Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Symptoms


racheldeniseh

Recommended Posts

racheldeniseh Newbie

Hi everyone, I am new here but I would really appreciate any help or advice. I am a 20 year old female and have been having chronic diarrhea, bloating, gas, and pain for about 7 years. Around the same time that my GI problems began, I also began getting eczema really bad on my neck and arms. I used to have really oily skin and acne and now my skin is dry and painful no matter how much fluid I drink or how much lotion I put on. My lips are almost always chapped and cracking at the corners. Well I never really was treated or talked about any of my problems except the eczema. Now that I am in college, I know that what has been going on is not normal and I want answers. I went to my nurse practitioner who said I had IBS and gave me antispasmodic medicine that did not help at all. In a separate visit to the health services doctor on campus, I was diagnosed with "angular cheilitis" which explains the cracking of the lips. I seriously do everything I can to eat healthy, drink plenty of water, and take care of my skin but I feel that everything is out of my control. The rash has spread to my eyelids and my lips are so red and painful, and I am so embarrassed even to go out in public or talk to anyone that I know. I went to a different doctor again today who said that she thought it sounded like celiac, and she did a blood test for celiac. My question is, do any of these symptoms sound like celiac? If so, does the rash and angular cheilitis go away on a gluten-free diet? Thanks in advance for any help!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. Yes it does sound like you may be celiac. Do make sure you don't go gluten free until all testing is finished. However even if your test results are negative you should still give the diet a good strict try as false negatives do happen.

If you do have problems with gluten then yes the problems you are having should hopefully resolve. You may want to get some stress level B vitamins as that may help a bit.

Link to comment
Share on other sites
basilicious Explorer

Hi racheldeniseh,

I can't add to what ravenwoodglass already said, but just wanted to say hang in there! I'm sure it's difficult to juggle these health issues with schoolwork and your social life, but it sounds like you're taking good care of yourself and you're on your way to getting some answers. Good for you! Hugs!

Link to comment
Share on other sites
LOWNskater52 Apprentice

You certainly sound like a typical celiac from the symptoms you described.

Be happy your're a typical celiac and not a celiac like I am. I have some digestive problems(gas, poor digestion) but the bulk of my celiac symptoms or neurological and psycological. Crippling Anxiety, and messed up hormones. Blows. The eczema I can relate with. I have eczema on my right achilles heel, right hand, and belt area of my stomach. Its minor when I am gluten free but when I eat something with gluten it literally explodes.

Go get a test I suppose but some people can be extremely gluten intolerant and not show up on a Celiac panel. Thats my case. I can't even eat the Gluten Free Food products.

Couple of questions

You mentioned skin. Do you get dandruff? I had terrible dandruff with my overall dry, cracked skin. Getting better though.

DId you have some sort of trauma that caused these symptoms to start back 7 years ago? Physical/Mental Trauma/Stress can cause gluten intolerance to appear. Did for me.

Main Advice: Go gluten free. Fruits, Veggies, and meat only. Its not that Bad. You get used to it. Also remember to stay with it and don't get discouraged and cheat. It could take months or even years for your body to repair itself. Its been 4 months gluten-free for me and I am alot better but not everything is back to normal. Stay the course kiddo.

Link to comment
Share on other sites
racheldeniseh Newbie

Thank you so much everyone for your responses! It makes me feel good that I have support and people that can relate to what I am going through. :) To Lownskater52: I do have really bad dandruff.. My entire body is just always dry. I do not think I had any trauma during that time, but I cannot remember that time period very well. I wish I would have sought help sooner about all of this. Hopefully my results come back soon. I am still eating gluten as of now, but I will talk to my doctor about what to do next if it is positive or negative.

Link to comment
Share on other sites
LOWNskater52 Apprentice

Bingo. You sound just like me.

Get tested and whatnot then go gluten free. Whole Foods = Mecca. I guarantee some improvement but I do not guarantee being back to 100%. I'm not even there yet and I've been gluten-free for 4 months.

Link to comment
Share on other sites
LOWNskater52 Apprentice

One more thing. DO you have dark circles/bags under your eyes? I do and its a sign of overall toxicity.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



racheldeniseh Newbie

YES! I always have dark circles under my eyes!! Everyone always tells me how tired I look. What does overall toxicity mean? Thanks Lownskater52!!!

Link to comment
Share on other sites
LOWNskater52 Apprentice

Hahaha. Sounds like we have the same thing going on.

Dark circles are a sign of toxicity or hormonal imbalance. Most likely both. Your body prob sees the gluten as a toxin and you develop these bags under your eyes. In addition to this, this toxicity in your blood also causes hormonal imbalances (in your adrenals, thyroid, pituitary, ovaries etc...) for the double whammy effect.

Going gluten free will help. Idk if it will get you to 100% but i know it will help. hormonal imbalances also can take years to correct so stick with it.

Keep it up. I know how it is. When I got sick with this disease for the first time 1.5 years ago, I was in my last semester of college.

Link to comment
Share on other sites
racheldeniseh Newbie

I will let you know how my test turns out.. All my favorite foods have gluten but I would happily sacrifice if it meant I didn't have to suffer anymore. P.S. Are you a male or female?

Link to comment
Share on other sites
LOWNskater52 Apprentice

Aw you're a a cutie.

I'm a macho man.

We'll get you well. Can't be sick for the college experience.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,072
    • Most Online (within 30 mins)
      7,748

    SherryT
    Newest Member
    SherryT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Nacina
      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...