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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Allergy Or Intolerance?
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I know, I'm not here very often, but the people who are here longer should still know me. I have a "new" problem now as it seems and was hoping to find somebody with similar experiences. Since I have to leave for my pm run in about 10 minutes I haven't read any of the posts yet, I'll do that later tonight. OK, here it goes: As most of the older people know, I was diagnosed for celiac and went glutenfree 07/21/04. It's been almost 10 years now and though I've had initial problems with accidental glutening in the beginning, I can say to 100% that I'm glutenfree now. I didn't really change anything in my diet, other than in my drinks. In 2004 I used to be lactose intolerant initially, but that disappeared about 6 months into the glutenfree diet. With my new job in September I started to make peppermint tea from Bigeloq and bottled it in empty water bottles, put stevia in, which is glutenfree and took it with me to work. Sometimes in December I once forgot my tea and started drinking the Maxwell office coffee with that powdery milk stuff in it and stevia. The powdered milk stuff with vanilla flavor is gluten- as well as lactose free. Well, needless to say, I got addicted to that stuff, but that was around the time, when my gluten initiated pain came back, with the difference that I didn't have any gluten. Now it's even there, when I don't drink the coffee over the weekend. I took lactose tabs, but there was just a little pain relief. What can this be? Am I going nuts? Can you be allergic to coffee? What's going on? Anybody with the same experiences?

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Well, my husband's allergy tests showed that he is highly allergic or intolerant to caffeine. I had never heard of that before his test results. He's avoided caffeine since as well as a myriad of other foods so it's not clear how the caffeine affects him. His skin conditions are/were the indicator for the gluten intolerance.

Personally, my stomach does not tolerate the powdered or fake liquid creamers so I've had to avoid them.

Best of luck on figuring it out.

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burdee    80

I know, I'm not here very often, but the people who are here longer should still know me. I have a "new" problem now as it seems and was hoping to find somebody with similar experiences. Since I have to leave for my pm run in about 10 minutes I haven't read any of the posts yet, I'll do that later tonight. OK, here it goes: As most of the older people know, I was diagnosed for celiac and went glutenfree 07/21/04. It's been almost 10 years now and though I've had initial problems with accidental glutening in the beginning, I can say to 100% that I'm glutenfree now. I didn't really change anything in my diet, other than in my drinks. In 2004 I used to be lactose intolerant initially, but that disappeared about 6 months into the glutenfree diet. With my new job in September I started to make peppermint tea from Bigeloq and bottled it in empty water bottles, put stevia in, which is glutenfree and took it with me to work. Sometimes in December I once forgot my tea and started drinking the Maxwell office coffee with that powdery milk stuff in it and stevia. The powdered milk stuff with vanilla flavor is gluten- as well as lactose free. Well, needless to say, I got addicted to that stuff, but that was around the time, when my gluten initiated pain came back, with the difference that I didn't have any gluten. Now it's even there, when I don't drink the coffee over the weekend. I took lactose tabs, but there was just a little pain relief. What can this be? Am I going nuts? Can you be allergic to coffee? What's going on? Anybody with the same experiences?

You could have delayed reaction (IgA or IgG mediated) allergies to almost anything, including herbs and spices. I have an IgG allergy to vanilla and nutmeg (as well as gluten, dairy, soy, egg and cane sugar). I was dx'd with celiac disease and went gluten free the same year you did. I'd had celiac (gastro) symptoms for most of my adult life, but I wasn't d'xd until age 56. Over the next2 years I was dx'd with thse 6 other allergens.

Many people who think they have lactose intolerance actually have allergy to dairy ingredients (casein and/or whey). Try eliminating anything you suspect an see how you feel.

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Tanks for your responses. I'm going to have a journal for an exclusion diet for a while and see how that goes. Birder, I remember you from back when. We actually talked quite often.

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Lisa    457

Tanks for your responses. I'm going to have a journal for an exclusion diet for a while and see how that goes. Birder, I remember you from back when. We actually talked quite often.

Hey Stef and baby Luke...how about some pictures? B)

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GFinDC    609

Elimination is the trick. It is almost certainly something you added to your diet at some point. I have problems with caffeine so I don;t doubt that could be a culprit. But it really could be anything at all causing a reaction. Your food diary should help identify the cause though. You can test for caffeine by trying different kinds of beverages. Like tea or yerba mata. They both have ccffeine but are not coffee. So if it is coffee itself but not caffeine you could still imbibe. I suppose decaf coffee would be just as good a test for that matter.

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I'd get rid of that stuff you got addicted to. That was when you noticed a change. I think that you know it yourself, you just don't want to admit it. It may take a week or two to notice a difference. Hopefully you will.

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OK, I'm 3 days off of that coffee now and the pain, albeit still there every once in a while, got noticeably less. I will keep this up another week or two and then drink a cup and see what happens.

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GFinDC    609

Good, sounds like you are close to solving the riddle!

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Juliebove    93

My last intolerance test showed that I am intolerant to green coffee beans. Whether or not that means I can drink roasted coffee beans I do not know. I just don't drink coffee to begin with so I guess I never will. I did drink it many years ago. I don't know if it was a problem or not.

But you can be allergic to anything!

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