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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Loss Of Appetite
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GaryR    0

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

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Bubba's Mom    103

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

It sounds like she's had a rough time? A lot of us tend to equate eating with pain, but we have to eat! It's important to find safe foods that are nutricious. Fruits, veggies, non-processed meats, eggs, nuts, are all good for us. It's best to avoid milk/dairy at first.

Some of her not wanting to eat can come from vitamin/mineral deficiencies. Did she have a Dr. run a blood panel to check her levels?

It's common for Celiacs to be low on B vitamins, especially B12, D, and iron. Cold feet could point towards low iron levels?

Probiotics help food digest and digestive enzymes really help at first too. Adding these should help food digest and not just "sit there" making her feel uncomfortable. Fish oil is an anti-inflamatory that most people benefit from too.

She's lucky she has you on her side. Ask to have the blood tests done if they haven't been, and look for gluten free supplements. She will probably need them until she heals and can eat more?

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rosetapper23    236

Like the previous poster, I agree that she may be suffering from nutritional deficiencies (especially B vitamins). There is also the possibility that she is reacting to any hormonal treatment she may have been given in the hospital or afterward. Is she on some type of hormonal treatment for her previous bout with cancer? I can state from experience that when women's hormones are messed with, we can have very bad reactions that particularly affect our appetite and digestion. When certain hormones are low, there can be malabsorption of Thiamine, which can cause all the symptoms you described. However, she may be reacting to ANY medication that she's been given....or reacting to a low-hormone situation where she needs some kind of supplementation. By the way, were her medications checked for gluten?

In the interim, she should attempt to eat some healthy saturated fats to help her absorb fat-soluble vitamins. Good choices would be avocados, nut butters, organic butter, and olives.

You might wish to examine the list of common symptoms of nutritional deficiencies at this website:

http://www.behealthyatwork.com/pdf/Deficiency-Toxicity.pdf

I would like to echo the sentiments above, too, in that your sweetheart is very fortunate to have someone looking out for her and who has her best interests at heart.

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Bubba's Mom    103

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

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Skylark    935

You mention a hospitalization. Was she put on antibiotics? As well as vitamins she may need probiotics. Having your digestive system messed up with antibiotics can cause all sorts of unpleasant problems and make food not sit well at all. Get her something good like Ultimate Flora. :)

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terikit    0

I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

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IrishHeart    1,634

I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We have discussed this many times on here and everyone seems to have a "favorite" :lol:

Some good ones are:

Ultimate Flora

Custom Probiotics

Culturelle

and yes, a celiac gut needs them. Hope it helps!

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GaryR    0

I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We had similar issues.......check the toothpaste/make-up/ shampoo/ bubblebath. I know it may sound strange but as someone pointed out to us your skin is porous, thats how Nicotine patches work.

Gary.

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AmyB22    1

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

So happy to read this comment. I just replied to a weight loss comment mentioning medical anorexia as explained by my dr.

Thank you.

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