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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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LuckyAtlas84

Hunger Pangs

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Everybody have experience the differences in their hunger pangs since they got on the new diet after get off the gluten foods?

I am still newbie at gluten free diet. I has been learning so much and starting realizing that there are certain limitations on kind of gluten free processed foods.

I hasnt ate too much of gluten free processed foods Beside that, I am still eating gluten foods in attempt to prepare for tests that I want to be tested for gluten intolerance or celiac.

so, i am in between both of gluten and gluten free foods for time being. plus, when i feel really sick and I has to stop eat gluten for few days in order to be functionable to do things i needs to do.

I noticed the diffrence in hunger pangs since I started eat gluten free for few days that has slow down and feel full longer. I started feel less needed to snack often.

When I start eat gluten foods again, My hunger pangs starting go crazy and feel so hungry all the time. its seem like I am straving and want to eat more after plate ful of foods. I start eat more snacks often.

I even tried to drink lot of water in between and just before meals etc. it do help bit but not so much as If i keep my hand and mind very busy and more likely less that I stop feel needed to thinking about the food.

I have to admit that I am quite overweight at 240 and I am 27. My weight have been up and down lot in past five years. I was 190 in 2006. it climbed up to 220 and stayed until this year. It went up to 240. I feel so ashmased of myself often. I just try to think positive to lose weight.

I am pretty sure this have do something with my disgestive system is not able to work well if I have gluten in my system. it seem slow down and dont really work at all. its like sitting duck until I suddenly have lot of gas and D.

it seem do something with body is not able to absorbing vitamins and minerals correctly that can leading to cause me to be more hungry so body can try to absorb again if my digestive system failed to absorb food in first place?

So, I am just wondering...

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Yes. When I'm eating a gluten full diet I wake up starving, feel starving within a few hours of a meal and well, just feel the need to eat all day long. When I'm gluten-free I am content w/ 3 meals a day.

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Everybody have experience the differences in their hunger pangs since they got on the new diet after get off the gluten foods?

I am still newbie at gluten free diet. I has been learning so much and starting realizing that there are certain limitations on kind of gluten free processed foods.

I hasnt ate too much of gluten free processed foods Beside that, I am still eating gluten foods in attempt to prepare for tests that I want to be tested for gluten intolerance or celiac.

so, i am in between both of gluten and gluten free foods for time being. plus, when i feel really sick and I has to stop eat gluten for few days in order to be functionable to do things i needs to do.

I noticed the diffrence in hunger pangs since I started eat gluten free for few days that has slow down and feel full longer. I started feel less needed to snack often.

When I start eat gluten foods again, My hunger pangs starting go crazy and feel so hungry all the time. its seem like I am straving and want to eat more after plate ful of foods. I start eat more snacks often.

I even tried to drink lot of water in between and just before meals etc. it do help bit but not so much as If i keep my hand and mind very busy and more likely less that I stop feel needed to thinking about the food.

I have to admit that I am quite overweight at 240 and I am 27. My weight have been up and down lot in past five years. I was 190 in 2006. it climbed up to 220 and stayed until this year. It went up to 240. I feel so ashmased of myself often. I just try to think positive to lose weight.

I am pretty sure this have do something with my disgestive system is not able to work well if I have gluten in my system. it seem slow down and dont really work at all. its like sitting duck until I suddenly have lot of gas and D.

it seem do something with body is not able to absorbing vitamins and minerals correctly that can leading to cause me to be more hungry so body can try to absorb again if my digestive system failed to absorb food in first place?

So, I am just wondering...

I think what you're describing is pretty common? Have you made an appointment to get tested yet? It seems like you are reacting to gluten pretty strongly?

Some Celiacs are overweight when diagnosed. Your body isn't absorbing vitamins, so your brain tells you it wants food...and you eat. Can you at least take a good multi-vitamin?

I know you said you wanted to be tested so your family will take your gluten free diet seriously...but if there's some reason there will be a long delay until you can be tested, it might be good to just go gluten-free?

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True bubba's mom,

I m scared of get tested since it would turn out negative. I feel much better if i dont eat breads and cake at all. As kid i dont even like breads and cake at all. I alwaxs prefer other foods over sandwiches, pizzas etc. Its like i follows my instinicts without even think about it. I just realized my habits by just read this website and thinking about my habits when i was growing up etc.

In addition, Would get testing be worth my cent to have a paper that say i do have gluten intolerance so other people will take me more seriously?

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True bubba's mom,

I m scared of get tested since it would turn out negative. I feel much better if i dont eat breads and cake at all. As kid i dont even like breads and cake at all. I alwaxs prefer other foods over sandwiches, pizzas etc. Its like i follows my instinicts without even think about it. I just realized my habits by just read this website and thinking about my habits when i was growing up etc.

In addition, Would get testing be worth my cent to have a paper that say i do have gluten intolerance so other people will take me more seriously?

Well, it may be worth trying to figure out if you are NCGI or Celiac because there are currently different maintenance checklists for your healthcare. Right now, the advice is for vitamin/mineral testing, bone scans, diabetes testing, thyroid testing for Celiacs. I don't read the same advice for NCGI but wouldn't be surprised if it happens soon since the research is evolving. In addition, it may help others in your family if you are dx'ed Celiac.

Do you need it to follow the diet? No. Would knowing if you are Celiac help in the future? Perhaps.

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Thank you Pricklypear,

sorry for delay in comment. I am already starting eat gluten free mostly thru out day but do guzzle down few slices of breads per day. I do notice the symptoms start pop up like couple of hours after. Plus, the headaches show up. I decided to make myself a ant in log which si celery and peanut butter with grape. I felt bit better after that.

my sister kept tell me i need go get tested first before her. she have severe IBS and wont go in for celiac test. I try to encourage her because her symptoms are further severe than mine. she is not willful.

However, in order for be positive for bloodwork. I will try to eat lot of gluten stuff for a while until i make appt with strange primary doctor. i dont know if i should make appt at chicago's celiac center or jsut with my local primary doctor? mmm...

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Before I started the gluten free diet I craved sweets all the time and I have diabetes type 2...

I don't crave the candy and cookies anymore, but I have a weak spot for IrisHeart's flourless chocolate cake...

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Might try to increase your protein intake/day. Worked for me. I never feel hungry.

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Everybody have experience the differences in their hunger pangs since they got on the new diet after get off the gluten foods?

I am still newbie at gluten free diet. I has been learning so much and starting realizing that there are certain limitations on kind of gluten free processed foods.

I hasnt ate too much of gluten free processed foods Beside that, I am still eating gluten foods in attempt to prepare for tests that I want to be tested for gluten intolerance or celiac.

so, i am in between both of gluten and gluten free foods for time being. plus, when i feel really sick and I has to stop eat gluten for few days in order to be functionable to do things i needs to do.

I noticed the diffrence in hunger pangs since I started eat gluten free for few days that has slow down and feel full longer. I started feel less needed to snack often.

When I start eat gluten foods again, My hunger pangs starting go crazy and feel so hungry all the time. its seem like I am straving and want to eat more after plate ful of foods. I start eat more snacks often.

I even tried to drink lot of water in between and just before meals etc. it do help bit but not so much as If i keep my hand and mind very busy and more likely less that I stop feel needed to thinking about the food.

I have to admit that I am quite overweight at 240 and I am 27. My weight have been up and down lot in past five years. I was 190 in 2006. it climbed up to 220 and stayed until this year. It went up to 240. I feel so ashmased of myself often. I just try to think positive to lose weight.

I am pretty sure this have do something with my disgestive system is not able to work well if I have gluten in my system. it seem slow down and dont really work at all. its like sitting duck until I suddenly have lot of gas and D.

it seem do something with body is not able to absorbing vitamins and minerals correctly that can leading to cause me to be more hungry so body can try to absorb again if my digestive system failed to absorb food in first place?

So, I am just wondering...

Iv been ceilac for 7 years and i remeber when i was first diagnosed my hunger felt different or funny, me and everyone else thought i was crazy :P. its good to see im not the only one. I remeber i had just come off the flu and all of a sudden my stomach was feeling different before all the cramps started.

But yes if you're ingesting gluten it will cause a significantly less amout of your food to be digested, so your body will get hungry more often to make up for all the nutrience your missing out on.

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    • Hello all! I am new on here, and I was wondering if it worth a look for me to get tested for celiac disease. I've been experiencing severe stomach aches accompanied by issues with loose stool, constant fatigue, lots of infections, worsening of skin on my face, frequent nausea, lots of trouble losing weight. I'm asking because I was feeling better at home from vacation after having a very rough semester at school and I'm not very good at keeping track of what I eat typically, but at home it is mostly vegetables and meat, with the occasional rice thrown in. This morning I had my first bagel in months and was extremely nauseous with severe pains and urges to run to the bathroom.  Do y'all think it is worth a try to get tested for celiac disease or some type of gluten intolerance? I'm so tired of being sick and not knowing why... Thank you <3 
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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
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