This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
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Thankyou squirmingitch that is useful info, i have decided to go ahead with the endo and biopsy but i know what you mean there are still alot of people out there who still think celiac is not serious and thinks it is a choice. I have a 11 year old daughter and i think it would be foolish not to go the whole hog with this has it would help her in later life if i have the gold standard confirmation as im sure some docs still dismiss it because they do not specialise in this subject.
Furthermore, getting a positive on the endoscopy will leave no doubt either in your mind nor in the minds of the rest of your family or friends. All first degree relatives of celiacs need to be tested every 2 or 3 years in the absence of symptoms & immediately if symptoms present since celiac can present at ANY age. So your parents, siblings & your children will need to be tested.
Believe me, there is oftentimes a TON of pushback by family members simply because they don't want to have celiac so they stick their heads in the sand & say you're off your rocker, refuse to get tested because they say they don't have it and you don't have a concrete diagnosis so how can you be sure they need to be tested? Friends can be even more doubtful. People are really, really doubtful of people who don't have an ironclad diagnosis. I think it's stupid of them to be so negative & questioning what you know to be true but they are. I mean, when you say you are diabetic, no one doubts that you are, no one questions your diagnosis and everyone respects the implications of diabetes but that is not the case with celiacs. I think it must be that people can not conceive of never eating wheat flour again for life. They can easily accept a diabetics diet but not a celiacs. Yet they will grill you as if they are experts in celiac disease unless you can tell them you've had the full nine yards of testing & ARE, no doubt about it, celiac.
You could try going nightshade free to see if it helps your arthritis. It might help. The common food nightshades are potatoes, tomatoes, peppers, eggplant, turmeric and paprika. If you try nightshade free for one month that should be enough time to know if it helps IMHO. Sweet potatoes/yams are ok, as they are not nightshades.
Thankyou both of you for your advice, i will have the endoscopy will just have to wait, my blood tests were not hitting the roof with reading but a low to medium result, dont want to be one of them people who have gone gluten free with no need, however i do show typical symptons of celiac but no overwhelming symptons apart from feeling nauseous and crampy at times, and extreme tiredness. There is soooo much to learn
You are normal! All the things you are going through are normal for someone with celiac disease....probably with any life changing illness. What you need is patience. Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage. The nervous system seems to take the longest. Ask your doctor to check you for any deficiencies. No sense guessing what you might need. It is a common and recommended practice to check for vitamin and mineral deficiencies.
Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.