• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Why Can't My Body Handle Long Runs?
0

22 posts in this topic

Recommended Posts

Kat Kuz    0

Hello! I am 28 and newly Celiac as of January, so I have been Gluten-Free and lactose free for almost three months. I have been iron deficient for over 10 years. I haven't felt 100% yet but definitely see the light at the end of the tunnel some days. One issue I wanted to bring up is muscle fatigue during exercise.

I was a college tennis player and would cramp up almost every match, no matter how much I trained/stretched, how many bananas I ate or hydrating drinks I drank prior to the match. I started training for my first half marathon in january and just finished a 10 mile race for training purposes. Every time I push myself hard for a run or if the run is longer than 6 miles, I would be completely out of commission the rest of the day. I slept the whole rest of the day after the 10 mile race last weekend and still felt 'off' the next day. Primary symptoms: muscle fatigue, dehydrated, tight muscles and just overall tired. I am very active, play on a tennis league and volleyball league during the week on top of working full time and running or walking after work prior to my leagues. I don't always react as extreme as noted above but I definitely do not feel as in shape as I should be with all of my exercising.

My vitamins and minerals all came back WNL. I take Juice Plus, B12 supplement and benefiber daily on top of a well-balanced diet. Wondering if anyone else has any of my same concerns and issues and if you have a solution. Also, any thoughts on malabsorption? Please let me know if I am not making sense, I may not be expressing my questions well. I have many... Thanks for reading!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I trained for a mini triathlon which I did summer before last. My daughter is a distance runner and does weekly long runs of about 2.5 hours. We both find that we need to have a really clean diet with that much exertion. Do you eat a lot of processed foods?

Share this post


Link to post
Share on other sites
Kat Kuz    0

Well I have been gluten free and lactose free since the end of january so now I am not eating a lot of processed food. By clean diet, do you have any food or drink suggestions besides just eating Gluten-Free?

Share this post


Link to post
Share on other sites

Well I have been gluten free and lactose free since the end of january so now I am not eating a lot of processed food. By clean diet, do you have any food or drink suggestions besides just eating Gluten-Free?

Not really. I avoid thing which might have cross contamination. I also keep a food journal to help identify such items. I keep track of what I eat and when I get symptoms and do a lot of challenge/elimination diets. Things bother me which I wouldn't expect. Sometimes I can eat something from one source and not another. It takes a lot of trial and error.

Share this post


Link to post
Share on other sites
Gemini    785

Hello! I am 28 and newly Celiac as of January, so I have been Gluten-Free and lactose free for almost three months. I have been iron deficient for over 10 years. I haven't felt 100% yet but definitely see the light at the end of the tunnel some days. One issue I wanted to bring up is muscle fatigue during exercise.

I was a college tennis player and would cramp up almost every match, no matter how much I trained/stretched, how many bananas I ate or hydrating drinks I drank prior to the match. I started training for my first half marathon in january and just finished a 10 mile race for training purposes. Every time I push myself hard for a run or if the run is longer than 6 miles, I would be completely out of commission the rest of the day. I slept the whole rest of the day after the 10 mile race last weekend and still felt 'off' the next day. Primary symptoms: muscle fatigue, dehydrated, tight muscles and just overall tired. I am very active, play on a tennis league and volleyball league during the week on top of working full time and running or walking after work prior to my leagues. I don't always react as extreme as noted above but I definitely do not feel as in shape as I should be with all of my exercising.

My vitamins and minerals all came back WNL. I take Juice Plus, B12 supplement and benefiber daily on top of a well-balanced diet. Wondering if anyone else has any of my same concerns and issues and if you have a solution. Also, any thoughts on malabsorption? Please let me know if I am not making sense, I may not be expressing my questions well. I have many... Thanks for reading!

I think that to expect to be able to run long distance or exercise hard after only 3-4 months of being gluten-free is unrealistic. It doesn't matter what vitamin or mineral levels are because it takes the body a long while to fully recuperate to the level where you can stress it and bounce back like a 28 year old should. I know that's hard to fully comprehend but it's what most Celiacs experience.

I went many years before the diagnosis and it took me 5 years into recovery before I could start a really hard exercise program and be able to do the routines. I weight train and do cardio. It will come back but

you have been suffering from malabsorption and that depletes you of storage energy. I can only say eat well but don't deprive yourself of carbs or be afraid to include some processed gluten-free foods. If you exercise and play hard, you'll need the carbs. There may be foods that you find don't agree with you and if so, wait awhile before trying to introduce them again. You will have to be patient and don't over do it but keep at it routinely and slowly, you will regain your ability to recover faster. I'm doing things I could have never done a few years ago so I know you'll get there also. From the sounds of it, you are pretty active already!

One more thing.....Celiacs are often dehydrated and this can really prevent recovery from happening normally.

You know how bad a work-out can be if you aren't hydrated.....that can cause muscle problems, as you stated in your post. It takes awhile for that to correct itself but in the meantime..... keep slugging back the water or Gatorade, although I hate the stuff myself!

Good luck!

  • Upvote 2

Share this post


Link to post
Share on other sites
Ads by Google:


JoeBlow    6

I think that to expect to be able to run long distance or exercise hard after only 3-4 months of being gluten-free is unrealistic. It doesn't matter what vitamin or mineral levels are because it takes the body a long while to fully recuperate to the level where you can stress it and bounce back like a 28 year old should. I know that's hard to fully comprehend but it's what most Celiacs experience.

I went many years before the diagnosis and it took me 5 years into recovery before I could start a really hard exercise program and be able to do the routines. I weight train and do cardio. It will come back but

you have been suffering from malabsorption and that depletes you of storage energy. I can only say eat well but don't deprive yourself of carbs or be afraid to include some processed gluten-free foods. If you exercise and play hard, you'll need the carbs. There may be foods that you find don't agree with you and if so, wait awhile before trying to introduce them again. You will have to be patient and don't over do it but keep at it routinely and slowly, you will regain your ability to recover faster. I'm doing things I could have never done a few years ago so I know you'll get there also. From the sounds of it, you are pretty active already!

One more thing.....Celiacs are often dehydrated and this can really prevent recovery from happening normally.

You know how bad a work-out can be if you aren't hydrated.....that can cause muscle problems, as you stated in your post. It takes awhile for that to correct itself but in the meantime..... keep slugging back the water or Gatorade, although I hate the stuff myself!

Good luck!

I am much older, and bicycle. I had a Great Plains Lab Organic Acids test. One of the recommendations was to take AKG (Alpha KetoGlutarate). I have to take AAKG 1500-3000 mg an hour before cycling, or I can be wiped out for 1 to 3 days. I will still be wiped out if I cycle more than an hour and 15 minutes. There are indications I have a krebs cycle problem, and mitochondrial energy issues, and there are some other recommended supplements I should try.

Share this post


Link to post
Share on other sites
Kat Kuz    0

Thanks for the advice and encouragement. I figured it was too early to be pushing my body like I am but I signed up for these runs prior to the celiac diagnosis. My doctor said that going forward with the runs and keeping my active life will not deter from my GI healing but it just may be more challenging than a person with a healthy small intestine. I'm excited to get to where you are with your exercise program and still feel great. Thanks again!

I think that to expect to be able to run long distance or exercise hard after only 3-4 months of being gluten-free is unrealistic. It doesn't matter what vitamin or mineral levels are because it takes the body a long while to fully recuperate to the level where you can stress it and bounce back like a 28 year old should. I know that's hard to fully comprehend but it's what most Celiacs experience.

I went many years before the diagnosis and it took me 5 years into recovery before I could start a really hard exercise program and be able to do the routines. I weight train and do cardio. It will come back but

you have been suffering from malabsorption and that depletes you of storage energy. I can only say eat well but don't deprive yourself of carbs or be afraid to include some processed gluten-free foods. If you exercise and play hard, you'll need the carbs. There may be foods that you find don't agree with you and if so, wait awhile before trying to introduce them again. You will have to be patient and don't over do it but keep at it routinely and slowly, you will regain your ability to recover faster. I'm doing things I could have never done a few years ago so I know you'll get there also. From the sounds of it, you are pretty active already!

One more thing.....Celiacs are often dehydrated and this can really prevent recovery from happening normally.

You know how bad a work-out can be if you aren't hydrated.....that can cause muscle problems, as you stated in your post. It takes awhile for that to correct itself but in the meantime..... keep slugging back the water or Gatorade, although I hate the stuff myself!

Good luck!

Share this post


Link to post
Share on other sites


Ads by Google:


user853    1

Kat - I agree with your doctor that you don't need to quit training due to celiac.

Post run fatigue is most often from overtaining. How many days a week are you running? What do your weekly short runs look like. In my younger days, I was able to run 5 - 6 days a week and be fine. Now, in my 30s, I only do 3 days a week of running. Two short rund mid week and a long run on the weekends (when I am training, right now it is also for two half marathons, my 4th and 5th).

Another issue is not enough food and fluid while running. Any run over 5 miles on a cool day or 3 miles on a hot day requires you to drink while running. Plain water is fine for me. But, if I go over 8 miles, or if it is really hot and I will sweat a lot, I want some electrolytes too. I use nuun because it is low flavor and no sugar (I hate gatorade or sugary stuff.. ugh).

The rule of thumb for eating while running is you need to eat if you will run over 90 minutes. For me, that is 60 minutes. So, any run over 6 miles for me means bringing along a snack. I can't do the "gu" or gel type things (yuck). I usually have Sharkies (I like the kids version, haven't tried the adult version for some reason) or Sport Beans.

If you haven't been eating and drinking on a run yet, note that there is a bit of trial and error to it. But, it is good to get down before race day. For me, I have to do small sips often and a few small bits of food (washed down with water) along the way. My belly is not a fan of being full or having water sloshing around during a run! It is a bit annoying to those who run with me (I basically walk a few yards after every mile to drink) and I always have to carry water during races, but I get to blow past people at water stops!! ;)

Post run nutrition is also very important. You need to protein and carbs within an hour of finishing. I usually go for a big bowl of quinoa with rice milk, almonds, and banana when I return from a long run. And always have a green smoothie on the day of a long run.

With the leg cramps and iron issues, make sure you are getting enough vitamins and iron. Green smoothies with lots of kale or other green leafy vegs, yum!

Oh, and I targeted this response assuming you were a beginner runner, if not, I apologize.

  • Upvote 1

Share this post


Link to post
Share on other sites
Takala    413

Ditch the Benefiber.

It may claim to be "gluten free," but it has wheat dextrin in it.

http://www.benefiber.com/fiberHealth/faqs.shtml

And please tell me you are not taking the "Juice Plus" "Garden Blend," which contains BARLEY. And OATS.

pdf download of ingredients - http://www.pbworks.com.au/pdf/JP_Ingredients.pdf

Yeah, they're claiming that they removed the gluten, but who is really checking ?

To be gluten free, you have to not be ingesting all possible sources of gluten cross contamination, and stick to items that are not made of gluten bearing ingredients. This includes supplements.

You may also want to experiment with going soy free or soy light (a tiny amount of soy such as in lecithin or made in a shared facility, as opposed to the extent you need to avoid gluten, which is going to be much stricter.)

I do not sweat normally because of other auto immune problems and I am over twice your age, so I have to be really careful with how much outdoor exercise and what I eat before and afterwards. Eating enough real vegetables is crucial, and because I am relatively simple carb intolerant, I have to make sure to get enough good fats (this is counter- intuitive from most athletes, who live on foods that make me feel lousy ) besides real proteins from real foods - not any of this supplementy- stuff like "protein powders." Just a gluten free B complex, gluten free multivitamin, gluten-free calcium,D,magnesium supplement. Just as a horse needs fiber from hay, grass, and beet pulp to hold moisture in his/her gut, so do humans, just with different foods. Obviously, drinking water is important.

So is the cool - down phase. This is where you walk, stretch, and drink more water.

Really, you are sort of pushing it with that schedule ! Try backing it off and doing shorter runs on alternate days. You do not have to do half marathons. :blink:

It's not unusual for fun exercise to wipe me out afterwards the next day, and I crash pretty hard sometimes after dinner, but I accept it as part of still being able to at least do something because so many of my peer group would be doing nothing at this point.

Share this post


Link to post
Share on other sites
Kat Kuz    0

Thanks for the advice but Juice Plus is most definitely gluten free. The video that comes with it talks about how these pills can benefit people with celiac. And, I could feel the difference in just one week of taking them and now its been almost 3 months and feel a lot better. I recommend you start taking them too, big advocate!

I finished my half marathon! Pretty miserable but I finished and will never do it again. My body hated me for a good week. So now I'm just doing shorter runs and now training for the 3 day breast cancer walk. So my body likes me again :)

Thanks again everyone for all the advice.

Share this post


Link to post
Share on other sites


Ads by Google:


I have been gluten free for a lil over three months and have begun feeling better on my long runs. I am 42 and my long rruns are only 12-15 miiles but seem to recover well. I only take celi-act supplement and am very ridgid on the gluten-free diet. that is the best I got for ya.

Share this post


Link to post
Share on other sites

I have been diagnosed Celiac and gluten free for over a year now, but went undiagnosed for years and that takes a long time to recover. I'm really only beginning to feel better at this point, I've gotten back into running but only a little at a time. I'm doing 5k at this point and running into the same issue. I've learned that if I alternate running and strength training days that I get less fatigued. Keep the water flowing, and I eat very cleanly. By clean I mean, fruits and veggies (organic when possible), very little dairy (yogurt pretty much) and lots of protein whether it be lean meats to nuts and seeds. I know it sounds bland and boring but when I stray from this diet I pay for it, my body "runs" best on organics. My parents say its just my body's way of getting back to its hippie roots where it belongs. I hope my routine can help you a little, happy running! :)

Share this post


Link to post
Share on other sites
RonSchon    8

I have been gluten free for a lil over three months and have begun feeling better on my long runs. I am 42 and my long rruns are only 12-15 miiles but seem to recover well. I only take celi-act supplement and am very ridgid on the gluten-free diet. that is the best I got for ya.

Robert, I'm chomping at the bit to get where you are. I might be able to make it through a 10 miler, but it will wreck me for 2-3 days.

I hope I can get back there again, I will respect the run like never before if I can get her back... :D

Share this post


Link to post
Share on other sites
cyberprof    62

I think that between the benefiber and the juice-plus, you're getting more gluten than you realize and more than would be good for a celiac. Oats that are not certified gluten-free are most likely contaminated. Barley bran itself (just the hull) may not have the offending protein, but you can't convince me that there aren't protein particles adhering to the bran. See this for reference: http://www.csaceliacs.info/grains_and_flours_glossary.jsp

Perhaps that would be ok for a non-celiac gluten intolerant, but to my knowledge you are taking a risk.

Share this post


Link to post
Share on other sites
1342202036' post=810800]

Robert, I'm chomping at the bit to get where you are. I might be able to make it through a 10 miler, but it will wreck me for 2-3 days.

I hope I can get back there again, I will respect the run like never before if I can get her back... :D

You might wanna try to build up the iron, folic acid and b12 in your blood. I know they appear WNL but if your body is defficient for a long time then it gets used to it. Primarily, the kidneys perform and secrete the hormones that increase rbc count which is rarely WNL for me even when my H and H are. So, I have been increasing these vits as a sort of experiment to see if my h and h and total FE levels can bounce up. IDK for you but I have only given it about 3 weeks now and am beggining to feel a lil better in general and during heavy workout days

Share this post


Link to post
Share on other sites


Ads by Google:


RonSchon    8

I'm rigid, and will forever be now, but my damage was pretty severe - so while also being about 3 weeks clean I feel incredibly improved, but still am having the weeding out of things that should be gluten-free but actually aren't - such as my powerade snafu's.

Hopefully tomorrow I'll be able to do another longer run.

Perspective is everything.... Now a 5 miler is a long run, a month ago a 5 miler wasn't even a dream i was having. A mile walk was body wrecking. lol.

Share this post


Link to post
Share on other sites
rosetapper23    236

Okay, you may not believe my answer on this, but it's been proven to my satisfaction that taking a certain ratio of Omega 6's to Omega 3's will oxygenate the cells of the body. After reading, "The Hidden Story of Cancer," which is about cellular oxygenation, I came to understand how important it is to proper muscle function to take a daily ratio of Omega 6's and 3's. If I hadn't tried it myself, I wouldn't have become such a believer; however, the difference is like night and day. Until two years ago, I was a lifelong runner; however, I always experienced muscle weakness and difficulty recovering from running and exercise. I simply thought I was one of those persons who just had muscles that needed longer time to recover. Wrong! Because of celiac, my cells were starved for oxygen. As long as I take the proper ratio of Omega 6's to 3's, I NEVER experience muscle weakness or any kind of recovery time. Painful muscles after a workout? NEVER! I feel not even the slightest muscle exhaustion or soreness after intensive exercise. If you want to buy the book, it'll explain the concept, but if you'd just like to know how to get the proper ratio, here's the formula: Mix 1/2 teaspoon of organic flaxseed oil and 3/4 teaspoon of safflower (or grapeseed) oil into a smoothie or heavy juice. That's it! You can take this mixture once or twice a day. I've taken it every day for more than five years, and if I know I'm about to have a big workout, I take some more. It actually helps you work out harder with little effort, and it helps you exercise more easily in high temperatures. After taking this ratio of Omegas daily for a while, you'll find that you also don't get sunburns (really--I've tested this in Australia, and I didn't even get a little pink while outdoors all day). It also makes your skin very soft...and at the age of 50, I started getting asked for my ID when buying wine. Weird...but true.

Share this post


Link to post
Share on other sites
RonSchon    8

Because of how many years my body has not been able to absorb nutrients, my world view of them became "placebo's"

I will go out tonight, and find these products.

A couple questions... I don't do smoothies.... Can I take them in another form?

Is safflower/grapeseed and faxseed oil universally the same potency?

Can I take tablets at the ratio you have listed?

I can't wait to be able to experience benefits that so many people take for granted.

Once again, thanks for the information L, you are proving to be my guardian angel!

Share this post


Link to post
Share on other sites
rosetapper23    236

Ron,

Unfortunately, there are no capsules or pills that contain the correct ratio (unless you go to a specific website where the products are available based on this book's recommendations--and, trust me, they're expensive since they're the only game in town). It's just as easy to mix the ratio yourself, and the cost of the oils is minimal. Since you don't do smoothies, a thick juice will suffice. I've just found that thin juices cause the oils to sit on top (yuck!), so you can taste/feel the oil. In a smoothie (or just juice whipped with some yogurt or a banana), the oil gets mixed in so that you can't even detect it.

I prefer safflower oil over grapeseed oil because it has less of a taste, but I listed the grapeseed oil because it contains more or less the same amount of Omega 6s and 3s as safflower oil. If you find that the mixture helps you, you might consider reading the book to learn why these oils are able to oxygenate your cells and allow you to exercise without lactic acid buildup in your muscles. I spent a lifetime in pain until I read about this solution, and I will be forever grateful.

Share this post


Link to post
Share on other sites

Hello! I am 28 and newly Celiac as of January, so I have been Gluten-Free and lactose free for almost three months. I have been iron deficient for over 10 years. I haven't felt 100% yet but definitely see the light at the end of the tunnel some days. One issue I wanted to bring up is muscle fatigue during exercise.

I was a college tennis player and would cramp up almost every match, no matter how much I trained/stretched, how many bananas I ate or hydrating drinks I drank prior to the match. I started training for my first half marathon in january and just finished a 10 mile race for training purposes. Every time I push myself hard for a run or if the run is longer than 6 miles, I would be completely out of commission the rest of the day. I slept the whole rest of the day after the 10 mile race last weekend and still felt 'off' the next day. Primary symptoms: muscle fatigue, dehydrated, tight muscles and just overall tired. I am very active, play on a tennis league and volleyball league during the week on top of working full time and running or walking after work prior to my leagues. I don't always react as extreme as noted above but I definitely do not feel as in shape as I should be with all of my exercising.

My vitamins and minerals all came back WNL. I take Juice Plus, B12 supplement and benefiber daily on top of a well-balanced diet. Wondering if anyone else has any of my same concerns and issues and if you have a solution. Also, any thoughts on malabsorption? Please let me know if I am not making sense, I may not be expressing my questions well. I have many... Thanks for reading!

malabsorption and you may need a ton more magnesium and calcium and vit D than udusl dur to previous glutn damage and malabsorption. I had to increase that for bad episodes just to make through the day (post chrmo/radiation) and during pregnancy (had gluten episoders then too..mild though) but I wasn't athleticaly active. Depends on how much your taking now and where your body is at in recovery. This is primarily based on my experience and communication with a natural path about suppliment uptake and some research I did on Magnesium/calcium/vitamin D. Water intake should be enough that you pee clear since your so active, you need to get lactic acid out of your muscle or you will feel like you've got a crumby day to come (flu like symptoms in the mjuscles). Im also a licensed massage therapist for over 6 years, so I gotta push the water increase ;) Hope you can find a solution and enjoy your activities.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,896
    • Total Posts
      938,531
  • Member Statistics

    • Total Members
      65,804
    • Most Online
      3,093

    Newest Member
    Junimoon
    Joined
  • Popular Now

  • Topics

  • Posts

    • Most physicians follow the joint commission’s guidelines on prescribing HTN medications which usually begin with a diuretic and calcium channel blocker (the amlodipine) - see below. Is it possible that your bp was still not controlled on the CCB (amlodipine)? So the ARB was added? Again, I’d just like to say that just bc a drug does have certain adverse effects does not mean you will have them, but I understand if you would not even want to take the chance, given a previous history of celiac disease. http://www.aafp.org/afp/2014/1001/p503.html “In the general nonblack population, including those with diabetes, initial anti-hypertensive treatment should include a thiazide diuretic, calcium channel blocker, angiotensin-converting enzyme (ACE) inhibitor, or angiotensin receptor blocker (ARB). In the general black population, including those with diabetes, initial treatment should include a thiazide diuretic or calcium channel blocker. If the target blood pressure is not reached within one month after initiating therapy, the dosage of the initial medication should be increased or a second medication should be added (thiazide diuretic, calcium channel blocker, ACE inhibitor, or ARB; do not combine an ACE inhibitor with an ARB). Blood pressure should be monitored and the treatment regimen adjusted until the target blood pressure is reached. A third drug should be added if necessary; however, if the target blood pressure cannot be achieved using only the drug classes listed above, antihypertensive drugs from other classes can be used (e.g., beta blockers, aldosterone antagonists). Referral to a physician with expertise in treating hypertension may be necessary for patients who do not reach the target blood pressure using these strategies.” Drugs for BP in different classes work by different mechanisms. It may be worth it to print out those huge, long drug information sheets and go over them with a fine toothed comb. As for CoQ10, have you checked for coupons online? Can your doctor write you an Rx and get your insurance to pay? They might say it’s on OTC and you have to pay out of pocket, but it may be worth it to find a way around that - would a prior authorization do the trick? I don’t know, just bringing up the questions. In the report you cited, these concluding words were to me, chilling:
      “Therefore, we suggest the possibility of a class effect.” Losartan, olmeseartan - doesn’t matter. And I'll say it again, there must be a way to disseminate this information more widely as I had no idea about this adverse effect, and never heard any docs speaking about it either. It really warrants wider sharing. Finally, one person who is often an overlooked resource is your pharmacist. They have just tons of knowledge and should be able to talk to you in some depth if asked, in an articulate, easy to understand way. They may even be able to do some digging and research for you. Plumbago
    • Plumbago et al, Thanks for letting me know  about the "artan" drugs being ARBs. I think Cyclinglady was right the Losartan research is not free and thus not public. I saw the link with no abstract but wanted to read it to confirm as you noted in your ETA that it was another "Artan" drug Losartan causing the problem. I believe it is. I found a great (after more digging) review of all the "artans"/ARBs or most of them about whether they can contribute to sprue symptom's in addition to Benicar. here on wiley as studied by the alimentary pharmacology and therapeutic journal (AP&T) for short. http://onlinelibrary.wiley.com/doi/10.1111/apt.14176/full I wish I knew how to post the able alone it is very informative.  Please scroll over the table to the end of it since it even tells how long to expect before your sprue symptom's/conditions improve IF the "artan" drug is causing your symptom's which I find the most helpful thing about the table.  They also note histological feature (degree of villi blunting) to expect on biopsy. They note Losartan can cause "total atrophy of duodenal villi" by their reporting. I also recently had an issue with my potassium levels so I feel sure it is the Losartan. I remember reading a study about how losartan was better at the "chronic cough" I had developed using Lisinopril so I changed to Losartan a few years ago . . . now I find I could of been making my GI symptom's worse. But to answer  your other question since I began taking Folic Acid a few months ago my BP numbers went down to a healthy level of 120/80 or less sometimes . . . but with medicine. I had already been thinking I wanted to try get off the BP medicine (for good) so this is more motivation. C0q10 worked well but it is too expensive for me to take all the time! I called my doctor to have them put me back on Amlodipine/Norvasc and I can't remember why I changed off that medicine to begin with now.  I do remember needing two medicine's back then to control my BP so maybe we stopped the Norvasc instead of the Linsinopril. But now that they have put me back on Norvasc I hope my potassium levels will correct themselves. I just don't feel safe anymore taking Losartan after learning it could be making my GI symptom's worse or causing the to be unreliable. I first thought my touch of D. was from an antibiotic round but when kefir didn't get me back on track I suspected something else when my Vitamin D levels showed up low too again! Thanks everybody for ya'lls great suggestions and good research on my behalf. I also recommend this verywell article if you are still having GI problems and you suspect an "artan" like ARBs BP medicine and looking for a medicine that might have less severe  or more manageable symptom's for your lifestyle because it comprehensively list's the medicine's by drug types. https://www.verywell.com/hypertension-drugs-1745989 no medicine is without a side effect as (I) am learning but I never thought sprue would be one for my BP medicine and why I prefer Vitamins when I can find out which one too take. Now that I have the Norvasc approved as a replacement for the Losartan I might see if my BP goes up again if I stop my medicine all together as I was hoping the Folic Acid might help me with it (without medicine) and it explains why I was low in Folic Acid to begin with again. posterboy,    
    •   Ironic, We went entirely gluten-free in our home after 2016 for how bad my neurological , joints, mood gets now in addition to my former gi, skin, and other issues . My son shows signs of my early symptoms and voluntarily went off gluten, corn, and milk like me as he did his own food like diary symptom tracking. My daughter continues on gluten outside the home. We warn her of our concern for at times in toddler hood she was constipated and would bloat.  We asked their Dr to test them as I was undergoing my testing and she said no until I had my diagnosis. As we know these things take time and my son went gluten-free . He said after watching mom on my gluten challenge that he will not go back on it .  We await technology further research and we silently watch our soon to be teen girl for we know even if tested negative it can show up one day.  She says I know mom I know. The more Whole Foods here in the home we notice she actually craves gluten / processed foods less and is slowly transitioning as well.  Does your child also naturally eat less gluten and processed as well away from home? I wonder if the taste buds / craving change as the parents diet changes food options.  Thoughts?
    • Funny though, my brother and I were just discussing this. He has celiac and both his son and him are gene positive. Both were TTG/EMA negative but never tested for DGP. My brother had damage on endoscopy. They have not scoped his son. He feels his son is symptomatic but not his daughter.  I have conflicting positive and negative DGP, recent damage on biopsy and negative TTG/EMA. Two years ago my son had negative TTG and DGP. No EMA. I plan to have him gene tested and full antibodies screened again.  My brother has opted to have his children follow a gluten-free diet. I am currently allowing my son a normal diet.  But my own chaos with diagnosis, and my brother's too because he was TTG negative, makes me ultra sensitive to the possibility.  My son's ped doc has a  daughter who was recently diagnosed with celiac.  it was in the family so her mom, my son's doctor, suspected it as soon as she started getting digestive issues and losing weight.  she pretty much told me that she was glad that they didn't put her on a gluten-free diet as a child so she can enjoy eating the things she wanted to Throughout her life.  I have to say I agree to a large extent. There are many diseases that we could get At anytime. we cannot change our lives for that reason alone.  However that being said, my family has both thyroid disease and multiple sclerosis as well.   I know all too well the naive statements and assumptions that doctors can make in the face of science still working to find conclusions.  There are other types of TTG the doctors don't typically test for.  I am well aware of this, and sensitive to it. As a parent, I'm going to allow my son to continue on a normal diet for now, but we are going to pursue testinG  And I'm going to watch it very closely.  
    • It might generate based on traffic searches  or posts etc. My guess. I read them and respond because I wasn't on here as a member in 2012. I only use to visit then. So it's new to me V. happy friday   😋  
  • Upcoming Events