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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Importance Of Vitamins
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17 posts in this topic

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

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Ugh

Sorry for all the typos guys. I am posting on an iPhone with a dubious autocorrect feature and my fingers are clumsy.

And I'm OLD! LOL

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I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

It sounds like you have villi damage with those deficiencies? It will take a while to heal to the point that you can absorb these vitamins/minerals from your diet alone.

Supplements are a good idea. Be sure to read the ingredients to avoid gluten. A good multivitamin, probiotics, D3, fish oil, and a B complex. A calcium with magnesium and zinc would be good too?

Honestly, the supplements I take are keeping me functional. I just don't absorb what I need from my foods, and even with them, my numbers are low in some of them.

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I recently found out I was vitamin deficient, and I am currently waiting for my celiac panel to come back. I have had stomach issues for years, but over the last year I was extremely fatigued, joint pain, chronic colds and sinus infections, fevers, and I was emotionally all over the place.

I have been on supplements for about three weeks and am marginally improving. I actually hoping for a positive celiac test because I am anxious to go gluten free. I really think that will help with a lot of my other issues. I tried gluten free a few months ago, loved the way I felt... but then life got in the way and I started to cheat. I kept telling myself that I really didn't HAVE to be gluten free. But the more gluten I ate the worse I have felt.

Anyway... that is my experience so far with vitamin deficiency. :)

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I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

Yes, it can take a long while to correct the deficiencies.

I'm 9 months gluten-free and last labs showed they are going up but not where they need to be. It takes time.

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Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

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Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

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Do you guys have problems with your teeth shifting? I thought it was a problem with low vitamins but I had my vitamin levels checked and I havent heard back from the doc.

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Bubba's Mom

It's funny you suggested the fish oil. I have been craving sardines for a while now. My favorite Tiny Tots brand is a little pricey so I will certainly look into the fish oil supplement. I will still splurge on the sardines once a week! Luckily my husband loves them too so the temporary cat food breath isn't so offensive. :-)

Thanks for your suggestion. And for many other great posts of yours I have read.

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I am struggling with a Vitamin D deficiency. This is going on year 2 of my struggle with it. I was first at only a level of 14, my doctor had me taking 10kIUs a day, I got back up to 55, and then 5,000IUs as my maintenance dose, but my level started dropping and by this winter I was back down to 23. They don't seem as concerned this time, but I am aware now that my fatique is a direct correlation to my vitamin D levels. I am taking 4,000IUs now a day and feeling much better.

i have never been specifically checked for B12, but I have started to wonder if it is low and started supplmenting. I also had my thyroid tested but everything checked out.

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I take B12 sublingual, D3, and Magnesium. For those taking cal-mag, my doc strongly advised me to not take them together. There's conflicting info on the web but the conventional wisdom says that the calcium blocks the magnesium absorption. I started with a cal-mag supplement and was still having issues. Once I switched to mag only I saw improvement.

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Metoo,

Wow! Your levels have been worse than mine. Mine was 19 six weeks ago. I am taking 5,000 units a day. It's good to know that the symptoms are so strongly correlated to the D levels. Keep me posted. I'd love to hear how you are doing. I am getting B12 shots once a month and taking 2500 sublingual a day. The symptoms of low B12 are many and varied. Chronic deficiency can lead to mental issues, nerve damage, fatigue and weakness, pernicious anemia, etc. One good thing is B12 supplements are not expensive, the sublinguals taste good and you can start taking them without a diagnosis as they are a water soluable non toxic vitamin. I say go for it!

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Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

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I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

If you get fish oil, make sure you get the triple strength otherwise you are really getting more omega 6s than you want to. We get enough of that in our regular diets, and we're usually short on the omega 3s. Triple strength is a better balance. Also, flax seed oil used to be considered a good source of omega 3s, but my doctor says current evidence has shown that humans do not metabolize it the same way as the lab rats studied do. So, he recommends either fish oil or algae oil, if your a vegetarian.

Luddie

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Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

My doc suggested 400-500mg of chelated magnesium to help with headaches and an ache in my thighs. While not completely resolved, I did see improvement (less frequent episodes) once I ditched the cal-mag and went straight mag. I take 500mg.

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Aren't vitamin B12, iron and zinc the main deficiencies? Magnesium deficiency is probably an important one to consider too, isn't it?

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