• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Starting Gluten Free Diet For Child
0

Rate this topic

5 posts in this topic

Recommended Posts

Hi, I have just registered with the site as I have been searching the web for weeks now to try and find out what could be wrong with my 11year old daughter.

When I look back over the last two years there have been times I remember her saying she feels sick or has tummy ache. She is very active and involved in lots of sports clubs but over the last 4 weeks she has stopped them all as she has been so unwell. From an early age I mentioned whether she may have Asthma as she suffered from a lot of chest infections but was always just given antibiotics, after a visit to A & E about 3 years ago she was prescribed an inhaler but even though she has kept up with the preventer and inhaler the Doctors would never officially say she has Asthma. At a doctors appt last September we mentioned the tummy aches/sickness and muscle pain and was told that it all came down to growing pains and the fact that she does a lot of sport.

Over the last six months the feeling of unwell has become more often and before Easter she was struggling to go to School, another visit to the doctors and was told basically there was nothing wrong with her, even though she was now feeling sick constantly and having several very loose bowel movements every day. I asked the doctor about food allergies and he looked at me as though I had said something wrong, he said it was very difficult to get tested so we should keep her off dairy for a month and if no improvement remove wheat/gluten from her diet. My daughter and I left feeling very frustrated. Within a week we were back at Doctors (different doctor) and after weighing her again noticed she had lost a bit of weight. The doctor booked a blood test and stool sample and prescribed her Zoton in case it was a problem with too much Acid in her tummy. After a week of no change I took her off the Zoton tablets as they had Lactose in them. Back at the doctors we were told her tests were normal and the doctor handed me an information sheet about celiac disease. Since last Thursday she has been on a lactose and gluten free diet and the tummy aches have almost gone but she is now struggling with headaches and a tight chest.

I apologise for the long post but I am very frustrated with not getting any answers. I finally demanded that she be referred to a Peadatrician but why didn't they test for this originally because if I do see more improvement I can't imagine putting her back on a Gluten diet just to be tested again.

Any help or comments would be greatly appreciated as I feel like I am on my own.

Thanks Ruth

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I hear you on the 'feeling like your on your own'. It's so frustrating. I am still learning to trust my mommy gut. And from reading about your daughter, I think you should trust yours! I'm a newbie here to so am sure you will get some really helpful info from others on here - I already have.

I am one who has not gotten the official test done on my son. After the myriad of things he's gone through and doctor after doctor brushing the food sensitivity idea off, I ventured on my own. I did take him to a couple of alternative med specialists...both pointed out gluten and milk immediately. Why is it not an obvious answer for a regular doctor??? Anyway, I went ahead and removed them and it has helped him so much.

I know one reason people want the official diagnosis is it will help with getting the schools to comply. The way I got this accomplished was I started journaling what my son ate and his reactions. After doing this for a couple weeks or so, I put the information together, and sent it along with a letter to my doctor explaining my observations of him off gluten & dairy vs. on it. I requested she fill out the form for the school so I could go a full 30 days without either and then re-evaluate after that time. The doc went for it!

Anyway, long story not so short (sorry) - if you can't get your doc 'on board' with you...move on without them. Moms know best! :)

Share this post


Link to post
Share on other sites

By the way, I should dd that I don't intend to come off as saying a diagnosi isn't important. It is. If you feel you are on the right track, then keep at it. Good luck.

Share this post


Link to post
Share on other sites

I would urge you to get a copy of the test results so you can see if the proper tests were done (often the entire celiac panel is NOT done).

Keep you child on gluten if you are going to seek a second opinion.

Our first Pediatric GI said my son does NOT have celiac based on his genetic test (so just ignore his odd blood tests?) When I pressed him further, he told me I had "read too many magazines . . ."

Luckily we live in Boston and our Children's Hospital has a special Celiac unit. We took him there and they did an endoscopy and found him to have extensive damage.

Trust your gut and don't give up until you have answers.

Cara

  • Upvote 1

Share this post


Link to post
Share on other sites

Thanks for your responses, it all really helps to know that there are others are in the same position, I should have said the blood test wasn't for food allergies, it was to check liver function and general health, that is why it is frustrating when they could have checked for it.

Have been reading other posts and all have been very helpful.

Thanks again X

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,133
    • Total Posts
      939,840
  • Member Statistics

    • Total Members
      66,113
    • Most Online
      3,093

    Newest Member
    cb1105
    Joined
  • Popular Now

  • Topics

  • Posts

    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
    • I see banana pudding in your future! ENJOY! I'm glad you came back to report what happened with the cookies.
  • Upcoming Events