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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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hamiam

Help Interpreting Test Results - Neg. But Still Not Sure

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I got my test results back and they were negative...I was not surprised the antibody test was negative because I had been gluten free for a month and a half (which I told my doctor, she decided to do it anyway but said it wouldn't be accurate) but I was a little surprised the genetic test was also neg. because a gluten free diet has made a HUGE difference - I had many of the typical symptoms of celiac before eliminating gluten including a rash that sounded very much like dermatitis herpetiform (dr. could not confirm because it went away after going off gluten and before I saw her). Does this mean I definitely don't have celiac but could still be gluten intolerant? (I am also lactose intolerant and don't seem to do well with corn.) Here are my genetic test results, let me know what you think.

The patient does not have the HLA-DQ variants associated with celiac disease. More than 97% of celiac patients carry either HLA-DQ2 (DQA*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302)

HLA-DQ2 (DQA1*05/DQB1*02) Negative

HLA-DQ8 (DQA1*03/DQB1*0302) Negative

HLA-DQA1* 01

HLA-DQA1* 02

HLA-DQB1* 0202

HLA-DQB1* 0501

Typing performed by PCR and hybridization with sequence specific ogligonucleotide probes (SSO).

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More than 97% of celiac patients carry either...

Hi and welcome.

Notice that it's not 100%. The other 3% of celiac patients do not have a so-called celiac gene.

You can also get very sick from non-celiac gluten intolerance. It seems a little unusual for DH to go away that fast. Mine took about 3 years off gluten to get to where I never had itching.

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There are people who have Celiac that do not have either of these two genes. They are learning more and more --through research-- about the genetics involved.

And Skylark is right; you can still be very ill from gluten and have a sensitivity to it, even if you are if not a full-blown Celiac.

Even the "top celiac docs" are starting to agree--there is NCGI (non-celiac gluten intolerance ) or gluten sensitivity that causes damage to the body.

The bottom line is--if you feel better off gluten, that is your answer. :)

You may wish to read these 2 articles:

http://celiacdisease.about.com/b/2011/03/14/dr-fasano-different-processes-involved-in-celiac-gluten-sensitivity.htm

http://celiacdisease.about.com/b/2011/03/15/u-of-md-study-genetics-differ-in-gluten-sensitivity-celiac-disease.htm

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