• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Dh Disappear For Years And Then Come Back?
0

5 posts in this topic

A really weird thing that I happened to remember recently is that several YEARS ago - I'm talking like 6 years ago - I had a patch of tiny bumps on my feet and it was ridiculously itchy. Nothing would help - I had no idea what it was and tried cortisone cream, calamine lotion, that spray stuff for athlete's foot (had never had that before so I didn't know what it looked like, didn't look like any description I saw but I thought what the heck, I'll try it), even rubbing alcohol on it to maybe dry it out. Nothing worked. They were tiny liquid-filled blisters that looked a lot like the photos I have now seen of DH. They were so itchy I couldn't sleep and could barely wear shoes. It lasted about 2 or 3 weeks, maybe longer (so long ago I can't remember!) and then it was gone and after that I would occasionally get a similar tiny bump or two on my hands or fingers or maybe just one here or there on my ankles or feet. The bumps usually reoccur in the same place. I don't remember noticing any digestive symptoms at the time or at least not to the degree that made me do anything about it.

Fast forward to last November and I was having bloating after almost every meal, occasional D and occasional itchy bumps, mostly on my ankles and legs. They itched worse at night and sometimes I would find random bruises from scratching so hard during the night. I didn't know enough to connect the skin issues to gluten, but I went gluten-free based on things I had read and my GI symptoms. I have been gluten-free for about 3 months. The gluten-free diet seems to be working, as most of my GI symptoms are gone. Like many new to the diet I am still learning. I think I may have DH but am not sure - I get tiny, itchy bumps that no amount of lotion, cream, etc. will help, and then after a few days or a week they go away. I am still having them even since going gluten-free but I realize I could be getting CC'd or they could be triggered by iodine or something else. I am not sure if I have DH, but I wonder if it is at all possible that the breakout I had many years ago was also DH and it went into "hiding" until last fall? This seems crazy to me, but got me thinking maybe I have been having some reactions to gluten for longer than I realize. Has anyone known DH to do this?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


As an auto immune disease DH will also relate to our own bodies and the environment we are in.

I think most people with DH will say that they had a variety of skin issues off and on before DH really took hold. Many of these disappeared or got better on a gluten free diet.

So were the other issues DH?

I've got to the point where I don't think the labels matter particularly. If it responds to a gluten free diet it's coeliac/DH, in my opinion.

If it doesn't respond then it's either not a coeliac related condition, or one isn't on a strict enough diet.

Your blisters sound simlar to blisters I used to get, but no longer get on a gluten free diet, so maybe they were coeliac related.

0

Share this post


Link to post
Share on other sites

I will follow these replies with great interest. The same thing has happened to me. I have had DH since i was a child but it was only diagnosed on a stay in the US and treated with sulphapiridine and then dapsone. When i could not get dapsone (They stopped making it in Spain where i live now.) i stayed clear of rash for nearly three years. But recently it has returned in the hair in my head. This was the worse part of my body in my twenties. Now i buy dapsone on the internet and i only need a very small dose to keep it under control. I did not go to the doctor with this, i go to him with too many other complaints and he would only give me Colchicine which does not work for me.

Maybe there are some who are cured of DH, but of course they will not have any further interest in the web site and we won

0

Share this post


Link to post
Share on other sites

Yes, DH can disappear (without going gluten-free) and then return. Happened to my father.

richard

0

Share this post


Link to post
Share on other sites

Yes, DH can disappear (without going gluten-free) and then return. Happened to my father.

richard

So interesting to know that this has happened to others. I am so curious if that's what I had back then...looking at the photos of DH makes me think it was.

Thanks for the replies!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,417
    • Total Posts
      930,444
  • Member Statistics

    • Total Members
      63,842
    • Most Online
      3,093

    Newest Member
    rachelliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • So, here goes...my visit with the GI specialist  is on Monday.  I had tested positive for the IGG antibody and all other bloodwork was negative.  I had numerous trips to emerg with stomach pain, lower back pain, tingly tummy, and diarrhea with alternating "c" (I had the word constipation).    One diagnosis of diverticulitis, another of IBS, and symptoms continued to get worse....Low B12 for 7 years and abnormal liver (something like hepatocellular disease with cirrhosis).  I only have a glass of wine on the weekends...I had been diagnosed in my early 30s with IBS and imodium helped.  I also had a rash on my elbows and back and that is when my new GP said maybe it is celiac and she sent me for bloodwork and 3 months later finally get to see the GI specialist.  I went gluten free and at first it was hard.  It is much easier now...I think at time I give myself contamination because I get some bouts of pain on occasion and I take buscopan and immodium and then I am fine....I am 100% convinced I have celiac but I guess I really do not understand how the rest of the panel would be negative... The rash, the GI symptoms, the B12, and the liver issue all paint a compelling picture...I never thought I would say this but I hope it is truly diagnosed because then I can move forward with a plan.  I am down 22 pounds and back at the gym very hard and feeling almost normal for the first time in many years....I also find is so strange that my "gluten" attack usuallys starts with a pins and needs tingly sensation in my back and tummy...I have written a full history and have copies of all my test results so the GI specialist takes me seriously...I read his reviews and they are not good....I understand I will have to do gluten before the endoscopy but that fine...just looking forward to this being partly over...Have a great day!  
    • http://www.cureceliacdisease.org/faqs/ You can also find lots of information on celiac at the University of Chicago celiac site.  One test they suggest is the anti EMA antibodies.  I don't see that one listed in her results.  Probably because it is more expensive to do.  So they may have skipped it.  The other test they usually do is the total serum IGA levels, which is used to prove that the person's immune system actually makes IgA antibodies.  Some people don't make IgA antibodies, so the IgA tests are useless in them. It looks to me like she makes IgA though, if this is the serum IgA result. IgA 133 mg/dl Reference range 33-200 There are also gene tests they can do.  The genes indicate the possibility of developing celiac disease, not the automatic presence of celiac disease.  About 30% of people in the USA have one of the genes for celiac disease, but only about 1% develop celiac disease. Some of the celiac genes are associated with other autoimmune conditions besides celiac disease.  So there are lists of AI associated conditions with celiac disease.  Sometimes called related conditions. http://www.drschaer-institute.com/us/celiac-disease/associated-conditions-1051.html
    • Blood was drawn this afternoon... they said I could get results tomorrow or even the next day! I also have a GI appt scheduled for June 9th. I am so glad I will have at least some kind of answer pretty soon. I'll let you all know. Thanks again for being so helpful!
    • Thank you so much for those links, I will check into it. Her pediatrician told me this afternoon she is wanting to repeat the bloodwork since that one test was elevated. I'm relieved that her pediatrician didn't dismiss it like the other dr in the practice did.
    • http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
  • Upcoming Events