend.  I was told to increase her fermentable  carbs slowly as tolerated, and if symptoms start to return, start her on another herbal antibiotic.  We were also told that we could periodically put her on an herbal antibiotic for a week or so to keep the SIBO at bay.  But the Atrantil she takes daily has really done the trick and so we haven't had to do another round of herbal antibiotics. But she still cannot have gluten.  It clearly affects her gut and nervous system.  I suspect that it slows transit down allowing for the conditions for bacteria overgrowth. Something else to note, when you start to have bacteria die off due to treatment, you feel worse.  So sometimes people think the treatment is not working. It's usually within the first three days that the die off reaction starts and can last up to a week.   It is difficult finding the right doctor. You might want to peruse the website http://www.siboinfo.com/ I know how you are feeling because I went through it with my own daughter. 
    • I had the same problem long before I knew I had celiac.  Restasis did not help me at all.  I was referred to an eye specialist, and he was very helpful.  He said to continue with Restasis, but I told him it was a waste of time.  He told me that it doesn't work for everyone.  He also gave me a Bruder Mask, which is an eye mask with beads in it that you warm in the microwave. Put over your eyes 4x daily for about 10 min.  Then, massage your eyes gently - the warmth melts the fat in your eye glands and massaging helps disperse it over the surface. You can also get it on Amazon or just use a warm, wet compress.  I was told to use preservative free (very important) otc eye drops and a gel at bedtime.  He also gave me  an otc supplement called HydroEye.  There are similar ones under another name - it's essentially flax oil. Also, it's important to wash your eyes daily with an otc product called OcuVue Lid Scrub.  They are pricey but work well.  A clean warm cloth and Johnson Baby Shampoo works as well.  This has made a tremendous difference for me.  
    • Thanks!  I just wish the doctors would put more thought into it instead of closing their minds when they see a negative or only 1 positive. It seems this board understands testing better than most GI's..........
    • You really have been doing your homework, haven't you?    I am quite impressed at your new knowledge and you have some really good idea's and opinions on the whole Celiac spectrum!  I completely agree with most of what you have said and find it interesting because I am one of the ones with lots of collateral damage so find your thoughts interesting.  I think that once Celiac triggers but you don't know for a long time, then your immune system doesn't just attack the small intestine only. It goes off on other pathways and attacks other healthy tissue and organs. The genetics may very well have something to do with the direction it takes.  I love that you keep on pushing for answers because many people don't and their kids get sicker and sicker. Drives me crazy. No need to apologize for anything. I may not have worded my response well and didn't mean to imply that you didn't think the testing reliable. They are older versions of the DGP but I think all these tests should be run as this disease can be so hard to pinpoint and more testing points can be helpful. You never know which ones will show a result. Don't worry.......you will figure this out and get your kids on the right track!  
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