• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I recently had my TSH level tested and is is apparently fine. Are any additional or different tests needed if the problem is Hashimoto's rather than straightforward hypothyroidism?

Thanks for any help you can give.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hashimoto's is handled like any other hypothryroidism. My endocrinologist runs T4 and T3 along with the TSH though. If you're only getting TSH and still having hypo symptoms you may need more testing.

Share this post


Link to post
Share on other sites

Thank you. I'll ask my doctor exactly what was tested. I am getting tireder and tireder and all the symptoms match.

Share this post


Link to post
Share on other sites

TO check for hashimoto's you specifically need to get antibodies tested. TPO and your thyroid antigloubin (i think the 2nd one is called that). You also should get a full thyroid panel that consists of tsh, t3, ft3, f4, ft3, and the antibodies. Iron and vit D are important too.

Share this post


Link to post
Share on other sites

thyroid antigloubin

Anti-thyroglobulin. ;)

I'm not meaning to be a pest, by the way. I just thought I'd put the right name in the thread so India can ask for the test from her Dr. I know them all too well because I have Hashi's. :( It doesn't matter much though. There is nothing to be done for thyroid autoimmunity other than give thyroid hormones and watch it like any other hypothyroid condition.

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x

Share this post


Link to post
Share on other sites

Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.

Share this post


Link to post
Share on other sites


Ads by Google:


I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)

Share this post


Link to post
Share on other sites

I think I may have to fight for the extra tests but I'll give it a go. Glad you've found a way to feel normal... I'm trying to remember what that's like. Your advice is appreciated :)

No, I don't feel normal. I've been having chronic migraines and cognitive problems since my Hashimoto's got bad almost two years ago. But natural thyroid at least keeps the hypo- symptoms at bay.

Share this post


Link to post
Share on other sites

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.

Share this post


Link to post
Share on other sites


Ads by Google:


My mother has Hashimoto's and although I have had every test under the sun for my thyroid, there has never been an conclusion as to the similar symptoms which I experienced. I can say however that when I am ill or something bothers me in my diet I can have everything from fatigue to a severe goiter. As I recently had these problems within the last couple of months I too was slightly low in vitamin d. Vitamin d being low can really make you feel miserable but a lot of times I will have hormonal problems right before I come down with something or am recovering, or even fighting off a cold and not having any other symptoms. In the process of fighting off an illness a lot of times I get symptoms that clearly are problematic but that show no abnormal levels in bloodwork. Further testing revealed no other problems but interestingly I have had some bad strains of bacteria in my system which causes my antibodies to attack my throat and thyroid, due to a hightened immune response. It is a reoccuring problem I have but sometimes I don't even realize I'm sick. It's quite easy for me to get infections and bacteria can build up without my knowing. Although you may have Hashimoto's if all bloodwork is inconclusive, I would recommend checking bacteria levels, infection, and def get plenty of sunshine. It makes a big difference. I take a supplement called ther-biotic detoxification support by klaire labs which counters the bad bacteria in your system by replacing it with good. My dietician or nutritionalist recommended it to me. That too is always helpful in preventing any buildup. I find that everything in my life is a result of some sort of nutritional problem. My problems have resolved on their own, next to sunshine, and preventing bacteria buildup. But i am no doctor and I do not know your situation. There are also other diseases, autoimmune, etc. that may cause thyroid problems and similar symptoms.

Share this post


Link to post
Share on other sites

Thank you for this extra info. I'll make a note of it all. Can the other tests show up something even if the TSH is normal? My wretched vitamin D always seems to be low.

Also, do the thyroid hormones help, or are you stuck with the symptoms? I do hope you've had sme success with treatment x

Yes, the other tests are separate from TSH. You will feel normal with thyroid hormones if they are necessary, though some people like me only find they feel normal with natural thyroid like Armour or NP Thyroid. Endocrinologists can be reluctant to prescribe natural thyroid supplements so you may have to fight for it if straight T4 (levothyroxine) doesn't help.

I agree with Skylark. It is important, once you are being treated for hypothyroid, to have them test your actual thyroid hormones. They should run the Free T3 and Free T4 tests along with TSH. TSH alone is not the way to adjust thyroid meds, it doesn't reveal much about your thyroid function if you are being treated with supplementary hormone.

"Normal" TSH could be too high for you.

Share this post


Link to post
Share on other sites

Actually there is SOMETHING you can do when you have hashi's (besides treating your disease with thyroid meds) you can go gluten-free. gluten-free can stop the autoimmune attack on your thyroid. If you have hashi's you most likely shuld be gluten-free.

Also taking supplements can help, iodine has controversy, i take it, and sellenium is know to bring down antibodies.

Share this post


Link to post
Share on other sites

and YES your tsh can be normal and you can still be suffering thyroid disease. The antibodies will tell you if you have hashimoto's , which is the autoimmune diseae attached to hypo thyroid:(

Share this post


Link to post
Share on other sites

I'm sorry to hear that. I understood that cognitive problems are a part of Hashimoto's and they are my biggest problem at present - you have my sympathy.

Thanks for the kind words. :) You have my sympathy as well. Cognitive problems are no fun at all.

Share this post


Link to post
Share on other sites


Ads by Google:


Hi all,

I was diagnosed with Hashi's a year ago. Was quite freaked out, as you can imagine. Did tons of research, but not much hopeful info. Anyway, I went gluten and dairy free, started with supplements, improved my lifestyle. My antibodies started going down in count and the last few tests they were pretty much gone! No medication, by the way, although my doc wanted me to start those if things didn't improve.

Yes. I believe gluten has something to do with it (read some reference to a study about it).

I really hontestly believe Hashi's can be cured or controlled naturally. Just have to find naturopath doctor. I have some references if you are in Chicago.

I lot of icky symptoms are gone, such as tiredness, being cold all the time, difficulty getting out of bed, cloudy thinking, etc. Even my acne disappeared :)

By the way, my doc also told me that Hashimoto's can be affected by other imbalances, such as low iron and adrenal fatigue. etc (which is what I had). So you kinda have to check for a bunch of things and balance all systems in order to achieve faster recovery.

If you want to know more about my experience, feel free to ask...

I wish you all the best and quickest recovery.

Share this post


Link to post
Share on other sites

Absolutely get the testing for autoimmune thyroid- I had always had normal TSH tests, but once learning I had celiac my GI ran the more complete thyroid panel (T3, T4 etc) in addition to the testing for autoimmune thyroid. I am normal on all of the above tests, but it is a great thing to know that and go on making myself healthy. It is such useful information.

Good luck!

Share this post


Link to post
Share on other sites

They can also do a fine-needle biopsy and look at the cells to see if Hashi's exists. I never got tested for that but had a partial thyroidectomy to remove some large nodules, and it was when they looked under the microscope that they saw the Hashimoto cells... and thyroid cancer. So, no thyroid for me anymore, but at least I know I have Hashimoto's (in addition to Celiac) so I have some awareness on what's causing my tiredness, brain fog, etc.

Get the AB test and if you suspect that's what it is, ask for the fine needle biopsy too. They only take out a few cells with a needle they insert into your neck.

Good luck!

Share this post


Link to post
Share on other sites

They can also do a fine-needle biopsy and look at the cells to see if Hashi's exists. I never got tested for that but had a partial thyroidectomy to remove some large nodules, and it was when they looked under the microscope that they saw the Hashimoto cells... and thyroid cancer. So, no thyroid for me anymore, but at least I know I have Hashimoto's (in addition to Celiac) so I have some awareness on what's causing my tiredness, brain fog, etc.

Get the AB test and if you suspect that's what it is, ask for the fine needle biopsy too. They only take out a few cells with a needle they insert into your neck.

Good luck!

There is no need to have a needle biopsy to check for Hashi's as the blood testing for antibodies will tell you that. The biopsy was used to diagnose before the antibody tests were developed. They usually do the needle biopsy if you have nodules.

Share this post


Link to post
Share on other sites

Hi all,

I was diagnosed with Hashi's a year ago. Was quite freaked out, as you can imagine. Did tons of research, but not much hopeful info. Anyway, I went gluten and dairy free, started with supplements, improved my lifestyle. My antibodies started going down in count and the last few tests they were pretty much gone! No medication, by the way, although my doc wanted me to start those if things didn't improve.

Yes. I believe gluten has something to do with it (read some reference to a study about it).

I really hontestly believe Hashi's can be cured or controlled naturally. Just have to find naturopath doctor. I have some references if you are in Chicago.

I lot of icky symptoms are gone, such as tiredness, being cold all the time, difficulty getting out of bed, cloudy thinking, etc. Even my acne disappeared :)

By the way, my doc also told me that Hashimoto's can be affected by other imbalances, such as low iron and adrenal fatigue. etc (which is what I had). So you kinda have to check for a bunch of things and balance all systems in order to achieve faster recovery.

If you want to know more about my experience, feel free to ask...

I wish you all the best and quickest recovery.

Some people can control their Hashi's without replacement hormone but those are few and far between. For many of us that went many years without a diagnosis, too much damage has been done and that cannot be reversed. Besides, it isn't medication that you take, just replacement hormone that you don't make enough of. There are natural thyroid supplements also, which work very well.

Share this post


Link to post
Share on other sites


Ads by Google:


I am having thyroid issues as well (very low fT3). I've been gluten-free for about 7 years now (am celiac) and had thyroid antibodies tested - 34, subclinical. My ND feels like my thyroid issues are likely Hashi's since I am celiac, and said that it's not surprising antibodies would be low since I eat gluten-free/autoimmune friendly. Since the majority of hyop cases are due to Hashi's, I'm inclined to believe her... anyone had any experience with this, subclinical antibodies but Hashi's?

Share this post


Link to post
Share on other sites

I recently had my TSH level tested and is is apparently fine. Are any additional or different tests needed if the problem is Hashimoto's rather than straightforward hypothyroidism?

Thanks for any help you can give.

I wish I had known about Celiac BEFORE Hashimoto's. I had my thyroid removed because I could not stop the autoimmune attack on my thyroid. My TSH was always NORMAL even right before I had my thyroid removed. My symptoms were all related to the auto-immune attack - I felt sick and had cognitive problems. I wonder if I had gone gluten free before I had my thyroid removed if I could have kept my thyroid. When it was removed the biopsy showed that my body had pretty well chewed it up! I don't think that the symptoms you have from Hashimoto's are limited to symptoms of low thyroid. For about 6 months I felt spectacularly awful and it was due to inflammation - probably of my thyroid and my gut. I did have to push my doctor to get me the tests and referrals I needed - it was a process, after every test that showed I was 'normal' and 'healthy' I felt like I had to start over with OK, I get it I don't have "X" diagnosis but I STILL FEEL CRAPPY! What next? Perseverance paid off...I got my dx for Hashimoto's and Celiac and although I still get glutened I am getting better! Hang in there - and keep pushing your doc.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,431
    • Total Posts
      941,233
  • Member Statistics

    • Total Members
      66,361
    • Most Online
      3,093

    Newest Member
    Louie17
    Joined
  • Popular Now

  • Topics

  • Posts

    • Turkey, vacuum pack it, you can use it later for soups, stews, sandwiches, omelettes etc. Will keep for months in the freezer

      Dressing,
      You can use it in various ways my fun thing to do with it is moisten it back up a bit and load it into a waffle maker these can then be frozen or eaten when ever, dressing and sausage flavored waffles are AWESOME.
      Other leftovers can be put in a icecube tray and froze these cubes can be kept in a bag in the freezer, they are perfect for just putting a few in a bowl and zapping in the microwave later for quick meal, I love stir frying them in with eggs.

      Gravy, Gravy can be frozen in icecube trays, and kept in bags, you can then put these over bread, mash, etc and melt them over them later in the microwave or use in a soup like a stock to add flavor.

      Most Desserts can be frozen but around here I have hardly ever had any last the next week.

      Mashed potatoes, again these can be loaded into icecube trays frozen and kept in bags for quick reheat and use meals. Goes great in soups later to thicken them up. Green beans, after thanksgiving....you might want a new flavor thankfully the green beans can be incorporated into another cuisines using spices, in a soup or stir fried Asian style in coconut secret teriyaki sauces.
      Casserole dishes honestly freeze quite well in may cases, I have not had many survive the next week but often you can top them other other cuisine spices or sauces and fry them up in a skillet or reheat in a bowl for something different.  
    • Appreciate the thorough responses.    The stomach issues have been dreadful the past few weeks and brought hurrendous awakenings.the worst I have slept in a long time. I have had a few gluten foods in all honest. Maybe a mcdonalds twice in 2 months. Which isnt ideal. But I dont seem to feel anything afterwards (terrible excuse I know)  My biggest worries were my memory and cognitive behaviour! I was in London Bridge station and forgot where I was heading for 15 minutes. My memory is terrible, as is the concentration. So its a bit of a battle at the minute and I am flunking in my new job. I feel like as you said, neurologically I have deteriorated. Wit and brain function out the window. Considering I was a pretty switched on person. Balance and diziness at points. (all this on a gluten free diet after 4 months triggered me too my mcdonalds binge) ha ha.  I think the memory was the worst.    As you said about the brit medical side being useless. I think you are correct. I understand its the NHS and free etc. But this is just not considered a worry. Ive considered pulling myself into A and E this past few weeks because of the pain and I know this is the only way anyone will give me a thorough look over. I was also sent for a bone scan ( no reasoning as to why) But from research it seems to be for searching the nutrients in the bone?    Neurological side has been really i think what has been the toughest. My job requires an awful lot of high concentration and memory. Which when I fail at, causes stress, and then I am caught in the vicious cycle! Thanks for the help guys. Nice to meet some fellow people who can relate. I just feel like celiacs seem to know more then the doctors, which shows primitive practice in order to solve it. Once again, I would never know the NHS or doctors. I understand free health care is health care. But how low on the list this is, is a worry.    
    • I get vomiting with large amounts of gluten, and motion control loss, followed by either Diarrhea or constipation for a week was back in June 2016 when I decided to eat at a new place, I was on my floor unable to move vomiting so hard there was blood in it.
      NOW trace amounts I have gotten sense then and confirmed via Nima Gluten sensor then following lab testing have show that for me I get constipation, gas, bloat, and nerve issues with fog and peripherally neuropathy. The vomiting was missing from stuff confirmed at 6ppm, but obvious other nerve and fog issues were apparent (I kept dropping stuff and walking into things, mind kept on wondering and having those what was I doing moments, topped with backed up to hell with painful gas)
      Everyone is a little different and symptoms seem to change and evolve with time and type/form of exposure. I used to get a angry Mr, Hyde rage mode, and weeks of constipation and I used to not have the motor loss issues just brain fog and looping thoughts. It changes

      The cause is mostly due to your antibodies going up and your immune system attacking your own body, where it attacks, how, and to what degree greatly varies and after a exposure it can take weeks to wind down off the response and for the antibodies to go down. Just giving a basic idea here.

      Once you get exposed all you can do is treat the symptoms and wait it out, up supplementation of b vitamins, magnesium etc. Take pepto, or Imodium depending on what you have, teas and bone broths and try to eat easy to digest foods for the next week, Mushed up, blended, purreed, stewed/steamed super soft foods.
    • Hi everyone,  Once again I am here looking for your help. I was diagnosed with Celiac less than a year ago. It took quite a while to find out because I didn't experience any particular symptoms after eating gluten. I was always tired, had memory problems and was frequently ill; sometimes I had gastrointestinal issues, but they came and went.  Last night I went out for dinner, to a Thai place I trust(ed). Later, I could hardly sleep, I had horrible nightmares, those where you can hardly tell apart when you are awake or not. I expected to have high fever but nothing!  Today all my body aches, I am very tired and was nauseated all day. A little bit gasy and bloated as well.. Was I glutened?? Did I already clean my body enough that I now start to react in this fashion? If so, why does that happen?  There is also gastroenteritis going around, that would be the alternative explanation. I thought I excaped it. I also didn't vomit or have diahrrea like the rest.  What do you think?
    • With a positive EMA and a positive tTg, that is a slam dunk for Celiac Disease.  If you read about testing results, the odds are 99% that you have it. You also had very high numbers on your testing so that adds to the diagnosis.  At this point, the biopsy, if you have it done, is to check for the amount of damage, and is not needed for a diagnosis. I declined the biopsy as I was very sick at diagnosis.  The doctor who ran my blood panel said there was no doubt I had it due to the high numbers on my blood work.  I have been gluten-free for 12 years and every single doctor I have ever seen since then, who whined about me not having the biopsy, shut up about it once they saw my initial blood work.  The difference in my health since going gluten free was nothing short of amazing. I am sure you will have the same results, once you go gluten free.
  • Upcoming Events