• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Frustrated And Alarmed About Weight Gain
0

11 posts in this topic

Recommended Posts

Coolclimates    14

I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Lisa    457

I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

Eat cleaner and move more. And age has a way to creep up on us.

Share this post


Link to post
Share on other sites
GFinDC    609

It might help to make sure you eat some protein with every meal. And then wait a while before eating any dessert. The "I am full" signal from our tummies can take a little bit to get going.

You could also check your blood glucose, to be sure something isn't going on there.

Share this post


Link to post
Share on other sites
Dee777    20

I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

I hate to say this, but drop the carbs and sweets. Lots of fresh fruit will satisfy the "sweet" cravings. Eat more veggies, especially those less starchy ones. Lots of broccoli, cauliflower, carrots, etc. Limit potatoes and corn. Lots of leafy green salads light on the dressing. I had this problem after I was diagnosed too. Lost lots of weight then after going gluten free was deathly ill and lost more weight then put it back on, and then some too. Nothing worked... I wasn't over eating but gained and gained fast. Dropped the breads and sweets and exercised more and now am losing again. Also I feel better, more alert and energetic. I don't LIKE exercising more :) But, it's the only thing that is working. I joined the online Weight Watchers for guidance to limit portions and it is working. I hope this helps you, good luck.

Share this post


Link to post
Share on other sites
Gemini    785

I've been on the gluten-free diet for nearly 2 years now. When I was finally diagnosed with Celiac Disease 2 years ago, I had been losing a lot of weight and people were getting concerned. Since going on the gluten-free diet, I first gained weight, then lost it (and went through a long period where I was very sick) and have since gained it all back plus extra. I've gained about 5-6 pounds from my ideal weight since December. Pants are beginning to not fit. Suddenly, for the first time in 12 years, I am worrying about gaining weight. I've been so used to eating as much as I wanted and not gaining anything (in fact losing weight) that now I'm beginning to panic. I know this probably sounds trivial to some of your experiences, but I'm just so afraid I'll keep gaining weight. For the last few weeks, I've been walking a lot more and trying to exercise more and also work on my diet. I'm addicted to carbs and sweets and I know that isn't healthy. However, I've never had a problem with eating too much. I'm just worried because I've started exercising a lot more and watching my diet more but haven't lost any weight. Anyway, I'm just venting but I'm really afraid about continuing to gain weight.

Two words......weight train! :D

I have never had to worry about my weight, either, but needed to weight train to battle osteoporosis. The lovely little side effect of serious weight training is once your muscle mass becomes leaner, you burn a hell of a lot more calories. I can literally eat whatever I want, whenever I want, and my weight stays stable within 3 pounds of ideal. I keep trying to tell people who struggle with their weight to start picking up free weights and lift....it's amazing.

I mainly eat a whole foods diet BUT I also love a sweet treat or 2. There is nothing wrong with indulging your sweet tooth, as long as you eat plenty of the good foods

every day. You will just burn it off once you train for a bit. Life is boring without a cookie or brownie! ;)

Share this post


Link to post
Share on other sites
Ads by Google:


Skylark    935

I hate to say this, but drop the carbs and sweets. Lots of fresh fruit will satisfy the "sweet" cravings. Eat more veggies, especially those less starchy ones. Lots of broccoli, cauliflower, carrots, etc. Limit potatoes and corn. Lots of leafy green salads light on the dressing. I had this problem after I was diagnosed too. Lost lots of weight then after going gluten free was deathly ill and lost more weight then put it back on, and then some too. Nothing worked... I wasn't over eating but gained and gained fast. Dropped the breads and sweets and exercised more and now am losing again. Also I feel better, more alert and energetic. I don't LIKE exercising more :) But, it's the only thing that is working. I joined the online Weight Watchers for guidance to limit portions and it is working. I hope this helps you, good luck.

This works for me too. If I eat carbs and sweets I crave more and I overeat. They make me tired too. It's hard to overeat veggies.

Share this post


Link to post
Share on other sites
Coolclimates    14

in the last month, I have gotten a mile counter and am walking much more, sometimes up to 3.5 miles a day (fast!). I also have joined MyFitnessPal.com and am recording everything I eat. And I'm trying very hard to eat more vegetables and less carbs and sweets. Hopefully this will do the trick, or at least help. I also swim and do yoga on days I don't walk as far. I used to do weight training but stopped because I really don't like it. But perhaps I should consider it again.

Share this post


Link to post
Share on other sites


Ads by Google:


Gemini    785

in the last month, I have gotten a mile counter and am walking much more, sometimes up to 3.5 miles a day (fast!). I also have joined MyFitnessPal.com and am recording everything I eat. And I'm trying very hard to eat more vegetables and less carbs and sweets. Hopefully this will do the trick, or at least help. I also swim and do yoga on days I don't walk as far. I used to do weight training but stopped because I really don't like it. But perhaps I should consider it again.

I have never gotten the results from any other kind of exercise that I am seeing and feeling now from weight training. Plus, as a Celiac, you need to do bone building exercise to avoid osteoporosis. The other stuff you are doing is very good and should be kept up as you enjoy these but maybe add some weights while you are walking? Hand held weights or a weight vest? They are pretty cool. The weight is distributed evenly over the vest but you get quite the work-out. You just need to find the right work-out rate/food intake combo that will work. You'll get there!

Share this post


Link to post
Share on other sites
peeptoad    7

I have never gotten the results from any other kind of exercise that I am seeing and feeling now from weight training. Plus, as a Celiac, you need to do bone building exercise to avoid osteoporosis. The other stuff you are doing is very good and should be kept up as you enjoy these but maybe add some weights while you are walking? Hand held weights or a weight vest? They are pretty cool. The weight is distributed evenly over the vest but you get quite the work-out. You just need to find the right work-out rate/food intake combo that will work. You'll get there!

This is my problem right now... I have a really hard time getting my self to use the hand weights. I love, LOVE aerobic exercise (walking, running, hiking, love it all and do it all the time), but I just can't seem to get myself to lift wegihts even though I know that's what my body needs.

:P

OP, I second the rec to get your thyroid checked if all else fails...

Share this post


Link to post
Share on other sites


Ads by Google:


Coolclimates    14

well, I'm back after a month from posting here and I'm happy to say that I've lost about 6 or so pounds. In fact, I am very close to being my target weight (if not at it already). I've been exercising a lot more and also being much more careful about what I eat, and writing it all down. I've been actively eating more salads and vegetables and less baked goods. I'm exercising nearly every day, sometimes burning up to 300 or so calories. Now the trick is to maintain my weight. I don't have much more to lose. So does that mean I start eating more calories or exercising less? I've been bad about doing weights, but have been doing lots of walking, fitness/treadmill machines and swimming. I'm more concerned about losing body fat right now than gaining muscle. Although I'm sure it won't hurt to do weights as well...just hate doing them. BTW, I've gotten my thyroid checked frequently and don't have a problem with that. Both of my parents have hypothryoid, though, so I check often.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,905
    • Total Posts
      938,589
  • Member Statistics

    • Total Members
      65,818
    • Most Online
      3,093

    Newest Member
    Ccllcc46
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sometimes this happens, odd as it might be, you have to be eating gluten for the test first off daily. We call it a gluten challenge. Second some people due test negative on the blood test but can have celiac which is why we consider the endoscope and biopsy the golden standard. Also the gluten test back when you had it done previously was much less accurate then it is now days or at least it seems.  Do you have your numbers? We have had many cases where the doctor said it was negative...and the idiot could obviously not read the test cause when member posted their lab forms we can see it obviously positive. What ever the case we know what the issue is now and your on your way to getting better. Unlike most AI disease we know the cure and fix for celiac is a strict gluten free diet. So you can now begin you road to healing......and yeah I know that feeling of finding out the nerve issues....sadly nerve damage is VERY slow to heal unlike gut damage. But it has it's odd messed up benefits, I have most coordination back but it comes and goes in waves. Funny thing, I can grab stuff out of the oven or burn myself and the reaction to it delayed or non existent pain wise. So they do not bother me. I can cut my hand and go "oh look I should super glue that back together" without the pain, I just logically deal with it and do not have much panic or pain unless it is VERY deep.
    • This has been my life for the past three years! Oh man! I have had every muscle and nerve test known to man and...nothing. The doctors finally stopped trying and just referred me for cognitive behavior therapy.  I'm still confused about the negative blood test though?
    • Thank you @Megamaniac - I don't hear about chest tightness as a symptom of being glutened, so it's good to hear of someone else. My current symptoms aren't bad, just annoying. It's hard to tell if it's anxiety tightening my chest, or something else. But since it's only been happening since I ate that damn tortilla, my guess is it's gluten-related. My doctor made me have an echocardiogram and stress test to rule out cardiac issues before he would do the endoscopy (this was a couple of years ago). I learned that telling a doctor "my chest tightness gets worse when I walk up a hill" makes everything else grind to a hart until the heart gets checked out!
    • They use the same fryers for everything, so the fresh fried corn tortilla chips are gluten contaminated when they get dropped in the fryers.....
    • Yes, gluten ataxia is one form where it effects your brain and nervous system. I lose feelings in my hands and feet, have all kinds of muscle issues when even traces get introduced via CC or walking through the bakery section of the grocery store -_ - Last time I got glutened at a restaurant back in 2016 I got home and lost full motor control and collapsed on the floor and started vomiting unable to move my body.

      Your veggie issues made me think of a few other things. I can not eat those veggies in the produce section, they put some kind of veggie wax on them that makes me vomit no matter what, makes a waxy film in my stomach and they float.....I have to buy farmers market fresh, or canned no salt (del monte canned no salt spinach is my number 1 vitamin a and k staple in omelettes) Other members have issues with glyphosate and have to have organic produce that is not treated on the farm with these chemicals. Some members develop histamine response issues so foods are limited by histamine number and how they are prepared. Just a few things to consider. UPDATE I suggest supplementation to deal with those nerve issues. Celiac causes issues with b-vitamins, magnesium and a bunch of others. So supplementation works wonders. Here are my suggestions Liquid Health Stress & Energy + Liquid Health Neurological Support 1 tbsp each 3 times a day in a beverage like tea.] Either Doctors Best Magnesium or Natural Vitality Calm. If you have constipation issues calm is suggested. Note start off small dose like 1/4 tsp slowly raise the dose to the full amount. Some of use need more or less, depending on activity levels etc.
        Liquid Health Vitamin D drops might be needed, some of use have issues with this also.
        We suggest starting off eating whole foods only, dropping dairy and oats (some of us react to oats just like gluten). You can try introducing processed gluten free foods later.
  • Upcoming Events