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Celiac Or Something Else?


pinkpandapants

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pinkpandapants Rookie

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

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Bubba's Mom Enthusiast

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

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Skylark Collaborator

Yes, insist on celiac testing. Your symptoms are pretty typical.

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mommida Enthusiast

Start working with a gastroenterologist. You have symptoms for Celiac, but also another short list of disorders too. If you are Celiac, there is another short list of possible disorders that are higher odds for a Celiac too. Some of these need to be diagnosed by an endoscopy with biopsy. (This would be a good idea to see what damage GERD has done or if it could be Eosinophilic Esophagitus.)

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pinkpandapants Rookie

So I went to my new doctor today, and she was awesome! She ordered just one Celiac test for me, the tTG-IgA. Is that one generally pretty accurate? I'm still new to all of this Celiac terminology, haha. My doctor also referred me to an allergist (because I have a whole lot of other food problems going on) and said that we'd figure out what to do gluten-wise after I get my tTG-IgA results back. I think she said that whether it was conclusive or not, she'd refer me to a gastroenterologist. So I'm very hopeful at the moment that my problems are on the way to being solved!

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Skylark Collaborator

No, having only one celiac test is not accurate at all and TTG-IgA is lacking in sensitivity. It only picks up maybe 80% of people with celiac disease. Most of the research articles I've read lately suggest DGP-IgG along with the TTG-IgA. If you're positive on either you are very likely celiac.

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    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
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      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
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