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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Frustrated And Alarmed About Weight Gain
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11 posts in this topic

I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

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I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

Eat cleaner and move more. And age has a way to creep up on us.

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It might help to make sure you eat some protein with every meal. And then wait a while before eating any dessert. The "I am full" signal from our tummies can take a little bit to get going.

You could also check your blood glucose, to be sure something isn't going on there.

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I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

I hate to say this, but drop the carbs and sweets. Lots of fresh fruit will satisfy the "sweet" cravings. Eat more veggies, especially those less starchy ones. Lots of broccoli, cauliflower, carrots, etc. Limit potatoes and corn. Lots of leafy green salads light on the dressing. I had this problem after I was diagnosed too. Lost lots of weight then after going gluten free was deathly ill and lost more weight then put it back on, and then some too. Nothing worked... I wasn't over eating but gained and gained fast. Dropped the breads and sweets and exercised more and now am losing again. Also I feel better, more alert and energetic. I don't LIKE exercising more :) But, it's the only thing that is working. I joined the online Weight Watchers for guidance to limit portions and it is working. I hope this helps you, good luck.

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I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

Two words......weight train! :D

I have never had to worry about my weight, either, but needed to weight train to battle osteoporosis. The lovely little side effect of serious weight training is once your muscle mass becomes leaner, you burn a hell of a lot more calories. I can literally eat whatever I want, whenever I want, and my weight stays stable within 3 pounds of ideal. I keep trying to tell people who struggle with their weight to start picking up free weights and lift....it's amazing.

I mainly eat a whole foods diet BUT I also love a sweet treat or 2. There is nothing wrong with indulging your sweet tooth, as long as you eat plenty of the good foods

every day. You will just burn it off once you train for a bit. Life is boring without a cookie or brownie! ;)

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I hate to say this, but drop the carbs and sweets. Lots of fresh fruit will satisfy the "sweet" cravings. Eat more veggies, especially those less starchy ones. Lots of broccoli, cauliflower, carrots, etc. Limit potatoes and corn. Lots of leafy green salads light on the dressing. I had this problem after I was diagnosed too. Lost lots of weight then after going gluten free was deathly ill and lost more weight then put it back on, and then some too. Nothing worked... I wasn't over eating but gained and gained fast. Dropped the breads and sweets and exercised more and now am losing again. Also I feel better, more alert and energetic. I don't LIKE exercising more :) But, it's the only thing that is working. I joined the online Weight Watchers for guidance to limit portions and it is working. I hope this helps you, good luck.

This works for me too. If I eat carbs and sweets I crave more and I overeat. They make me tired too. It's hard to overeat veggies.

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in the last month, I have gotten a mile counter and am walking much more, sometimes up to 3.5 miles a day (fast!). I also have joined MyFitnessPal.com and am recording everything I eat. And I'm trying very hard to eat more vegetables and less carbs and sweets. Hopefully this will do the trick, or at least help. I also swim and do yoga on days I don't walk as far. I used to do weight training but stopped because I really don't like it. But perhaps I should consider it again.

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in the last month, I have gotten a mile counter and am walking much more, sometimes up to 3.5 miles a day (fast!). I also have joined MyFitnessPal.com and am recording everything I eat. And I'm trying very hard to eat more vegetables and less carbs and sweets. Hopefully this will do the trick, or at least help. I also swim and do yoga on days I don't walk as far. I used to do weight training but stopped because I really don't like it. But perhaps I should consider it again.

I have never gotten the results from any other kind of exercise that I am seeing and feeling now from weight training. Plus, as a Celiac, you need to do bone building exercise to avoid osteoporosis. The other stuff you are doing is very good and should be kept up as you enjoy these but maybe add some weights while you are walking? Hand held weights or a weight vest? They are pretty cool. The weight is distributed evenly over the vest but you get quite the work-out. You just need to find the right work-out rate/food intake combo that will work. You'll get there!

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And if you alter your diet, add exercise and are still gaining....get your thyroid checked. You are at a heightened risk for hypothyroidism, ya know :).

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I have never gotten the results from any other kind of exercise that I am seeing and feeling now from weight training. Plus, as a Celiac, you need to do bone building exercise to avoid osteoporosis. The other stuff you are doing is very good and should be kept up as you enjoy these but maybe add some weights while you are walking? Hand held weights or a weight vest? They are pretty cool. The weight is distributed evenly over the vest but you get quite the work-out. You just need to find the right work-out rate/food intake combo that will work. You'll get there!

This is my problem right now... I have a really hard time getting my self to use the hand weights. I love, LOVE aerobic exercise (walking, running, hiking, love it all and do it all the time), but I just can't seem to get myself to lift wegihts even though I know that's what my body needs.

:P

OP, I second the rec to get your thyroid checked if all else fails...

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well, I'm back after a month from posting here and I'm happy to say that I've lost about 6 or so pounds. In fact, I am very close to being my target weight (if not at it already). I've been exercising a lot more and also being much more careful about what I eat, and writing it all down. I've been actively eating more salads and vegetables and less baked goods. I'm exercising nearly every day, sometimes burning up to 300 or so calories. Now the trick is to maintain my weight. I don't have much more to lose. So does that mean I start eating more calories or exercising less? I've been bad about doing weights, but have been doing lots of walking, fitness/treadmill machines and swimming. I'm more concerned about losing body fat right now than gaining muscle. Although I'm sure it won't hurt to do weights as well...just hate doing them. BTW, I've gotten my thyroid checked frequently and don't have a problem with that. Both of my parents have hypothryoid, though, so I check often.

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    • Hey Matt  thanks for your reply fellow Brit! I this is very interesting... I am very sensitive to cross contamination... e.g. A sieve wasn't washed properly when I lived at my mums so when I had drained my gluten-free pasta .. I hadn't even eaten the dish before I started to pass out and go dizzy and hot .. calling for my bf and mum ( they had a great team going when I would have an episode) it's horrendous!  The fatigue is something I imagine every coeliac suffers with! I have to nap a lot.  Ok so the booze I drink most of is -processo -amaretto -vodka, wine, cider (very rarely)  when I drink at home I'm fine!!!  I wonder if it's cross contamination from the bar or the level of alcohol?!  I also had a jäger bomb shot on Friday (looked it up and a lot of people say it's gluten-free)  it's a hard live but someone's got to do it!!  Thanks for the reply!  When you get poorly from gluten (and the other evil candidates) are you so bad you can't function and feel your body is about to snap?  Kind regards  steph 
    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol and a doctor's answer: http://www.steadyhealth.com/medical-answers/abnormal-reactions-to-alcohol Cheers Sorry, best of luck! Matt  
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