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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Should I Be Scoped Again After 1 Year gluten-free?
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10 posts in this topic

So, just trying to figure out follow-up tests, etc. I've been gluten-free for 8 months now...we'll be moving back to the States in 2 more months and I'm trying to sort out new doctors (who might actually have some knowledge about Celiac!) and schedule appointments if at all possible.

Did anyone have another biopsy after 1 year gluten-free? Is that standard?

One of my docs is saying I should...another is saying to only do blood work. My 6 month blood work showed a marked drop in antibodies and lots of my symptoms have resolved but I'm still dealing with terrible abdominal pain issues at times. I'm thinking another food intolerance and trying to figure it out -- when I mentioned it the doctors here (in Poland) looked at me like I was crazy and repeated the Polish Celiac mantra (as I call it): "You can't drink beer but you can still eat potatoes. The pain is from the Celiac. You just have to live with it."

On a positive note I've been in touch with the Univ of MD Center for Celiac Research since it's only about an hour from where I'll be living and they were great. I'm in the process of scheduling an appointment; I figure Dr. Fasano and his team should be able to come up with some ideas if anyone can!

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On a positive note I've been in touch with the Univ of MD Center for Celiac Research since it's only about an hour from where I'll be living and they were great. I'm in the process of scheduling an appointment; I figure Dr. Fasano and his team should be able to come up with some ideas if anyone can!

I'll be very interested to hear how the appt goes with U of M. I live about an hour from there and my husband works for the hospital. I had considered making an appt there but decided to see a local doctor and go there in the future if needed. My family is also participating in the Center for Celiac Research Run/Walk 5K on May 20th!

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You might want to make the appointment and do make sure to bring your records from your current doctors with you. Talk to the doctor about whether there is a need to rebiopsy when you get there. Since you are still having problems they may want to retest and biopsy to make sure you still haven't got gluten sneaking in or whether you may also have something else going on.

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My doc's basically told me that a scope isn't necessary after the initial one, as long as I don't cheat and my blood work comes back negative.

Even thought I didn't mind the actual procedure, their feeling is that ANY surgical procedure should be "necessary".

That being said, I think it's ultimately up to us whether our bodies are telling us something. Good luck.

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Thanks for the input. The doctors I'm around right now are really really keen on tests -- I'm tired of schlepping to get blood drawn and getting ultrasounds not to mention I don't want to have any unnecessary procedures!

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Dr Fasano will tell you that the best way to tell is to get the endoscopy.

I often ask myself the same question. I'm just reluctant to get another endoscopy. I have relied on blood tests, keeping an eye out especially for vitamin absorption (which is better but still on the low end of the range).

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WARNING: I am NOT a doctor or medical person!!

If you feel good and your blood tests are good, I just don't see the need for another biopsy. There are some dangers involved in sticking stuff own your throat and into your small bowel, although overall it's a relatively safe procure. The second time they did my dad, they accidentally tore his esophagus(??). He ended up fine, but it certainly wasn't any fun.

I've never had another one after being diagnosed and I don't plan to unless there's something strange going on.

richard

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Besides bloodtests, nowadays there are also stool tests available. If they all come up negative and there are no obvious symptoms, I sure wouldn't let that tube inside me again. I found it to be a rather traumatic experience.

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Not sure how old you are, I've had serveral follow up procedures.

1st one after 12 months gluten-free showed villi were nearly fully healed (I stuck rigidly to a Gluten Free Diet and only used foods recommended at less than 20PPM by the Irish Coeliac Society).

They did however find a large polyp (Adenoma) in my lower bowel people over 50 are more susceptible to polyps than those under 50.

I was advised that they can, if left untreated become maglignant.

I had another Colonoscopy recently and had another 2 smaller polyps removed, it was recommended by the hospital that I have a follow up colonoscopy every 2 years.

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Not sure how old you are, I've had serveral follow up procedures.

1st one after 12 months gluten-free showed villi were nearly fully healed (I stuck rigidly to a Gluten Free Diet and only used foods recommended at less than 20PPM by the Irish Coeliac Society).

They did however find a large polyp (Adenoma) in my lower bowel people over 50 are more susceptible to polyps than those under 50.

I was advised that they can, if left untreated become maglignant.

I had another Colonoscopy recently and had another 2 smaller polyps removed, it was recommended by the hospital that I have a follow up colonoscopy every 2 years.

I'm 58

It's not the Colonoscopy I found traumatic. I referred to the scope to check the villi.

Ben

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