• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need To Vent About How Others Are Treating Me!
0

10 posts in this topic

Well I guess I'm just here to vent about something that happened yesterday. Ive been told already that I should get new friends and that I should find a new church. I have made new friends, but I don't want to leave my church, and I have a few good friends so we're all good there. Just need to vent!

Yesterday, the teens at our church got together for some food and fellowship. I had my mom bring me some Five Guys french fries. I was eating them and then I realized that someone just took one off of my plate, but they had honestly forgotten that they weren't supposed to touch my food. I gave them the rest of my fries. One of my other friends accidentally drank my soda, so I went upstairs to get a new soda. When I came back down a group of kids stopped talking and said "Even my mom thought this was funny, come on let's go upstairs I'll tell you this story." My friend said "Before you tell that story, you might want to think it through, if it's necessary to tell!" They all went upstairs anyways and I sat down and I asked my (2)friends what that was about. They said, that they were talking about me and how I "faked" being glutened at a past year of camp. (The whole story of that is in one of my other posts). They were making fun of me and went upstairs with a few other kids to tell them all about it and how much I "exaggerated" and how "funny" it was that I was sick. For the record I was sick, and I was not faking it, although that's what they all think. Do you know how horrible it is to be sitting with your only 2 friends knowing a whole bunch of kids just went to another place to talk about you and your health issues?!?! I tried to compose myself but I just felt like crying. They all came back downstairs a few minutes later all laughing but acting like nothing was different. They didn't know that I knew they were talking about me. Me and my two friends left them to go somewhere else and all i said was "If you want to talk about me, feel free to do it in front of me." I tried to forget about it but it just bothered me so much, because as some of you may know from my other posts, these kids really don't believe me and get great pleasure out of talking about me and my celiac disease behind my back. Or to my face for that matter! A leader asked me what was wrong and I told her. She had them apologize to me. They did it, but you could tell some of them didn't mean it. They all gave me hugs, but one said "I just don't do hugs when I'm apologizing" All I could think was "Yeah, probably because you feel like such an IDIOT for the way you wre acting"But the thing is they don't even seem to have a conscience! They can make fun of me, get in trouble, apologize to me, and it doesn't phase them a bit! But I'm always the one who ends up getting left hurt in the end. I'm thankful for my two friends! The one stood up for me and the other talked to them after and explained to them how careful I have to be and that it's not a joke. They are both AWESOME and i'm lucky to have them!But the rest....I just can't stand. One of the rude kids told the others "I'm just done trying to be her friend" Well, Im not the one making fun of the other, so it is definitely not my problem that we can't be friends! Ok sorry thanks for listening. I just needed to get that out.phew i feel better( a little) haha!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am sorry this happened to you. It sounds like alot of immaturity on your friends' part. Don't take this personally, realize what they did is their issues. I think it is very hard to undersatnd unless someone walks in your shoes. I too have had all kinds of weird comments from family but wonderful support from my friends but we are all 50ish and do think that makes a difference.

0

Share this post


Link to post
Share on other sites

I have had problems like that with my family. You would think they would know better. They are not youngsters. Teens could possibly be forgiven for acting so immaturely. However whomever does it its got to hurt and it does IMHO. I just would not associate with them. You have better things to do. Just don't speak with them any longer. Take up other interests. Thankfully you do have two good friends. I suggest you drop these other so called friends who abuse you even behind your back. IMHO they are not friends at all but rather narrow minded jerks. Even with my family I don't relate with the worst offenders any more. Life is just too short IMHO.

0

Share this post


Link to post
Share on other sites

Those immature creeps are not worth you bothering to even think about. They are creeps! Drop them like hot potatoes & keep your 2 true friends. Don't associate with the creeps even if you have to go to a new church because these kids certainly don't have any conscience & are not acting in any kind of christian manner.

The only solace is that one day these kids who are being so nasty will most likely deeply regret what they did to you but it will be too late --- you will have your life & they will not be able to go back in time & be proper human beings. It will haunt them. One day when you're 40 or 50 you may open your front door to find one of them standing there wanting to apologize & clear their conscience.

0

Share this post


Link to post
Share on other sites

You aren't alone in being tortured. My oldest daughter (17) went gluten free after my diagnosis and is feeling much better. Sadly, her 15 year old sister is a brat. (They don't live with me so I have little to no control over their daily behavior.) The youngest has spent 2 months picking on her older sister. I finally got through to her when she was whining about how her big sister doesn't want to bake for her anymore. I was like "duh... she can't eat it and you're being cruel, would you want to cook or bake something amazingly delicious that you want terribly badly to eat but can't?" Teenagers in particular seem to lack any real type of empathy, and while terribly cruel I'd recommend just trying to shrug them off as jerks who aren't worth the bother of being upset about.

1

Share this post


Link to post
Share on other sites
Ads by Google:


Sweetie, you shouldn't care. The more you care the more it effects you, and your two good friends. No one else. It won't effect those who are causing your pain.

1

Share this post


Link to post
Share on other sites

Thank you all for your advice :) I try not to care but I see them atleast 3 or 4 times a week and just the constant rude comments get to me after awhile. I will try to not let it bother me:) but that's what this forum is for, getting help and advice and just venting when you need to right?:)

0

Share this post


Link to post
Share on other sites

Thank you all for your advice :) I try not to care but I see them atleast 3 or 4 times a week and just the constant rude comments get to me after awhile. I will try to not let it bother me:) but that's what this forum is for, getting help and advice and just venting when you need to right?:)

Yes this forum is a safe place for you to vent. Do feel free to do so.

We all have to deal with bullies whether they are in school, church, in the workplace, etc.. It is hard not to let it bother you but try not to dwell on it too much. Spend as little time as you can around those people and when they are not around try not to think about them. Chances are good that at least a couple of them will be diagnosed themselves eventually as gluten issues are much more common than a lot of people think and doctors are starting to realize it and test for it more. I believe in what goes around comes around and try to deal with folks like them by telling myself that one way or the other......

1

Share this post


Link to post
Share on other sites

Thank you all for your advice :) I try not to care but I see them atleast 3 or 4 times a week and just the constant rude comments get to me after awhile. I will try to not let it bother me:) but that's what this forum is for, getting help and advice and just venting when you need to right?:)

Vent as much as you like :-) Have fun with your two friends and don't waste your time on those who don't matter to you. Who cares what they say or think as long as you're happy.

0

Share this post


Link to post
Share on other sites

I hated being a teenager. It's so painful. It didn't get better until I learned to stop worrying about what other people think. People talking behind each others backs is a simple fact of life and you have to get used to it. It's not a big deal until YOU decide it's horrible. Then it's horrible. You are in control of your thoughts and what goes on in your mind, not them. You can stop the pain by ignoring what they say and choosing to love yourself (including your celiac disease) instead.

I believe this is the sort of situation Jesus was talking about when He said "turn the other cheek". Don't let it bother you, don't react, don't insult back, don't try to defend yourself (they will just tell more lies), don't worry about what goes on behind your back, just turn the other cheek while you remember that the things they are saying are simply untrue. They can talk behind your back, but they can't take away your dignity, confidence, and self-love. Try to find some compassion by understanding that these kids are so lacking in real confidence that the only way they can build themselves up is by breaking someone else down. What a pathetic way to live!

The only thing that matters is that you have a couple good friends, which it sounds like you do, and that the adults around are helping you get safe food.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,395
    • Total Posts
      930,317
  • Member Statistics

    • Total Members
      63,812
    • Most Online
      3,093

    Newest Member
    Teressa
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would say get retested, to be sure, do a gluten challenge with her where she eats gluten for 12 weeks, not much just a half slice of bread a day or a wheat cracker for the blood test and 2 weeks for the biopsy. You mentioned bumps, and dry patches...this might be DH from celiacs and if it is you can go to a dermatologist and they can test it. In some people with DH reactions to gluten, their intestines do not show much damage as most of the antibodies are directed elsewhere. In this case you would have your symptoms. Now Celiac is a autoimmune disease that commonly has other auto immune diseases associated with it. NOW if your daughter has the gene for it she could have another automimmune disease I am not very familiar with and someone else might be able to help you more on suggestions for testing. Now in my personal opinion it sounds like she was still getting into gluten when you said she was off of it. NOTE gluten is a tricky bugger, it is a protein smaller then a germ that can stick in cracks and scratches on all your utensils, food prep area, knifes, etc. As a flour it can hang in the air for hours and even be inhaled effecting some of us. It is present in a lot of things we do not consider, like makeup, playdough, shampoos, seasonings, sauces, even some dry wall spackles.  Now if she is in a shared house hold with other kids and not everyone is on this diet she has likely been getting into gluten somewhere, like touching glutened surfaces the other kids touched after eating gluten foods then putting her hand in her mouth or on safe foods. Or just randomly eating gluten foods, note symptoms can last weeks and wane from how it is effecting you. It does not take much to trigger symptoms you might have to be more careful and move her to a whole foods only diet, and have a separate prep area, utensils, cooking zone for her if you wish to keep fixing separate meals for her vs the gluten family.     I would suggest just changing the entire family over, anyway perhaps start with a separate fold out table, use freezer paper to line the prep area, a microwave, mini toaster oven, and some microwave cook ware like steamers, steam bags, etc. and using gloves to fix her meals. She will need her own condiment jars (crumbs in hte jars) and area for safe snacks. I would suggest getting her only gluten-free CERTIFIED FOODS for now. You can find some whole food healthy snacks at mygerbs.com, and a few other places. I will provide a link to gluten-free food list. PERHAPS you can change the entire family over....now days it is more like changing brands as everything you used to eat is available in a gluten-free brand. ALSO have a lot of dairy free options there. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
    • Hi wondering if someone could help. my daughter has mildly raised TTG  levels and the gliadine levels, she has one Coeliacs gene, but her biopsy came back negative.   We have kept her off gluten (and low dairy) for nearly a year to see if her symptoms improved.  They haven't.  But I don't know if they are related to gluten specifically.  Just wondering if anyone has other suggestions that may be going on with her.  Her symptoms are: - Short stature, she's nearly 9 and my 6 year old boy is nearly bigger than her - bumps on back of her arms - urine leaking and occasional soiled pants, which could be from constipation she has at time's - sticking out stomach - dry patchy rashes on her face - joint pain sporadically - vomits every 6 weeks, but hasn't had gluten and seems to be no food connection - reoccurring thrush She had gluten last night at a party and was fine today. I'm a bit lost and not sure where else to turn.  Thanks for any help.
    • We have gone gluten free, our whole house, as of a month ago. It was pretty seamless since I had been gluten-free for 5 months last year. I have found many good recipes, and my picky husband and one of my boys who is also a picky eater, even prefer many gluten-free recipes to the regular ones.  My husband did see my point about the size of the gluten protein means nothing. Its a gluten protein period, that's what you are avoiding. It doesn't matter if its hiding in the scratch of your baking sheet and you can't see it. You can't see the wind, but it's still there. I hear you on the anemia. I've been anemic for several years, I just thought it as because I was getting a little older. Has your anemia gone away or do you still have problems with it? 
    • Ennis, it is made out of metal, coated with plastic I think. You have such a hard time, my heart really hurts for you. But you are such a support to those on this board, and a great teacher for those of us who are new.  
    • Thanks everyone! I think its hard for people to fully accept because they cant see the damage it does every time you get glutened. It's invisible. Im glad to know I wasnt being paranoid. I sure was when I was first diagnosed. I laugh at myself now, but its a pretty steep learning curve. 
  • Upcoming Events