Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Balance And Falling

Songbird1976

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

Looks like Sherry Lynn's may well have been the first, but others have sprung up. That's awesome!

Just to clarify: Sherry's is not just a bakery. They offer full meals, baked goods and products. Her equipment was all new, never used in a restaurant before. Pristine :lol: No one can bring any food or beverages in--not even the employees. :) No CC here!!

I started looking at the links you provided--thanks.

The one in Colorado (yum)and the one on Cape Cod (YUM again--and I could get to that one, at least!) sure appear to be totally gluten-free full menus restaurants!?

Thanks for posting, Joe.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lady Eowyn Apprentice
Lady Eowyn
Posted

Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Link to comment
Share on other sites
Songbird1976 Rookie
Songbird1976
  • Author
Posted

Thank you to everyone who posted on this topic. It was a great resource and of great comfort to me. Much appreciated.

:)

Link to comment
Share on other sites
Songbird1976 Rookie
Songbird1976
  • Author
Posted

Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Hello Lady Eowyn,

Thank you for sharing (which is always great)! Hope you feel better soon.

:)

Link to comment
Share on other sites
thleensd Enthusiast
thleensd
Posted

What a great conversation. It's nice to have people to relate to! So many "atypical" issues here that are simply "just" Celiac. I feel like I'm always looking for more answers to fix my fatigue, aches, brain fog... I will continue to do so, but more than likely what I need is time-time to eat good, nutrious food. Time to rest. Time to understand my body and know that "more exercise to get in shape" isn't always the right answer! Some days I can only walk a few minutes at a time. Others more than an hour!

Last night I was teaching/directing my Tuesday night music group (adults)... There was a point in time (happens periodically!) when I just couldn't make my mouth say what my brain wanted it to! Fortunately, they've seen it before and we can generally just laugh about it. It's like oral ataxia...my tongue and lips just can't quite get their balance. :) (yes, I just made that up!) It's funny because most of them are at least twice my age, yet we have many of the same body-is-betraying-me type of experiences. In my case, however, I'm VERY hopeful that it is a temporary condition. What a painstakingly slow process recovery is for some of us!

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

:D:D:D

I often say patience is the only good thing that came out of my years of illness.

I had the speech problem also. I used to be a chef and I had helpers that were suppposed to do my pulls for orders. By the time I could actually ask for what I needed I could pull it myself three times. I couldn't even tell you what a fork was if you held it up in front me. I am so glad that did resolve for the most part after I had been gluten free for a while.

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Truer words were never spoken!!! I was always patient with students, children, the elderly....but after all I have faced in the last 5 years, I have the patience of a saint now.

I have a PhD in patience. I have a gold medal in patience...ok, you get it. :lol: :lol: :lol:

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,986
    • Most Online (within 30 mins)
      7,748
    Mazzamaloo
    Newest Member
    Mazzamaloo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Waiting for urgent referral.

      By trents · Posted

      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...