• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Extreme Hunger....
2 2

43 posts in this topic

Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have enperiences the same thing. It usually happens to me right after I eat or after a period of fasting. I get this oerwhelming feeling that I need to eat right NOW!!! I get shaky and my mind gets kind of foggy. It makes sence to me that thats from malabsorbtion. A person feels hungry when they have burned off the calories or energy from their last meal. If your body is not absorbing nutrients properly that could be the reason.

0

Share this post


Link to post
Share on other sites

Thanks Danijela,

I just answered your topic question with pretty much the same response. He-He

Too bad we couldn't just condense the 2 topics since they are almost identical. :P

BTW....Welcome to the board! :D

0

Share this post


Link to post
Share on other sites

I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

0

Share this post


Link to post
Share on other sites

gluten-free since April and I feel the same way pretty much every day. Does not always coincide with a feeling of hunger, though.

I just keep hoping that someday this gluten-free diet is going to pay off and I will start feeling like a normal person again with no fatigue, dizziness, and bizzare stools. At least the d has stopped.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

<{POST_SNAPBACK}>

I was probably 95% gluten-free since April but only got dxd a couple weeks ago. I've swtiched all my products to gluten-free now but I've had a couple slip-ups already cuz of contamination. I'm wondering if maybe my body is starting to heal and the hunger attacks mean it wants more food/nutrients since its trying to heal? Just a guess..

0

Share this post


Link to post
Share on other sites

I think part of it is physiological. Before we were diagnosed we thought about food only when it was meal time, or time to cook. Now that we have been diagnosed we spend all our time and effort thinking of food in one way or another. Checking ingredients, calling companies, worrying about going out, thinking about what we can take out etc. In other words most of our lives is all of a sudden tied up with food. It's only natural that our stomach follows our brain waves sometimes. :lol:

I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge. :rolleyes:

0

Share this post


Link to post
Share on other sites




  I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge.  :rolleyes:

<{POST_SNAPBACK}>

LOL...I think I'm actually the opposite in that I think about food alot LESS since getting dxd. I thought I'd had candida so I was constantly worried about "feeding" the candida or getting sick...paranoid everyday...but I never had these hunger attacks...I was eating way less also. Now I know all my food is gluten-free and I know the candida is not going to "get" me so I just stick to stuff I know is safe and I'm not too worried about food anymore. But my body is REALLY hungry.

0

Share this post


Link to post
Share on other sites

HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!! I may be able to help!!

:):):):):):):)

0

Share this post


Link to post
Share on other sites
HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!!  I may be able to help!!

:)  :)  :)  :)  :)  :)  :)

<{POST_SNAPBACK}>

After I get glutened I'm NOT hungry at all for a few days. The attacks come about a week later when I start to feel a little better and my appetite is good. All of a sudden I'm starving and even though I've eaten I'll get a hunger attack. Come to think of it its usually after I've eaten something high in sugar. :blink: Why would that be? As soon as I eat something it goes away.

Candida is a yeast overgrowth in the intestines. Its a very controversial condition to say the least.

Oh yeah...what vitamins do you take? I'm not taking any right now cuz I wasnt sure if mine were making me feel worse. I'll try them one more time but if anything bad happens I'm done with them. They are a liquid gluten-free multivitamin.

0

Share this post


Link to post
Share on other sites




I get my vitamins from Freeda Vitamins in NYC. You can look them up online to order or request a catalog. I think every single vitamin they make is gluten-free.....so you should be safe. I take the Multi Vitamin, calcium, b6/12/, folic acid, and a few others. Ive never gotten sick from them.

Sugar makes you hungry. Once Ive had sugar, Im on a sugar "high" and eat and eat and eat. Its best to avoid sugar, if you can.

Just curious, if you dont mind, is candida a female condition????

0

Share this post


Link to post
Share on other sites
Just curious, if you dont mind, is candida a female condition????

<{POST_SNAPBACK}>

Thanks for the info. on the vitamins. :)

Nope....Candida can affect anyone male or female. We all have candida in our guts...its a bacteria. We also have "good bacteria" as well. If there is an upset in the balance between good/bad bacteria (numerous things can cause this) the candida will grow and can sometimes cause problems. The *extent* of damage it can cause is what is debateable and controversial.

0

Share this post


Link to post
Share on other sites
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days.
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something. It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.
0

Share this post


Link to post
Share on other sites

Candida is caused by chronic infection or overuse of antibiotics.

0

Share this post


Link to post
Share on other sites
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something.  It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.

<{POST_SNAPBACK}>

Yup Carrie...that is *exactly* whats happening to me. Its about 1 week after getting glutened. When it happens I feel a little faint and shaky. Once when it happened I was luckily near a Whole Foods so I stopped and got some Envirokidz bars and some blueberries. I worry what will happen if I'm somewhere where there is no gluten-free food I can eat. Will I pass out? :blink: Maybe I should just carry around snack bars in case. :)

0

Share this post


Link to post
Share on other sites
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

<{POST_SNAPBACK}>

That sounds like a fairly standard hypoglycemic response. Have you been tested for that? (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

0

Share this post


Link to post
Share on other sites

When I had this problem someone on this board told me that without gluten there is a massive change in stomach volume contents. Plus, our bodies go through gluten withdrawl.

Give it some time; what helped me out was eating every hour or so, just something small. Even today I eat very little at each meal so I can eat many times a day. It really does help.

It will go away and get better!

0

Share this post


Link to post
Share on other sites
That sounds like a fairly standard hypoglycemic response.  Have you been tested for that?  (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

<{POST_SNAPBACK}>

Nope...you never asked me. I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year! I'll be leaving my HMO soon so I'm requesting all my records. I'll be able to see all that was done....I'll ask my doc as well.

0

Share this post


Link to post
Share on other sites
I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year!

<{POST_SNAPBACK}>

Meh... tests aren't that great. And I don't think the standard diabetes tests cover testing for hypoglycemia very well (but I could well be wrong about that). My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay". The only way to know for sure is to try the treatment (a more balanced meal (at every meal) and significantly less in the way of refined, high-glycemic load carbs). I'm sure, however, there are other things that could be going on as well.

0

Share this post


Link to post
Share on other sites
  My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay".

<{POST_SNAPBACK}>

I know this to be true with thyroid testing so I'm sure the same things goes for most tests. I think since it's only happening after a glutening it may just be something my body's going through as it tries to recover. If it continues to happen in the absence of gluten I may have to ask you for some meal advice. ;)

0

Share this post


Link to post
Share on other sites

This happens to me, too, and also about a week after being glutened. I try to always take some nuts and raisins or a banana with me, especially when I'm recovering from a glutening. And eat some protein at every meal. Gluten is a protein after all, if you leave it out, I figure something has to come in it's place.

Pauliina

0

Share this post


Link to post
Share on other sites

Thanks,

Well noones said I could pass out from one of these episodes so thats a relief. :D

I'll just keep munchies with me if I leave the house.

0

Share this post


Link to post
Share on other sites

Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

I also feel faint and dizzy and very hungry. I had that yesterday, during the day, and immediately devoured the closest thing to me, which happened to have been a bag of baked lays doritos !!!! Then a baskin robbins pistachio/mint choc. chip ice cream (and I never eat this way because I like to stay thin)

The idea that maybe youve been glutened and arent absorbing nutrients properly makes sense.

Best Advice: Just 'hang in there' like the rest of us Celiacs do!!!!!! ;)

0

Share this post


Link to post
Share on other sites

Oh yeah, I just remembered, it always helps to keep a stash of gluten-free food, with you if you go out. I find that when I dont bring a snack I get ravenous, faint and very irritable!!!!

My boyfriend always makes sure wherever we go that I have my chocolate rice cakes on hand. This does help. He knows if I dont have something quick I get crazy.......as a matter of fact he calls it "crazy food". So if we go on a vacation, he'll ask, Hon, did u pack your crazy food?????? :lol:

0

Share this post


Link to post
Share on other sites
Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

<{POST_SNAPBACK}>

Mandigirl,

He's talking about chronic conditions which may leave the immune system weakened and vulnerable to bacteria overgrowth. Any undiagnosed condition I suppose could lead to this. It would be most dangerous to a person with a very compromised immune system though...such as an AIDS patient.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
2 2

  • Forum Statistics

    • Total Topics
      107,370
    • Total Posts
      935,724
  • Member Statistics

    • Total Members
      65,047
    • Most Online
      3,093

    Newest Member
    pidnit
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have been dealing with pain for thirty some years.  I have been diagnosed with RA (sed rate high) due to joint inflammation and nodules, OA due to xray, mri results, fibromyalgia at one point because they didn't want to tell me it was all in my head and, I have nodules on my thyroid.  Other than my sed rate being high, my blood work comes back "normal" so, other than the Methotrexate for RA, I am on no meds for pain.  I take Ibuprofen when needed.  I do not take "pain meds" because I have a low tolerance to medication and I just cant function even if I take 800mg of Ibuprofen.  Example . .. I get a cold and take children's cold medicine.  I take 1/2 the dose of a six year old and it knocks me out.  Some days the pain is so bad, I can barely walk.  My husband bought me a hot tub a few years back for my birthday and it is my go to on bad days.   I was tested for Celiac's and came back okay.  The only other blood work that comes back out of whack are MCHC, low . . . MCH, low . . . RDW, high, . . . ESR, anywhere from 20 to 85 but normally around 40ish . . . TSH, 2.0 or below.  But, the doctors say the first three are not so far out of range that we should worry about it, the ESR just means there is inflammation and the TSH is within normal range.  I have recently gone gluten, dairy, and sugar free in an effort to combat symptoms, pain and weight.  I have noticed a difference in the inflammation and in my general overall wellbeing.  I seem to be more attentive, have more energy, and not is no much pain.  My questions are:  Does anyone else have similar issues while all blood work is coming back normal?  And, any suggestions on how to introduce items back into my diet to test for reactions?  Should I start with gluten or dairy?  The sugar I can live without.  Any info would be helpful.  I look things up on the internet but end up with a bunch of pop up ads for things that are going to cure me.  Thanks in advance.  
    • There is nothing you can really do about the high antibodies.  If it is any consolation, mine have been as high.    Your TSH is too high.  The acceptable range now is around 1 to 3.  You might benefit by increasing your thyroid replacement (or starting) if you are not taking it now.  I feel best when my TSH is closer to a 1.  
    • Do you have a dental school anywhere close?  Even a couple of hour drive might be worth looking into.  See if you can talk to one of the clinical supervisors/dentists.  This would be a case they would like. Or just show up to an Emergency room at a big hospital - if its serious, they can't turn you away.  Because that is what will happen eventually.   Edit - Call up Texas A & M school of dentistry and get your butt up to Dallas!
    • Simon Levelt Organic Coffee is certified gluten free . 
    • Figured I would update on this, up to 1000mg of amoxicillin (500mg twice a day) it does nothing anymore the infection is constant, white area above the tooth, pressure and issues breathing out my right nostril some days, pressure behind my right eye, and ringing in my right ear.  Checked around as suggested still only 2 places willing to work with me (do to the infection and nature of it most will not) they charge a good amount of money and the upfront fee on payment plans is outside my ability to pay. Xray show a large black area heading up into the jaw and apparently this is the issue that has caused most to shun working on it.... I no longer have medicaid due to paper work issues. Bakery business has gone really bad this past month. I am honestly not been able to even afford fresh veggies this month and been living on canned spinach for my veggies, and eating the same meals over and over (omelettes, shakes, nut based porridge).  I am honestly just trying to ignore it and live my life the best I can with the knowledge it is going to probably kill me in the next year and there is nothing I can do about it. Just hoping some philanthropist offers to cover my medical bills or say screw it and let it kill me. I will keep posting on other topics and avoiding this one while I can and hopefully keep contributing to the community with my knowledge base, suggestions, etc in the mean time.
  • Upcoming Events