• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Old Hag Syndrome / Sleep Paralysis
0

28 posts in this topic

Someone just reminded me of something that used to happen to me before going gluten-free. It would be interesting to find out if other Celiacs have experienced this. My son who is also Celiac has also experienced it. I used to get episodes of what is called "Old Hag Syndrome". I am attaching a link that explains it. It is also called "Seep Paralysis". I just had the thought that maybe it was caused by Celiac because it has not happened to me since. It is a very scary situation where you wake up and cannot move a muscle - you hear and see and smell but cannot move. It feels like something or someone is holding you down and you try to yell out but can't. It only lasts a few seconds but it is very scary. Has anyone else experienced this syndrome?

Old Hag Syndrome

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

All though interesting, very interesting, I don't see a connection to Celiac Disease. :)

0

Share this post


Link to post
Share on other sites

Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point.

This odd state of sleep so interested me, I actually wrote a novel based on it...and a possible reason for it (no, not supernatural). I'll be putting the finishing touches on my novel later this month. It's a good thing I didn't think there was a connection to celiac--that would have been a very boring novel!

0

Share this post


Link to post
Share on other sites

I had this happen to me a couple of mornings in a row, long before I became aware of celiac. It is a totally scary experience. I was alone in the house at the time, my mom was in hospital dying of cancer, and I have never talked to anyone about it. It has never happened again. I put it down to a combination of meds I was taking, and stopped taking the recently added one... :unsure:

0

Share this post


Link to post
Share on other sites

I used to have that all the time. It got so bad at one point that I was afraid to go to sleep and would stay up all night. I attributed it going away to my research on the subject and trying to turn it into lucid dreams. I didn't fight it like I had been doing. It is an interesting phenomenon.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had that a lot as a child and young adult. Not recently that I know of. Gluten is not an issue for me.

0

Share this post


Link to post
Share on other sites

Have any of you who have experienced more than one episode of sleep paralysis ever had a polysomnogram and Multiple Sleep Latency Test (MSLT)? I have celiac and narcolepsy and often experience sleep paralysis, which can be a symptom of narcolepsy.

0

Share this post


Link to post
Share on other sites

Interesting. I used to get Old Hag, also, usually when taking afternoon naps, but not so much anymore. Not sure if it was gluten-related, though.

0

Share this post


Link to post
Share on other sites

I have this sometimes, combined with poor sleep for pretty much my whole life. I had this last night in fact, and it lasted for about 10-30 seconds.

I am sensitive to both gluten and milk and have just started a diet, but haven't seen any change to this yet (sleep quality seems a bit better though -- I dream more the last week than I usually do in a month).

I have been speculating this could be related to gluten and/or casein sensitivity in some way as narcolepsy is associated with autoimmune reactions to the orexin system (critical component in the regulation of sleep, wakefulness and REM). Haven't seen any research investigating this though.

0

Share this post


Link to post
Share on other sites

yes! this has happened to me many times, it took a lot of explaining to my husband (who thought i was possessed). it is very scary but after knowing what it is it's not so bad, you can almost 'train' yourself not to freak out.

0

Share this post


Link to post
Share on other sites

i searched and found this thread- because i had this paralysis THIS MORNING!!!!! i believe it could be gluten related-> as SOME Celiacs get Narcolepsy & Apnea-> so i ASSUME that Sleep Paralysis and other sleep disorders could be caused by gluten.

im a little nervous tho- because i only had these episodes about 5 times maybe- on and off from Mid 90s to around 2005... all pre Celiac DX and pre-gluten free. so WHY this morning???? i know its *possible* that im getting too much through <20ppm gluten free junk food or cross contamination... BUT enough to bring on symptoms that i havent felt in YEARS????

0

Share this post


Link to post
Share on other sites

this also happens to people without celiac disease, it is a not so common sleep disorder.

0

Share this post


Link to post
Share on other sites

I never knew there was a name for this! I've experienced this several times in the past and I remember telling my step-dad what happened and he called me crazy. :lol: Thankfully, I haven't experienced anything like this since I went gluten-free a year ago.

Personally don't think there is a connection to Coeliac disease but it is interesting.

0

Share this post


Link to post
Share on other sites

I had this happen as a child and totally forgot about until it happened once about a month ago. Sure hope it doesn't happen again, very disturbing.

0

Share this post


Link to post
Share on other sites

I'm currently 21, and during the ages of 13-16, this syndrome plagued me. I just found out about my gluten sensitivity/ possible celiac about 1 month ago. I suspect Ice had it for several years, by looking back at all of my symptoms. I don't know how they'd be connected, but I know eating gluten can cause neurological symptoms. Sleep paralysis is easily the most terrifying think that's ever happened to me- I'm sorry for anyone that has to go through that.

0

Share this post


Link to post
Share on other sites

Omg! The same thing happened to me since I was around twelve. My doctor thought it may be linked to my bladder condition, interstitial cystitis (which was caused by my food sensitivities i was unaware of). According to my doctor, it is more common with those who have insomnia, wake excessively or fail to go through normal stages of sleep. I woke sometimes sixteen times a night to go to the bathroom. It's kinda a chicken and egg kinda thing for me, idk which came first but they are definitely related.

0

Share this post


Link to post
Share on other sites

I'm pretty sure this has happened to me, but I wake so slowly that it's never frightened me, as I don't wake and immediately try to move. I have never had it happen on a day where an alarm is waking me, so not sure really.

I'm pretty sure it's related to the hormones that regulate sleep. The body releases mild paralytic hormones that are designed to keep you from sleepwalking, it's theorized that a deficiency in these contributes to somnambulism. Too much and you get temporary waking paralysis.

0

Share this post


Link to post
Share on other sites

wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.

1

Share this post


Link to post
Share on other sites

I have suffered from sleep paralysis. I don't know if it's connected to celiac. I've only been gluten-free for two months now, but I have not experience sleep paralysis in those two months. However it only happened to me once or twice a year.

0

Share this post


Link to post
Share on other sites

This happened to me sometimes but has not happened since going gluten free.

0

Share this post


Link to post
Share on other sites

I have had sleep paralysis since I was 5. and it happend at least once a month. I would get so scared that I would stay up at night which would make it more likley to happen but when I went Gluten-Free it didn't really happen. I think there might be a connection.

0

Share this post


Link to post
Share on other sites

  :blink: I had an incident last night.

 

First time in years. Ugh, shivers as i think about it. I was like "is this what i think it is?". :unsure:

0

Share this post


Link to post
Share on other sites

Sorry Shadow :(

 

Hope you have a restful night tonight - scary stuff.

0

Share this post


Link to post
Share on other sites

I've never had this happen to me until my recent hospital visits related to celiac disease. It is now a recurring thing despite being gluten-free for nearly two weeks. It's very scary and I'm finding that I'm totally sleep disturbed since this has all been going on. I've been awake the majority of nights for days on end after gluten attacks. I feel like I'm in a nightmare sequence. I'm awake with panic and shortness of breath truly afraid that if I fall asleep that I will die. When I finally start to dose, the paralysis sets in while I'm still awake. it's very scary.

0

Share this post


Link to post
Share on other sites

Yes, I have had this happen a number of times in my life. It is terrifying!

 

I didn't read the link you posted, but one thing I have read in the past (and that has helped me avoid this) is that it occurs more frequently when you sleep on your back. I have no idea why this is the case, but changing your sleep position might help. I'm not a back sleeper usually, but every time it has happened to me that I can recall, I was sleeping on my back at the time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,118
    • Total Posts
      929,041
  • Member Statistics

    • Total Members
      63,533
    • Most Online
      3,093

    Newest Member
    retspet
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yeah but it does explain my slight reactions I get  randomly from those two foods. Wish there was a very well documented lab study. You know like 10-20 different brands testing 1 batch per week over the period of 12 months recording the gluten content to the PPM and posting it. Also a varied control of doing it twice once with washed once with unwashed.   Would love to see this kind of study done to just lay it out plain in a table of data instead of a huge written article of various opinions on what might be what could be, and OH this is safe for SOME. or IT COULD BE.
    • Always had a slight fear of diabetes myself due to my nerve issues was first thought by doctors to be diabetes. I will tell you something that I did for another reason that slammed that thought. I got a glucose monitor kit for like $14 for everything. And started checking my blood sugar for a few days making record of meals snacks, moods etc. IT did show that on the lower end of healthy and higher end is when my mood changed. BUT they were all well within your normal range of 90-135. Few times after waking up in the morning was a tad lower and after working out, but that depletes your glucose stores, and this ran with my binge eating urges....oddly for nuts and protein, and stevia tea.     But the fact is it showed my blood sugars changes very little in relations to my food, but more to do with my physical activity and stress, along with normal ranges so proved I was not diabetic at all in my mind. Congratulations on finding your regime and issues out so far, hope you nail down your other culprit. Might just take more healing and time an be nothing.
    • Have you taken lactose out of her diet?  Trouble digesting lactose might be a temporary side effect of Celiac Disease.  It is also possible to be lactose intolerant and Celiac.  You might try eliminating it and see if that helps.
    • In my opinion, this  author goes a bit over board with her "gluten is everywhere" agenda.  
    • Yes! They have been ruled out. All my nutrient and hormone levels are good!
  • Upcoming Events