• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Negantive Celiac Sprue Blood Test
0

10 posts in this topic

Even after my Celiac sprue blood work came back negative my symptoms continued until I totally eliminated all gluten from my diet. Finally 6 months later the nausea, diarrhea,skin lesions, weight loss and fatigue have finally ceased. The depression, anxiety, insomnia and a host of other physical ailments I had as well are gone as well. PROBLEM- I can't find a doctor who believes me! Has anyone else experienced this? Even the slightest amount of gluten starts an "attack"!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Don't worry about a doctor...I spent 7 years trying to convince there was something there...but as long as you feel better, what difference does it make? They don't need to give a prescription for you to eat gluten free...eat gluten-free for yourself, not the doctors!

0

Share this post


Link to post
Share on other sites

I think we just have to accept that some doctors don't know what they are doing.

I never said ALL, I just said SOME. If you feel better when gluten-free, well, eat gluten-free. You probably are a coeliac or gluten intolerant, either way, as long as you feel okay!

1

Share this post


Link to post
Share on other sites

Don't worry about a doctor...I spent 7 years trying to convince there was something there...but as long as you feel better, what difference does it make? They don't need to give a prescription for you to eat gluten free...eat gluten-free for yourself, not the doctors!

I am staying gluten-free for me and for the first time in YEARS feeling better! Thank goodness I found this site and forum to get some support. Thank you all so much! From what I have been reading on here I am sure I have the disease and am pretty sure my blood test was negative because it is advanced. I don't think I need an invasive biopsy to figure that out.

1

Share this post


Link to post
Share on other sites

I think we just have to accept that some doctors don't know what they are doing.

I never said ALL, I just said SOME. If you feel better when gluten-free, well, eat gluten-free. You probably are a coeliac or gluten intolerant, either way, as long as you feel okay!

I am SO MUCH better and grateful I found this site!

0

Share this post


Link to post
Share on other sites
Ads by Google:


I am staying gluten-free for me and for the first time in YEARS feeling better! Thank goodness I found this site and forum to get some support. Thank you all so much! From what I have been reading on here I am sure I have the disease and am pretty sure my blood test was negative because it is advanced. I don't think I need an invasive biopsy to figure that out.

I didn't know until after the fact I had to be eating gluten (bad doctor) so of course mine came back negative. Oh Well I'm not going back to get retested. I've been gluten free for a year and a half and am feeling awesome and that's all that matters!

0

Share this post


Link to post
Share on other sites

I am SO MUCH better and grateful I found this site!

:D Hurray! So am I, as well!

0

Share this post


Link to post
Share on other sites

Welcome to the site Marini and Meteto! :0

Marini, you are so right. It is best to eat what makes you feel right, regardless of tests or what other people may think of your diet. We are still learning about celiac disease and doctors re just starting to admit that there is such a thing as NCGI (non-celiac gluten intolerance). So lots of things about this condition and the diet are left to us to figure out ourselves. That's why this forum is so useful as we can get info from other celiacs and how their bodies respond to different foods.

And Happy Easter to both of you! :)

0

Share this post


Link to post
Share on other sites

Welcome to the site Marini and Meteto! :0

Marini, you are so right. It is best to eat what makes you feel right, regardless of tests or what other people may think of your diet. We are still learning about celiac disease and doctors re just starting to admit that there is such a thing as NCGI (non-celiac gluten intolerance). So lots of things about this condition and the diet are left to us to figure out ourselves. That's why this forum is so useful as we can get info from other celiacs and how their bodies respond to different foods.

And Happy Easter to both of you! :)

I am figuring out more and more things for myself thanks to this site and the info on the net. Years ago my eyelashes and eyebrows fell out and never grew back, my hair quit growing. Since switching to gluten-free products they have grown back! I can hardly believe it! My hair is past my shoulders for the first time since high school too. I do have lots of scars on my arms and hands from the lesions I had last fall (I wish my doctor would have biopsied them, someone told me she could have, but she never mentioned it) but the constant itching and rash is long gone. THANK YOU Celiac.com!

0

Share this post


Link to post
Share on other sites

That's great Marini! wow, hair growing back in is fantastic. The damage to our intestines can cause us to not absorb nutrients, and that leads to lots of problems. The fat soluble vitamins are the ones they say don't get absorbed well.

Have you checked out the dermatis herpetiformis section of the board? That's the skin rash that people with celiac sometimes get. Some of the people with DH say that they have to avoid iodine in their diet or they get flares of the rash.

Dermatitis Herpetiformis on celiac com

This site has a listing of the fat soluble vitamins and their uses in the body. I don't think this is a complete list of symptoms though.

Fat-Soluble Vitamins on Colorado State University site

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,023
    • Total Posts
      933,879
  • Member Statistics

    • Total Members
      64,594
    • Most Online
      3,093

    Newest Member
    LeaR
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night. If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded guess. 
    • You mentioned the fatty liver, so my mind went there right away.  Try your local celiac group for docs.  Or,  https://celiac.org/blog/2017/06/dr-sheila-crowe-becomes-president-american-gastroenterological-association/
    • I can not digest most meats or animal fats, animal wise I only consume egg whites, and once or twice a month have fish or crab. Quite easy, I found many meat subs, like jackfruit, beyond meat crumbles and beef, using cumin in stuff to give it a meat flavor. Making my own cheese sauces and using diary free cheeses all the time. I live on a ketogenic diet of just fats and protein unable to eat sugars or carbs due to UC and it causing flare ups. And allergic to corn, I eat a ton nuts, seeds, egg whites, and green leafy veggies. I go through lbs of almonds and coconut a week, <.< and about 3-4 cartons of egg whites, and 1-2lbs of vegan protein powders. I found a great carb free noodles and rice subs from miracle noodles that are a stable, nutiva butter flavored coconut oil gets used for cooking everything and slathered on julian bakery bread toast which is grain free nut/egg white based bread. I love and have posted my recipes for vegan cheese biscuits and garlic knots in the recipe area. My approach is quite unique since I can not have rice, corn or quinoa, or other carbs. But if you can have them you have many more options then I do.  
    • Hello everyone! I haven't been on the forum in awhile hope everyone is doing well! After about almost 3 months of being gluten free I'm finally feeling quite a bit better. I have so much more energy and just a better outlook on life. I'd say my good days are finally outweighing the bad!   So I had  question (I wasn't exactly sure which topic to classify it as though). Is anyone on here a vegan as well as being gluten free? I have been really getting into eating healthy and working out and I've been watching many documentaries on food. Almost all the ones I've watched say a plant based diet is really the best route to go. So I had been thinking about going Vegan since about March I'd say, I for the most part, am almost a vegetarian (meat is like an occasion). After watching another health/food documentary last night called "What the Health?" on netflix it really made me want to go vegan. In the doc. they explain how the WORLD HEALTH ORGANIZATION did research and actually classifies processed meat as a "GROUP 1 CARCINOGEN" right next to CIGARETTES!!! They also explain all the cancer, diabetes, and heart disease risks that go along with animal products and how genetics only really play a role about 5% of the time. Now believe me I go into these shows open minded but skeptical since I know there's a lot of bias information out there but this documentary really blew me away. I have a decent background in science (having a bs in animal science pre-vet studies) and everything they say makes scientific sense (to me at least).  How would one go about even being vegan if there is so many grains we cant have? Is there anyone out there thats done this?  Thanks in advance! 
    • I had high antibodies, no symptoms, and a positive biopsy.  I am glad you are getting a second opinion.  I'm glad celiac can be treated (gluten free diet) without a doctor's prescription, since so many doctors do a poor job diagnosing it.
  • Upcoming Events