• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Momma4

2 Yr Old Dh?

Rate this topic

Recommended Posts

I'm not sure my link to these pictures will work, but I will try. My 10 yr old son is being tested for Celiac. He has all the classic signs. However, my 2 yr old has a rash that concerns me, after reading about DH. Does anyone have any thoughts if this looks like DH. It is extremely itchy, and he cries when he can't 'get to it' to itch it. He seems to get it on both sides of his body at the same time. If my link to the photos doesn't work, any advice on how to upload photos from an iPhone would be great.

http://instagr.am/p/JdrhbmsjYS/

http://instagr.am/p/JdrbsJsjYO/

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


There's no reason it couldn't be.

Find a dermatologist that is knowledgeable about biopsying for DH and get one.

Share this post


Link to post
Share on other sites

Awwwwwwwww POOR BABY! Breaks my heart. It sure looks like a lot of my dh does at times. I echo Prickly --- find a derm who is knowledgeable about dh & the biopsy procedure & get it done. And if he's still eating gluten you can go to the GI doc of your 10 yr. old & get this little one tested too.

It's eerie how on his back the rash is bilateral. I have a lot of dh that does exactly that.

Share this post


Link to post
Share on other sites

Aww poor baby :-( I hope it doesn't burn as well! Do you have any diagnosed celiacs in the family? Maybe you should test both children.

Share this post


Link to post
Share on other sites

Thanks for your comments everyone. We don't have any diagnosed celiacs in the family, but lots of gastrointestinal issues and autoimmune disorders. I had always assumed that he just had eczema. It has always flared up and then subsided. But then a couple weeks ago when my 10 yr old was tested, I started doing research on celiac disease. What struck me was the symmetry of the rash. He also has some under his armpits on both sides. Today he told me his back hurts. He has been lactose intolerant since he was 12 months too.

I took him to his doctor today to show him the rash. I asked if it could be DH but he really didn't know much about it at all. He asked me to tell him about DH and then he said to wait until we get the results for my other son, and if he's positive then all 4 of my kids will be tested. So I guess the waiting game continues for now.

Share this post


Link to post
Share on other sites
Ads by Google:


Can you call his doctor & ask if you can use benzocaine 20% on him? It stops the itch --- really! It won't make the rash go away but it will give him relief. He can't touch it & then touch his eyes. It's the ingredient in Solarcaine, Bactine & Orajel & maybe a few other things. But I wouldn't use it unless his doc says it's okay. I'm not a doctor & that's a baby we're talking about so I would check first.

Otherwise, witch hazel helps to cool & stop the itch for a while. Moisturizing helps. I think too it helps to cut off the air to the rash so coat it with Vaseline & see what relief comes of that. If I have a single spot or a group close together I will put Vaseline or ointment on it & cover it with a band-aid --- it helps a lot but when it's widespread like in the photos it's pretty hard to cover the entire area with a bandage.

Ice packs help. NO hot baths. Use as cool of water as he can stand b/c heat just irritates it & it reddens & itches like the very devil.

GI issues & AI disorders in the family is a big clue.

Share this post


Link to post
Share on other sites

I can ask his doctor about that. He gave me a cortisone cream to put on it. Will that help? We slather him with cream daily. Like I said, it comes and goes (but never really goes completely away). It just seems to be really bad lately. And he's always itching it.

Share this post


Link to post
Share on other sites

Most people with dh have said cortisone cream helps only minimally. I tried it & it did zilch for me. I tried everything under the sun & the things I listed were the only things that gave me any kind of relief at all. One thing you can do right now is to make sure that whatever you're using on him topically is gluten free. And that includes shampoos, soaps etc... powders --- everything. If it is dh then topical gluten can cause problems like eating gluten. NO oatmeal derived stuff either.

Call his doc tomorrow & ask about the benzocaine. And I will warn you that if he wants to prescribe oral steroids there is a big consequence to pay when he goes off them if it is dh. It will likely flare like you won't believe!

There are lists on this site for gluten free shampoos, lotions etc... Use the search box for the site.

Share this post


Link to post
Share on other sites

Topical , oral, and injectable steroids will invalidate Celiac testing.

How long do those take (oral steroids) to get out of your system? My derm. wants to prescribe Decadron for me.

Share this post


Link to post
Share on other sites


Ads by Google:


Wow, there is so much to learn. I will research what ingredients are in all the products I use on him.

And Prickly, it would invalidate a skin biopsy, but not the blood test right? (I wouldn't do the oral or injectable steroids)

Share this post


Link to post
Share on other sites

Great point Prickly!

Share this post


Link to post
Share on other sites

I have no idea if topicals would invalidate a biopsy or blood test, but I would assume it would.

I don't know for how long, I assume it would depend on dose and length of use. I'd guess a few months would be the guideline, since it supposed to help send ai into remission (similar to going gluten-free).

Think about it, they treat refractory Celiac with steroids.

Share this post


Link to post
Share on other sites

I'm not sure my link to these pictures will work, but I will try. My 10 yr old son is being tested for Celiac. He has all the classic signs. However, my 2 yr old has a rash that concerns me, after reading about DH. Does anyone have any thoughts if this looks like DH. It is extremely itchy, and he cries when he can't 'get to it' to itch it. He seems to get it on both sides of his body at the same time. If my link to the photos doesn't work, any advice on how to upload photos from an iPhone would be great.

http://instagr.am/p/JdrhbmsjYS/

http://instagr.am/p/JdrbsJsjYO/

Hi Momma4,

I have / having head to toe DH the past 11 months. My son (9y/o) is having loads of itchy/scratchy that is calming with gluten-free diet.

The photos I have seen that you posted are very indicative of gluten intolerance. Read as much as you can about getting the tests done. There is a very high 'negative' result from tests for people who have DH.

Can you find a dermatologist in your area who has experience with DH?

Share this post


Link to post
Share on other sites

When I showed the doctor the rash, he said he wanted to wait until we get results for my 10 yr old son. Its been a month and we are still waiting. He doesn't want me using anything but cortisone cream at this point. We don't have a dermatologist locally (she retired last year), so I will have to travel an hour and a half away to see one. That's ok though, as we will have to travel to the same location to se a pediatric GI anyway. He's still itching, but it seems to be lessening a bit.

Share this post


Link to post
Share on other sites

When I showed the doctor the rash, he said he wanted to wait until we get results for my 10 yr old son. Its been a month and we are still waiting. He doesn't want me using anything but cortisone cream at this point. We don't have a dermatologist locally (she retired last year), so I will have to travel an hour and a half away to see one. That's ok though, as we will have to travel to the same location to se a pediatric GI anyway. He's still itching, but it seems to be lessening a bit.

I was prescribed with cortisone when I showed my DH to the doctor.. that was because my doc had no idea what the rash was, and didn't bother to do any testing. It did help temporarily but the blisters and the dry skin kept coming back.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,911
    • Total Posts
      943,453
  • Member Statistics

    • Total Members
      67,047
    • Most Online
      3,093

    Newest Member
    Steviejbell
    Joined
  • Popular Now

  • Topics

  • Posts

    • I just want you to remind you that I just had a repeat endoscopy last week after my diagnosis some five years ago.   Even though my antibodies are still elevated, my intestinal tract has healed.  But why have I been feeling sick?  I have chronic gastritis.  Who would have guessed?   I do not drink (rarely), take any meds other than my thyroid replacement, and do not have H. Pylori.  That leave autoimmune as the most likely culprit.  I also have some other minor issues that I think is related to Hashimoto’s.  So, I am in an autoimmune flare-up, but celiac disease is not the cause of current my woes. My endoscopy results have validated that I have been doing a good job about avoiding gluten.  I can relax a bit now!   I think because the treatment for celiac disease is a burden placed on us, it can become overwhelming.  Sure, we all eventually master the diet and most of us go on to lead plain old normal lives, but if something is off, celiac disease is the first thing that many of us blame.  Actually, we blame ourselves, to be honest.  We have to remember that we are often dealing with other health issues too.   As far as hair, I buy gluten free shampoo.  It is from Costco and it says it right on the label.  Nice and inexpensive.   Do I really need it to be gluten free?  No.  I think the last time I swallowed shampoo, my mother was most likely bathing me and I did not heed her warning to keep my mouth shut (baby shampoo may not sting your eyes but it tastes awful!).   Like you, sometimes I think it helps to have one less thing to think about and that can be priceless.           
    • https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified.   I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk.  Thank you Twinings.
    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
    • Ms. Alemayoh recalls a childhood of trips to Ethiopia to visit family, returning to Australia with suitcases packed with spices and traditional Ethiopian teff flour, brought in part to cook for a sister who has celiac disease. (Teff flour is gluten free.) Saba's opened in 2015, and Ms. Gebre remains the ... View the full article
    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
      >.< thing is some times with the way your hair is.....you do not rinse it all out...some conditioners I have used in the past used to b ones you would not rinse all the way out....it sort of does become a issue that is very easily avoided. There are many more options for gluten free shampoos now days and many companies have taken the allergy/gluten concern to heart and removed them/used alternatives to boost sales to a larger demographic. Point is while yes I did blow up about it...and honestly in many cases the "hydrolyzed wheat protein" thing is a hit and miss on if it really contained gluten, but better safe then sorry is my bet and with tons of options....why chance it?


       
  • Upcoming Events